emo London Girl's NHS Experiences

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6 years 6 months ago #5428

Great news LondonGirl! )


G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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6 years 6 months ago #5483

LG

So glad to hear that things are at last working out for you. I think you'll be fine now and hopefully never have to see that bastard consultant again.

Now for your curiosity and entertainment, here's this:

Is Your Liver Specialist a Psychopath?
en.wikipedia.org/wiki/Psychopathy_Checklis

:)
dt

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6 years 6 months ago #5502

Ah ha ha dt - The answer to that is, very possibly!


GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

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6 years 6 months ago #5511

Hi London Girl!
Based on my own experience it is hard to find a doctor that really knows about hepatitis from the letter B and ahead...
I found out about my VHC in Chile after donating blood in a major public hospital in 2009. The doctor that gave me the news was sincere and told me that he didn't know anything about hepatitis. A few months later I came back to Argentina to a small city where my mother lives. The good old doctor I consulted, now retired, was an infectologist a little bit out of date about how to treat it. He told me that there was nothing to about it, he only knew about interpheron and told me that there was little hope to cure it that way, just about a 5% chance to get rid of the virus. I was shocked by the news and spent 6 months planning my life thinking about having between 5 to 10 years of life ahead before going away to my last trip ever.
He was an experienced doctor as I was told and he probably was all of that but obviously out of touch with the new developments on the matter.
So, I came to good terms with the skinny lady with the sowing tool... Then I came back home to Buenos Aires, looked out on the net and signed on an argentinian VHC sufferers forum. There they guided me to a public hospital where I found specialist on VHC, VHB and the like. It was like being born again. Those guys and gals really knew about it...
Interpheron and Rivs were out of the question in my case because the adverse collateral effects. So, they told me, let's wait for what's coming. And what's coming has come this year but at a stratospheric cost. The government only supply the new meds if you are F4. I don't want to wait to get there to get them...!
Get a specialist is my humble advise, or if you got the means, go to Australia and see Dr, Freeman, it seems to me that he is a nice person that happens to be a doctor that knows about our troubles. My own doctor is just like that, although overwhelmed by the huge number of patients she has to care for being at a major public hospital. i'll try to see her next week and propose her to start some kind of buyers club like they have done in Australia for those that can afford a couple of thousands of USD to finally get cured.
Kindly, Julio... Finally unpuzzled

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6 years 6 months ago #5532

Hola Julio, Thank-you for your reply. Very interesting.

I am thinking we are venturing way off the Pharmas Market 'Cipla' intended subject matter here. (my fault).
Maybe an Admin. could move the non- Cipla posts if it's do-able not too much trouble?
Possibly a new post re moody Consultants eg in Patients stories?
Then I can reply properly to your post and people looking for Cipla news could find the latest info without having to wade through our chat.


GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
Last Edit: 6 years 6 months ago by LondonGirl.
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6 years 6 months ago #5534

Moved it to it's own thread LG. If you don't like the title, let me know what you want it changing to.

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6 years 6 months ago #5539

Great job, Thanks Alsdad :-)


GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

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6 years 6 months ago #5545

i'll try to see her next week and propose her to start some kind of buyers club like they have done in Australia for those that can afford a couple of thousands of USD to finally get cured.

That would be awesome Julio - Wishing you the very best of luck.


GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

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6 years 6 months ago #5559

Hi LG.
Your GP experience is very like my own. When after 3 months, I eventually got a referral to HepC clinic in mid-October, they did blood and viral load tests. Treatment offered included Interferon which I did not want.
That was it. I saw only a nurse, not a specialist. Told to realistically, expect to wait 3 years to access new DAA's and given an appointment in March 2016. They would not monitor treatment if I bought my own generic medication.
Given the choice between waiting and harbouring this virus for any number of years, and curing yourself for £750.00. I did what more and more people in the UK will do.
I got an appointment with Dr Freeman, obtained my prescription and spoke with Adam at Kingswood Pharmacy who assured me that my meds would be waiting for me when I got to Sydney on 2nd November. They were. A huge big bag of Sof and DAC. I started treatment on 8th Nov and today, after a 2 week wait, I got result of my 4 week liver function and viral load test. 'Undetected'.
I wil, I pray, be cured at least 6 weeks before my proposed NHS check-up date.
It is very do-able. Dr Freeman and Adam are skilled and helpful people.
It is a very straightforward process which can be achieved, if you have the price of a return ticket to Sydney, within about a week if appointments and flights are available.
Choose a right time for yourself. Taking control took away the stress of dealing with GP's and waiting, and getting stressed by waiting and charting decline. Give yourself the best possible start to 2016.
Good luck to all.

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6 years 6 months ago #5573

Hey Folho, thanks for you reply and a huge well done for flying all that way and back to do what you had to do!
That undetected result must have made the whole thing worthwhile - Fantastic and congratulations .
I hope you will indeed be cured 6 weeks before you NHS appointment. You are certainly on the right path :)

I am just getting my own treatment together, little by little - Except with the new meds coming out and Dr Freeman & Monkmed's Redemption Trials I won't need to travel quite that far ;) Quite glad as I don't really feel up to that long journey it must be said. Fingers toes and everything else crossed, it will all go to plan and I will join you and the others in the undetected club next year.

I wish you well and that you have the very best results.


GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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6 years 6 months ago #5575

Well done Folho, good on ya,
LG so glad you are getting closer to treatment. has been a cake walk for me so far. Just so happy to be getting better and giving my body a chance to heal. Day 25 on APIs, Hope you have an easy time of it also.


Tx naive, HepC since 1984
Geno 1a
VL 15 million
F4 , AST 189, ALT 295
Started APIs from Mesochem 11/24/15, will be doing 24 weeks
First blood test will be 1/5/16
Huge thanks to buyers club, Dr. Freeman, Emilio, all who helped and cared
Fingers crossed, no real sides from tx. feeling good
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6 years 6 months ago #5576

Thank-you Jan - Hoping all the different elements will come together soon.
So glad your treatment is going well for you
Wishing you well, and the very best for a brilliant new year :)


GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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6 years 6 months ago #5607

LondonGirl wrote:

.....When people just tell me 'oh it's just like a mild flu for a bit' I have to say, I do wonder what a 'mild' flu is like, you know? ;) Having said that, I haven't had flu for so long, I can't remember what it's like! but I have definitely had other very horrible symptoms since I've had this virus. Joint pain so bad I couldn't walk for example. Really don't want those to get worse.


Google is your friend LG :P
www.livestrong.com/article/88143-mild-flulike-symptoms/

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6 years 6 months ago #5617

No, google is not my friend dear Alsdad - It seems to know what you've had for breakfast and then broadcasts it on its Over-complex system . Google is in the trash bin ;-)


GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
Last Edit: 6 years 6 months ago by LondonGirl.
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6 years 6 months ago #5622

Ok LG, maybe you (and GAJ) prefer the taste of Duck?


duckduckgo.com/

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