TOPIC:

wow, so here again, she comes out and misinforms the captured people on that forum that the drugs we have used here are
"ILLEGAL and PROBLEMATIC"....check out this ignorant drivel from the moderator on that forum:. The woman she was misinforming then said " thank you, I don't want to buy illegal drugs, I will wait".....purposeful promotion of ignorance, I give up with those fools. Here's the mod's post below:

"I edited out the 'how he got it' part, and we will continue to do that when people who don't seem to have the patience to go through what others have . . and ARE . . turn to illegal (in the U.S.) sources. The drugs obtained that way are potentially problematic and 'we' here, will not host the sharing of such 'information'. You can try contacting him through the 'email' or 'PM' links in his profile.

There ARE ways that may take a little time and effort, (and a positive attitude) for them to be available here, however, and we're expecting them to be approved (application is IN) in the Spring."

Well the 'Generic' thread I was posting in yesterday (where a few people had spoken up of obtaining their meds through the buyer's club) has been excised completely now.

PFFF, not everyone has the time left to wait and wait.. How ignorant not to be open to proven generics.

Yes, just have to give up on them and let them 'hug' each other and WAIT and pray in peace., horse to water and all that stuff,
must be some kind of Australian expression for this kind of thing.

So true Jan .

Odd too, look at the last line in her tirade,

and we're expecting them to be approved (application is IN) in the Spring

she's either a spokesman for or very strongly self -idenitifies with Gilead
ah well...its going to take some kind of big public newsy thing in US to cut through this kind of misinformation.

"people who don't seem to have the patience to go through what others have . . "

I find this comment telling about the person involved, or am I wrong in reading an over controlling 'you must take your punishment like I had to' attitude into it?

I suspect in this case all we can do is work to grow the public information about generics enough that people from that site become aware of the opportunities through more open public media (big newsy things) and migrate to somewhere where they can get emotional support and valid information.

G

Except she didn't have to wait. She got on what must have been one of the earliest trials back in 2012 or 2013. Oh and probably wasn't all that sick. The person currently staying with me tried to get on a trial and said Gilead heavily cherry picked applicants to ensure the best chance of getting the results they wanted.

What gets me about these sort of people is that they fail to recognise we are all grown adults, perfectly capable of making our own decisions. How dare this interfering, patronising old bat presume to tell me or anyone else how to live their life.

Conversely, she's clearly a god botherer and it's perfectly OK for her to ram her religion down my throat in her sig. Believe in whatever imaginary being's you damn well choose. But please it's highly offensive to publicly force it onto others all the time.

<Rant over>

They are not ILLEGAL, they are merely unapproved - 1:14

As true as it was then as it is now.

I really do not understand why some patients have to risk their lives for WAITING.... As long as the drugs help, it counts. In the end, only the patients themselves feel the pain, not other people, not any legal documents, not the one who passes or fails the legislation, even the one who invents the medications...

HP

This came to mind when I had read this thread "You can get busy living or get busy dying"

What forum is the usa moderator on

This one max forums.delphiforums.com/hepatitiscen/messages

Its an ancient dog's breakfast of a format to negiotate, gotta say lol

If you're thinking of going in there max, prepare to get chased away like the devil and after whatever you might post is thoroughly subjected to an exorcism, there will be a righteous sermon in its place, probably with some praise for Saint Gilead, the Savior....you might sneak something in late at night US time that might survive until she wakes up, looks like she resides in New Mexico, so about 2 hours behind New York time.

way, way back in the dark ages, it provided me with some useful information and I actually from what I read on there gleaned enough to decide I did not want to risk the interferon....but NOW, now its another story with the misinformation and scolding. ...

So what's the Australian saying for something like this, when you can't get a fool to learn something obvious....gotta be something appropriate for this kind of foolishness, we would say something like, "can lead a horse to water but can't make him drink"

May I suggest that someone asks this moderator to provide independent, documented evidence that has been presented in an appropriate publication eg: BMJ to support her notion that these medications are illegal....

Tina