Feel it has been so very long since I first came to say hi to everyone and to check out how you all are, but you are all certainly not forgotten!!!!!
Looking after my son is such a full on preoccupation its a full time job plus overtime!. Since this government in the UK changed all the help that was available to disabled and sick people it has been an endless job of form filling (if you can call them forms more like a bloody book!) and all negativity which makes it hard when trying to have a positive outlook on life regardless what it throws at you!!
Do you remember me going on when I first wrote here about moaning and whinging!!!!! Yep !!!
Finally got a minute to write here to all you wonderful people and let you know how things are progressing on generics!
Since starting treatment not feeling too bad and I guess the above keeps my mind off any sx, although falling asleep over dinner is kinda harder to explain away to others at the dinner table. Feeling exhausted can be frustrating and really sometimes all i want to do is sit on my butt doing sweet FA so do have to push myself to get out for some fresh air
Atrial fibrillation makes the whole thing harder as just walking to the top of the road leaves me feeling totally out of breath ....some days being worse than others. So.... not always sure if it is the AF or the meds making me feel so tired both I suspect. Really its been pretty good on the whole and pleasantly surprised after the horrendous sx of interferon and riba all those years past.
Getting results has been a bit of a circus! The base results prior to starting were done perfectly was really impressed and foolishly thought it was going to be an easy ride hahahahaha!!! My GP has been amazing but hepC is not something she is super knowledgeable about. She is learning fast tho!!! So my 4 week tests came back ALT had come down no sign of AST which my GP suggested was the lab deciding that as ALT was good there was no need for AST. Was given a form for another blood test just for AST.
Phlebotomists are really good at the surgery but always end up with bruising as I am taking Warfarin for the AF! What does it mind a bit of colour on what is always very pale skin! Always wished us humans had skin with the vivid colours of some other creatures out there on the planet perhaps a beautiful turqoise turning to an irridecent green....... I dream and digress!!!!!!!!
AST results came in and were down so all good there. Finally received results through email from GP for VL 'not quantifiable' was the result which was not something I had seen before but GP seemed to think that was great so ok I am assuming now that means UND? When at the surgery to have the ALT blood test redone I asked for a print off of VL and was really bemused by what was actually written. It actually read
'positive-Below the limit of Quantification'
There was also a laboratory comment stating
'please note that this sample was diluted due to the small available volume. This may compromise the accuracy of the test'
I had to read it all a few times couldn't make out what it meant but was sure it was not UND!!! So back to surgery for another form to have a further blood test and hopefully get a proper VL result! Whew not quite the 4 weeks results all neatly together but hey as long as I get them and can see things heading the right way I am happy
Starting week 7 today will be heading back to phlebotomist in a week for more blood giving hahahaha! Maybe move in there with them!!!!!!
Did speak with the wonderful Dr Debasis who reassured me all seemed to be going well but you know what its like right you always want that confirmation on paper!
Got to go sort out wages for the PA who is working with my son today, she is off on holiday for a week!
Well I hope I haven't bored the ass off everyone, cannot believe I have written so much here don't seem to have said too much tho!. Spend a lot of time reading others posts but never seem to have enough time to comment or send my love to you all.
So here it is now by the ladelful
N XXXXXXXXXX