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cured 7 years 10 months ago #17979

  • PKQ
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Chalk up another win for Mesochem !

After 24 weeks of their well known and highly regarded sofosbuvir and ledipasvir, followed by 12 weeks of stressful waiting, my GP finally gave me a request for a VL test. The results are now to hand, and it says 'NOT DETECTED'. That is SVR12. And that is officially cured!

And just as well. After the opposition and white-anting I got from my friendly local liver clinic about generics, I didn't bother to mention to them that I was treating myself with 'Chinese rat poison'. So I'm still on the waiting list for PBS treatment. I don't know what this "PBS roll out" is all about, but it certainly hasn't yet rolled as far as Adelaide.

The closest I've got to PBS treatment was last March, when the liver clinic called me in for an interview and the great big specialist told me that when I got to the head of the queue he was going to treat me with 12 weeks of Harvoni and ribavirin. "But don't worry about the ribavirin" he said "It doesn't have any side effects. You only felt sick last time because of the interferon". Yeah, right.

Thank dog I never have to deal with that bunch of quacks again.
GT 1a
cirrhosis (or not, take your pick)
2015 - failed treatment with simeprevir+inteferon+ribavirin
23 Sep 2015 started 24 weeks treatment with Mesochem's sofosbuvir+ledipasvir
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cured 7 years 10 months ago #17980

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Great post! Congratulations!!!


Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
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cured 7 years 10 months ago #17982

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Yay great news!! Congratulations to you!
And hey too funny about not telling the health "authorities" you were going to try the Chinese rat poison! lol :woohoo:
Ha It worked just wonderfully!
wish I knew how to post a super dancing star, but here goes a happy :kiss:
Blood transfusion in 1992 - Diagnosed in 2007
Tx naive -G1b - F1
VL 2.270.000
ALT 40
Start tx June 4th/2016 with DAAs - Sof/Led from India
Bloods on two weeks of tx (June 18th)
AST 17 - ALT 10 - GGT 19
Virus UND
Bloods on six weeks of tx (July 16th)
AST 17 - ALT 8 - GGT 12
Virus UND
EOT on August 8th (did 9 weeks and 3 days)

SVR 4 Virus UND (September 7th)
AST 13 - ALT 5

SVR 14 Virus UND (November 12th)
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cured 7 years 10 months ago #17983

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Congratulations big time! I agree about the last line..." don't worry the ribiviron it won't make you sick"! Ya your right about staying away from those quacks!
Congratulations !!
Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
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cured 7 years 10 months ago #17984

Congrats!!!
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Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
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cured 7 years 10 months ago #17988

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Fantastic news PKQ! :woohoo:

#dance
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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cured 7 years 10 months ago #17989

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Freakin AWESOME!!
Congratulations and yew! You are the first person I have heard speaking from Adelaide
I have friends over there who are still waiting on PBS! Treat now yes!
Congrats again fabulous news from SA
BIG happies from Ariel :+1: #flower
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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cured 7 years 10 months ago #17991

Unreal Great News
Lets hope for many more
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry Ashton

Barry Ashton
The following user(s) said Thank You: Gaj

cured 7 years 10 months ago #17994

Ariel wrote: Freakin AWESOME!!
Congratulations and yew! You are the first person I have heard speaking from Adelaide
I have friends over there who are still waiting on PBS! Treat now yes!
Congrats again fabulous news from SA
BIG happies from Ariel :+1: #flower

It's ALL news to me here in the USA, I don't know Adelaide from Brisbane :P :lol: but ditto on the congrats and way to go on not waiting to reach the top of the list for the PBS to treat you to ribavirin :blink: :woohoo:
Shall we dance??? Thats an invitation to ALL :woohoo:
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
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cured 7 years 10 months ago #18000

  • GT2
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Hi PKQ

Congratulations.

A much deserved self- treating win against HCV with that cheap and nasty “Chinese Rat Poison” stuff.

I’ve been referred to a liver clinic and they’ve told me they will schedule an appointment when they get around to it. Who knows when? So, it’s not just Adelaide with a long queue for PBS HCV DAA treatment. In the words of another forum member, Beaches, they can all go to the far queue.

"Don’t worry about the Ribavirin … it doesn’t have any side effects" … is straight out medical negligence. They have a duty of care to fully inform patients of all known side effects. Ribavirin’s list of side effects is longer than Chopper Reads rap sheet.

Cheers

GT2
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
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The following user(s) said Thank You: pat1, Gaj, Matt-Kenney-google

cured 7 years 10 months ago #18008



Happy dance for you!!
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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cured 7 years 10 months ago #18014

Yabba Dabba DOO!

SVR 24
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cured 7 years 10 months ago #18016

Thank dog I never have to deal with that bunch of quacks again.


:cheer:

Fantastic - Congratulations :+1: :+1: :+1:
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: pat1, Ariel, Matt-Kenney-google

cured 7 years 10 months ago #18019

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Loved your post PKQ. Massive congratulations to you. #flower
I had a very uninformed registrar trying to peddle interferon to me at a liver clinic a few months before I started taking generics. I know which one is the rat poison......
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
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cured 7 years 10 months ago #18029

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Magic Happens

#magic
YMMV
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