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Dr Freeman - Please help 8 years 6 months ago #385

  • Dafne
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My name is Dafne and I am writing to you on behalf of my father Adolfo who was diagnosed with hepatitis c over 12 years ago. He has been seeing a specialist for many years and has now developed cirrhosis of the liver. He has Hep C genotype 1b.

I have been in contact with a specialist in Chile who made me aware of Greg Jeffreys and have been trying to find a doctor that will help my dad with proper treatment. My father's long time specialist has only ever offered him Interferon and my father in all these years has not wanted in to go the way of interferon due to rate of success for his genotype and also proposed side effects of the drug. However now that he has a cirrhotic liver our concern has become more like desperation. We have been doing extensive investigations with regards to treatment and rates of success and we have found a way to access the combination Sofosbuvir+Ribavirin+Daclatasvir which we know has significantly less side effects and a high success rate for his genotype and the terrible side effects.

We understand it is perfectly legal to import medication to Australia for personal use with a doctor's prescription and if treatment is properly supervised. This is the reason I am writing to you today. We would like to know if you would be able and willing to accept my father as your patient and help us with the required prescription and observation while my father undergoes treatment. We would be more than happy to provide you with his full medical history and of course any information you may require with regards to the origin of the required treatment medication. It is unfortunate that big pharmaceutical companies force people in certain parts of the world to dance this dance but we are also aware of many Australians that have been helped by their doctors in achieving proper treatment and eventual cure from a previous death sentence.

I read the SMH article and quickly made my way through the links to find this site here and GP2U. I have jumped the gun and made an appointment to see you on Tuesday on Skype. We would be forever grateful if this led us closer to proper treatment.

Thanking you,
Dafne.

Dr Freeman - Please help 8 years 6 months ago #389

Hi Sirchinenge, Can you buy medicines if you are not in Australia?
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

Dr Freeman - Please help 8 years 6 months ago #399

  • Chapel
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Yes, and it looks like you will have a British script too so you are OK to take delivery.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

Dr Freeman - Please help 8 years 6 months ago #401

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Oh, London I think I might have misunderstood an earlier post from you with the word `doc' in it, maybe not correct to assume you have a script, sorry.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

Dr Freeman - Please help 8 years 6 months ago #402

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Thank you very much for your reply. We will be more than happy to fill out the consent form...I'm not sure where to find it however.

I have made direct contact with Dr. Freeman and I will send him my father's medical information.

I can't tell you how elated we are. Thank you for your help. Please let me know where I can get a copy of the consent form.

Dr Freeman - Please help 8 years 6 months ago #403

Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12
The following user(s) said Thank You: LondonGirl

Dr Freeman - Please help 8 years 6 months ago #405

Hi Chapel, Yes, I was refering to the Document - Very handy.No prescription as yet, but looking hopeful.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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