Welcome, Guest |
TOPIC:
Any Post-Treatment Reflections? 8 years 2 months ago #11624
Thanks Lynne, I have created another topic querying BP while on Tx. gt 1a VL 6m F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015 sof/dac 10 December for 12 weeks pre tx alt 85 ast 51 4 wk alt 34 ast 31 UND <35 8 wk alt 29 ast 32 UND <15 12wk alt 25 ast 25 EOT 3.3.16 SVR24 UND KPa5.3 F0 in normal range I am well .forever grateful to fixhepc The following user(s) said Thank You: Ariel | |
Any Post-Treatment Reflections? 8 years 2 months ago #11625
Go Tina Go Dan not long for me also gt 1a VL 6m F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015 sof/dac 10 December for 12 weeks pre tx alt 85 ast 51 4 wk alt 34 ast 31 UND <35 8 wk alt 29 ast 32 UND <15 12wk alt 25 ast 25 EOT 3.3.16 SVR24 UND KPa5.3 F0 in normal range I am well .forever grateful to fixhepc The following user(s) said Thank You: Tina-Hill-facebook | |
Any Post-Treatment Reflections? 8 years 2 months ago #11633
CONGRATULATIONS Tina! Yay So happy for you I am hanging out to EOT, mind you the tablet has taken on a new meaning since scoring an UND I feel like I am swallowing a lolly! Let us know how you go with SVR Love from Ariel xxxx Lynne the BP I Had was ridiculous yep way too high the diastolic at 130! I'm good now Get it checked yes Mine went berserk for a while after peg/inf riba btw but settled after a few months xxx Hugs for your SVR Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 The following user(s) said Thank You: Lynne-Francis-facebook | |
Any Post-Treatment Reflections? 8 years 2 months ago #11636
|
Heya Dan I knew there was someone who was finishing around the same time as me and it had totally slipped my mind as to who it was Best wishes for your test hope you get the magic UND. Im still waiting to get an UND - at 4 weeks I was <15 and log 1.08 so it was a good start. REALLY wanting to see an UND with this next lot of results. The odds are in my favor but its hard not to get into that overthinking mode eh. Ariel Thanks Pat SVR 24 The following user(s) said Thank You: Ariel |
Any Post-Treatment Reflections? 8 years 2 months ago #11637
| Wow...a collective good luck to everyone on finishing your treatment....... Lives in Bendigo, Victoria No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal Insomnia the only side effect Undetected at 4 weeks SVR4 - undetected - all bloods good and GP very happy SVR12 bloods to be done at end of April 2016 SVR12 - undetected!!! The following user(s) said Thank You: Tina-Hill-facebook |
Any Post-Treatment Reflections? 8 years 2 months ago #11688
Thanks Mtgoat, I know it means a lot to me when I read stories from others that I really relate to, especially since it's been such a lonely journey. I've spent a lot of my adult life alone, not sharing, not knowing anyone else with HepC and the reactions I would get from people when I told them Congrats to Dan and Tina for their EOT Gosh, Lynne and Ariel those BP's are frightening, I really hope your Dr's can sort out why. I haven't had mine done since Tx, I forgot to ask last GP visit. Wishing you all well QLD Australia ☀️ G3a HCV 35 yrs Tx naive Started Sof/Dac 13/01/16 Dec '15 AST 70 ALT 89 GGT 124 Fibroscore 8.5 F1-F2 13 Feb'16 VL UND AST 24 ALT 26 GGT 50H | |
Any Post-Treatment Reflections? 8 years 2 months ago #11700
Great to hear of all the EOT's here And Joy - Fantastic news, congrats! I'm not likely to be able to catch up after a long time offline, but want to wish everyone the best I'm not drinking anymore (at least until I get well into SVF) but I do miss the occasional smoke, with you on that Chejai...I gave up though when I got my firearms licence - too much at stake to risk it (unless Aust goes full Colorado, which I doubt lol) GT1a since 1988, diagnosed 1990 F0, tx naive VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9 Started Mesochem sof/dac 12 weeks 01/01/2016 11/02/2016 - 6 weeks UNDETECTED AST 26 ALT 26 The following user(s) said Thank You: Chejai | |
Any Post-Treatment Reflections? 8 years 2 months ago #11701
| My very best wishes to all of you at EOT Tina, Dan, Joy - I'm not good at remembering who I've sent good wishes too, but at least I have 3 if you right here in one post Anyway, big LG xxx GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC The following user(s) said Thank You: Lynne-Francis-facebook |
Any Post-Treatment Reflections? 8 years 2 months ago #11744
Thank you all for your warm messages. I hope that my lightheadedness will go away now. It might take time, but I hope it will improve shortly. Gen 1b, F1-F2. Naive. Started Twinvir tx on 2 nd of December 2015 for 12 weeks. Starting VL 400000, Alt 49/AST 44 1 week VL 29, ALT 44/AST 30. 4 weeks VL 12, ALT 33, Platelets 145, all other tests normal. 7 weeks VL Detected, ALT 28, all other normal 8 weeks UND, 12 week UND, 24 week SVR UND The following user(s) said Thank You: LondonGirl, Ariel | |
Any Post-Treatment Reflections? 8 years 2 months ago #11748
