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TOPIC: Process within Oz for purchasing non-PBS/further DAA's

Process within Oz for purchasing non-PBS/further DAA's 5 months 5 days ago #22841

  • AK123
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Just looking for some clarification in regards to the process of obtaining an extra month of Sovaldi/Daklinza, on top of the PBS covered 12 week supply that I'm currently on (10/12).

What does the GP need to write on the script? Non-PBS? Generic medication/equivalent dose required? Or such?

Additionally, does the compounding chemist automatically send the correct dosage? Ie Should the script read Sovaldi 400mg, Daclatasvir 60mg (28 days)?

Appreciate quick guidance on this matter. Thanks!
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Process within Oz for purchasing non-PBS/further DAA's 5 months 5 days ago #22843

  • Gaj
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You or the prescribing doctor should confirm details with the compounding chemist but usually they use the drug name rather that brand name so:

Sofosbuvir x 400mg x 1 daily x 4 weeks (28 days)
Daclatasvir x 60mg x 1 daily x 4 weeks (28 days)
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 ->

And I couldn't wait to get on the road again
On the road again, on the road again!
- with apologies to Willie ;)
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Process within Oz for purchasing non-PBS/further DAA's 5 months 4 days ago #22862

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The process was easy! Yesterday I firstly rang and got the go-ahead with the nurse at the hepatitis clinic of the hospital (where I obtained my current 12 week course), then booked in to see a local GP. A script for a further 4 week course was made up and faxed to Kingswood Compounding Pharmacy at 7 pm. I followed up this morning with a phone call to the chemist (Nabil- who was great) and checked the script had arrived, address details, etc. Late morning I was contacted and told the DAA's were ready to send! I paid the fee via credit card ($575 which included express post delivery), and can expect them in the mail either tomorrow or Monday! Yay!
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Process within Oz for purchasing non-PBS/further DAA's 5 months 2 days ago #22907

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I purchased 12wk Tx sofosbuvir and ledipasvir from West Linfield Pharmacy, Sydney. This was based on the prescription from my specialist ie: sofobuvir 400mg and ledipasvir 90mg. I'm very sure that they will provide correctly compounded DAA's for which they use Chinese generic AI's. They are a TGA approved supplier. As a guarantee, I'm quite sure that you will be able to get a prescription from Dr James Freeman if you contact him. All personnel at West Linfield were very helpful. They also supplied me with copies of the analysis of the AI's before I ordered the compounded Tx.
This was before the meds were available on the PBS ie: Nov 2015. They cost me AUD 2350 and were priority couriered within 3 days.
I'm now at SVR28, so effectively virus free and my F3-4 cirrhosis (14kPa) is now F1 (7.3 KpA).
Last Edit: 5 months 2 days ago by lloydabb. Reason: Just added a few more facts
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