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Splitdog in the US 7 years 9 months ago #18793

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Thanks guys.
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Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
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Splitdog in the US 7 years 9 months ago #18796

Hey Split...

So very sorry to read, it must be a shock. I hope you're doing ok?

Thank God for Dr F hey - You have some more opitions.

I am now at week 25, making sure I give it my all and know what a long tx is like. Nothing too bad, just ...... long! I'll be around to support if you need a listening ear.

Keep the faith, you'll get there.

In the meantime, chin up my friend.

LG
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Splitdog in the US 7 years 9 months ago #18803

Sorry to hear this news Splitdog, but I'm sure you will beat this with so many available treatment options :cheer: :+1:
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
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Splitdog in the US 7 years 9 months ago #18804

Hey Splitdog, sorry to hear your news, but yes Mesochem has Velpatasvir and several other options as well.

I suspect what Dr. James is saying is that he can't technically prescribe it until Australia follows the US lead and approves its use. But it is physically available now. A member here has talked with me in PMs about it and decided to order 12 weeks of it. It cost US$1060.00 for 9 grams delivered ... 12 weeks treatment. And it arrived 15 days ago.

You're gonna win this battle, just keep going.
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Splitdog in the US 7 years 9 months ago #18805

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Velpatasvir is not suitable for compounding at home.

fixhepc.com/forum/experts-corner/1132-ve...unding-from-api.html
YMMV
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Splitdog in the US 7 years 9 months ago #18807

I just discovered your other thread. So now I guess I'm wondering ... is this a process that can be done by any compounding chemist, i.e., Kingswood?
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Splitdog in the US 7 years 9 months ago #18812

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Jim....so sorry to hear about your relapse. You have one of the best
experts available here, Dr F. We all know he will show you the way.
Good luck....e.
contracted Gen 1a in the 70's, dx in 2007...ast 27 to 35...alt 43 to 96...vl 1.2 mil to 8.6 mil.
biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
tx started 2/11/16.... lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
28 days later.............lab results 3/9/16 ast 21, alt 21, vl UND
56 days later.............lab results 4/6/16 ast 20, alt 22, vl UND
139 days later...........lab results 6/29/16 ast 28, alt 30, vl UND...EOT
SVR24
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Splitdog in the US 7 years 9 months ago #18815

Aww Jim so sorry to hear that-- am sure with all the expert support and advice here youll get started asap on a new combo to clear.
Youre in my thoughts and prayers

Bob in ireland
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Splitdog in the US 7 years 9 months ago #18979

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Dame Splitdog, sorry to hear this :(
I know you will beat this :+1:
Just gonna take longer than what we would like.
Hang in there #love
GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22
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Splitdog in the US 7 years 9 months ago #18980

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splitdog wrote: I went to the Dr yesterday to get my SVR12. The virus is back. Count was 3,300,000. We're doing a retest, but I'm just not optimistic. I guess I need to do a full 24 weeks now.......;(


Dang! That sucks overtime!! So sorry to hear about your relapse... :( Your day to reach SVR will come to you. Unfortunately for some of us it takes longer. good luck!!


G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
Attachments:
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Splitdog in the US 7 years 9 months ago #18982

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Hey Split
Don't know what to really say, relapse is so personal Ty for sharing and I hope I can offer support your inner strength is admirable, and to wish you full clearance, this stage of your life just now soon will all surely sort out, and you are still fighting on like you do.
Keeping you in my thoughts
Ariel #flower
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Splitdog in the US 7 years 9 months ago #19005

splitdog wrote: I went to the Dr yesterday to get my SVR12. The virus is back. Count was 3,300,000. We're doing a retest, but I'm just not optimistic. I guess I need to do a full 24 weeks now.......;(

What do you think, doc?


Hi Splitdog,

I am off to have my blood taken for my hoped for SVR12 tomorrow. I did 24 weeks and at this time I do not think the virus is around. But I will know for sure after the test comes back. I purposely did not have tests after EOT, just one in Nov 2015 and one in Jan 2016 while on treatment.

Best wishes and let us know the next strategy - it may be helpful for me to know what to do if my test comes back no good. And your calm demeanour is reassuring for me as well.


Yours

Jeff
GT3a 1990 Failed Inter 1998, comb in 2000. HCC 2012
Started 24/52 Sof/Dac 27th October 2015.
1. Bloods 2 October 2015: AST - 165 (20-40), ALT - 265 (5-40), GGT 189 (5-50)
2, Bloods 20 November 2015: ALT etc normal; VL 19
3. Bloods 8 January 2016: AST - 40, ALT - 59, GGT 48 VL RNA UND
4. EOT 12 April 2016 - blood tests: all is well, CT scan: okay
5. AFP 11 June 2016: 4 ref< 11
6. VL July 2016: DET
7. Oct16 start treat - June17 UND
8. Jun 18, lfts okay, platelets a bit low.
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Splitdog in the US 7 years 9 months ago #19007

The new stuff will nail it.
m
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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Splitdog in the US 7 years 9 months ago #19070

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Am gutted to read of your relapse like everyone else am sure with all the options
available you'll get there!

Best of luck.
Sob/Dac from Oct 29 2015
Geno 1b
Fiberscan 9.9 Pre treatment
Fiberscan 7.4 week 10
VL 1.3 million pre treatment
Week 2.5 VL 96
Week 5.5 VL 17
Week 10 VL UD
SVR 3 UD
SVR 16 UD
Cured:
All liver functions in normal ranges.
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Splitdog in the US 7 years 9 months ago #19261

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Re-test came back today. VL= 20,741,477. Wow. I guess I'll retreat with sof/vel this time. :(
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Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
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