Hi Dan, Most probably, the light-headedness will just go away in a couple of weeks once the nerve cells get used to new (proper) levels of enzymes coming from the liver. Well, that was how it seemed to me anyway... Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog. Started Sof+Dac from fixHepC 10-Nov-2015. NO sides. Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000. Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3). | |
Any Post-Treatment Reflections? 8 years 2 months ago #11758
Good luck too, Dan. That seems logical Vororo GT1a since 1988, diagnosed 1990 F0, tx naive VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9 Started Mesochem sof/dac 12 weeks 01/01/2016 11/02/2016 - 6 weeks UNDETECTED AST 26 ALT 26 | |
Any Post-Treatment Reflections? 8 years 2 months ago #11761
So, Dan, sorry if I've missed this thread but did you have 'light-headedness' before Tx? Or is this something that happened during and post? I have had it before Tx but worse during Tx - especially when I crouch down or bend over to pick something up, I become very dizzy, see stars, lose balance and need several seconds to hold onto something. I drink plenty of water and if I'm sweating profusely or GI problems and losing a lot of body fluid then I use electrolytes. It isn't stopping this though. My BP is 'normal' and that 'orthostatic' test they do - sit down in a chair and then stand up and compare - doesn't work, because all my usual BP's are taken while sitting, and it's not the same as bending over/crouching down. Are you anaemic - this can cause 'light-headedness'. Anyway, Dan hope it improves for you. QLD Australia ☀️ G3a HCV 35 yrs Tx naive Started Sof/Dac 13/01/16 Dec '15 AST 70 ALT 89 GGT 124 Fibroscore 8.5 F1-F2 13 Feb'16 VL UND AST 24 ALT 26 GGT 50H | |
Any Post-Treatment Reflections? 8 years 2 months ago #11785
Chejai Similar to you, my 'light-headedness' started about 2 years ago, before the tx( as a result of that 12 month later GP found that I'm Hep C positive, after my wife asked him to test for it I only feel like that when I'm standing or walking. Sitting down or in bed is fine. My BP is normal and I'm not anemic. On the last visit my GP sent me for VL blood test and to check for diabetes. I have an appointment this weekend with the neurologist, it will be interesting to see what they say. 7 month ago they didn't want to see me and said to complete HEP C treatment first. I've read on other forums that for some people it took few month, before they got better. Gen 1b, F1-F2. Naive. Started Twinvir tx on 2 nd of December 2015 for 12 weeks. Starting VL 400000, Alt 49/AST 44 1 week VL 29, ALT 44/AST 30. 4 weeks VL 12, ALT 33, Platelets 145, all other tests normal. 7 weeks VL Detected, ALT 28, all other normal 8 weeks UND, 12 week UND, 24 week SVR UND | |
Any Post-Treatment Reflections? 8 years 2 months ago #11787
Congratulations to all!! That we have all been saying that a lot is certainly an understatement, Things keep going, we can become the Hobart Social Club and play ukuleles together online every Saturday night. Then we would get into the Saturday night here, Sunday afternoon there "time warp". Oh well. Still some battles to be fought yet in this little war before mustering out. I'm 37 days post tx. Halfway to the finish line. I have been free of all drugs, other than my daily 10mg lisinopril, for 10 days or more. Getting rid of the Lexapro was not pleasant, but feeling like a carefree zombie was not my style. So, I will give my "Six Week Summary": Pretty simple really. If I get my normal 6-7 hours sleep, I feel great. Not good, better than good. A "spring in you step, smile on your face" kind of feeling. A good nights sleep is critical for me to feel like that. The good news is that sleep comes easily now. A little dreamy on occasion, but just deep sleep mostly. Deep sleep equals maybe one or two trips to pee, which is nice. As a teacher, I am exposed to contagious shit constantly. A gallon of hand sanitizer lasts about a month on my desk at school. Each winter I could count on at least 2 or 3 colds, which always ended up in my chest and lasted about 10 days. Two minor scratchy throats the odd sniffle this year. Nothing different with the kids. They are coughing and snotting all over the place as usual. There is something different with me. Imagine a bully picking on a seasoned, special forces type on a little beach-front R&R, a look would probably suffice. My immune system must have some highly honed anti-viral skills to have fought for so long successfully. Weight, BP and appetite-perfect. I have old knees, though. I can deal with them. I hope others fare as well. Mike This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
Any Post-Treatment Reflections? 8 years 2 months ago #11817
Mike, after 24 years at the coal face I am not looking forward to going back to teaching Yup germs Not the kids the stuff that coats them lol As a Strings teacher I always insisted on detol wipes in every kids kit So gross even tuning up you never know what's on the tuning peg lolololol Ariel x Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 The following user(s) said Thank You: mgalbrai | |