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Should I start treatment 7 years 10 months ago #18864
| Hi JF, I was also on Harvoni generic. At first I had hints of a very mild headache which as others have said, went immediately on drinking water (filtered). My immediate side effects were that I felt much better! consultant said this was due to reduction of imflammation . 4 weeks in I got a cold which turned into a chest infection, it was winter in the uk at the time, but was told this was quite common on this treatment, but if you needed antibiotics you would need advise on which to take before swallowing. Spain of course will be very warm, but if on a boat (you don't say large or small boat) I would take care not to sit around damp clothes on a windy day! I can remember the uncertainty & nerves re starting treatment, if I had to do it again, I personally would go to Spain on holiday. I take it you have your EU health card? (use it while you still can!). Having said all that, there is a small risk , some people have had high blood pressure on starting tx for example. We are all different. Don't know if you know, The Spanish healthcare system is very good, but also, private Drs are affordable. There are private Hepatologists in the Malaga area, I looked into that when I was looking for monitoring, I remember also a Dr in Mallorca being mentioned, I think Greg Jeffereys has those details. So you could have a plan in place if needed. Also, cheap flights to return home if you felt concerned. My feeling is, fresh air, warm sun & relaxing would do you good, but definitely put some 'what if' measures into place to be prepared just in case. GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
Should I start treatment 7 years 10 months ago #18869
I also had the Harvoni treatment and any side effects I had were very minor. I'm not a doctor but I'd say if you were to have any worrying side effects you'd get them in the first 1 to days. You won't be far from home. I'd just go and enjoy myself Genotype 1a Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby | |
Should I start treatment 7 years 10 months ago #18876
| Well JF, looks like the votes are in and the tally points toward you going to Spain. I personally think LondonGirl cast the deciding vote. She's wiser than her years ya know. She's from the same area as you and makes some excellent suggestions to help alleviate some of your stress and fears over going after having started tx. You could also PM Dr. Freeman to see what he might have to say. He has a lot of experience I'm sure. Either way, as beaches encourages, just go and enjoy yourself. Don't be like this guy ... GT1a; Got it some time in the 70's; Diagnosed @1976 Tx naive METAVIR: A2-F2 SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000 3 weeks after SOT: AST 27 ALT 31 VL 138 Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24 Hep C RNA "NOT DETECTED" AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24! |
Should I start treatment 7 years 9 months ago #19101
Thank you all for your advice. Unfortunately, I have had a small unexpected setback. My HCV consultant called on Friday to say that my base bloods (Creatinine Level) was too high. I need to have more bloods done to double check. I have been taking HIV meds for ten years and the consultant is concerned that that medication is affecting my kidney function. She advised not to start until we are sure my kidney function is good as the addition of Harvoni could strain my kidney function further. This may even involve switching HIV meds. It could also be a false alarm - I've had a few of those before. Anyhow, I will hold off on starting until we have cleared this up. I'll keep you updated. Thanks for your advice! 2 wk: VL UND, ALT 30 37K RNA, ALT 486 Tx begin 20 July 2016 Tx naive The following user(s) said Thank You: Gaj, Matt-Kenney-google | |
Should I start treatment 7 years 9 months ago #19113
| Hi James, I am sending you a PM. I know someone who was in the situation as you and they may be able to share their experience. They are also in the UK medical profession and a patient advocate. LG GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
Should I start treatment 7 years 9 months ago #19730
Hi guys i got good results on my kidney function and started my treatment today. one tablet down and feeling ok! 2 wk: VL UND, ALT 30 37K RNA, ALT 486 Tx begin 20 July 2016 Tx naive | |
Should I start treatment 7 years 9 months ago #19733
That's great James! Looking forward to your treatment journal! Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016 2 Week Results 20 June, 2016 AST 19, ALT 32 4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35 6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15 8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND 12 Week Results 31 August, 2016 LFTs Normal, VL = UND EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4" SVR12, 21 Nov 2016. CURED!!! | |
Should I start treatment 7 years 9 months ago #19742
Congrats on starting your tx Best wishes to a quick and sustained UND GT2b diagnosed 10/2015 since: unknown 11/20/15 VL= 214,070 12/4/15 ALT=18 AST= 24 1/16/16 started sof/dac 2/13/16 @4wks VL=UND ALT=13 AST=22 3/12/16 @8wks VL=UND ALT=10 AST=18 4/9/16 EOT VL=UND ALT=11 AST=19 9/23/16 SVR24 ALT=11 AST=22 | |
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