Hi Enrico.
MonkMed have been my 'rocks' throughout my treatment. Both Tim and Dr Debasis. They are awesome people working extremely hard for the good of us all, you may find it hard to believe but there it is (and no, I am not on commission).
They offer a reliable, legally documented, tracked and supportive 'service' of supplying licensed medicines from well-known companies known by UK Drs as our NHS use their medicines (and therefore helping some of us in the UK to get monitoring) throwing in a big dose of kindness as a free gift. Their partnership with Dr Freeman whose truly amazing work has been well documented on this website makes absolute sense. We are all extremely grateful. These people are not just 'sellers'.
Dr Freeman / Fix HepC have done an amazing amount of work getting the Redemption Trials officially listed (will try to find link) and taking the results from Australia to Barcelona to tell the EASL meeting the positive results, as well as organising prescriptions, advising patients and being the promotional face of the whole kaboodle and needing staff to help him which I'm sure, will incorporate costs. These actions have benefited us all and the idea is to try to get the word out to benefit thousands more.
The UK HepC Trust (as I think you may have mentioned) have even come on board now as saying this is a reliable supply chain.
Although it is impossible to guarantee anything – and we certainly do not – our research has led us to believe that the best place to go is www.fixhepc.com. This site was established by an Australian doctor to help patients get the drugs before they were available there.
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hepctrust.org.uk/buying-hepatitis-c-drug...3-what-you-need-know
There are unfortunately some unscrupulous sellers out there. This website do their best to vet all who post on here and try to weed out any dodgy ones. Why risk it when you have a reliable option? As you say, £1000 is alot of money to many and trust is involved.
Yes, It is hard to believe in this day and age, but it is what it is and that is what it is !
There may come a day where they cannot do this for us any more, If you want to rid yourself of this nasty virus, it is my personal opinion, along with others here on this forum that these are the very best people to help you.
The other option is waiting for the NHS in the UK or just sourcing through a plain seller. Currently, the HepC Trust are trying to raise money to take the UK fund a judicial review of the NHS patient cap after they went back on their word regarding access to treatment for many patients. See here :
www.hepctrust.org.uk/news/may-2016/hepat...%99s-decision-ration There are good people doing good work, but it does take $ and £ to take on these issues on a larger scale. I guess many of us here have seen it grow and support the whole 'movement' (for want of a better word).
I can understand your fear, Hope this helps.
ps I will also add, there are many very genuine and kind people on this forum who have supported each other and still go on to support new people after they have achieved SVR from the goodness of their hearts . This forum helps many who have not told friends and family or have told them but they find it hard to keep up with it all. It has certainly helped save my sanity !