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Hi everyone ! 8 years 2 weeks ago #18950
| Hi guys I thought I'll introduce my self as I'm about to start the treatment soon. I'm co-infected hiv (undetectable) and hep c I'll soon start my treatment, I'm really anxious as I'm hoping that the medication will work and that it will cause minimum impact to my work/life. Was wondering if there's anyone out there with a similar experience and who had to manage both HIV and hep c medication at the same time. How did it go ? Nice to meet all of you ! The following user(s) said Thank You: LondonGirl, mgalbrai, Gaj, Hazel, Fara, Matt-Kenney-google, cheese |
Hi everyone ! 8 years 1 week ago #18952
Welcome Fhcn! Best of luck with your treatment start. everyone is different and sounds like you have quite a bit to deal with, but the DAA treatment is pretty smooth these days. Was a breeze for me. As for it working, the odds are extremely good. Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 The following user(s) said Thank You: Fixhepcnow | |
Hi everyone ! 8 years 1 week ago #18958
Hello Fixhepcnow and welcome great that you have found this place nice to meet you hopefully someone will come along soon to assist and help answer your question gt 1a VL 6m F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015 sof/dac 10 December for 12 weeks pre tx alt 85 ast 51 4 wk alt 34 ast 31 UND <35 8 wk alt 29 ast 32 UND <15 12wk alt 25 ast 25 EOT 3.3.16 SVR24 UND KPa5.3 F0 in normal range I am well .forever grateful to fixhepc The following user(s) said Thank You: Ariel, Matt-Kenney-google | |
Hi everyone ! 8 years 1 week ago #18967
Welcome, Fixhepcnow. Best of luck with your treatment. Sorry, have no idea about the combinations,but I hope it all works out for you Genotype 1a Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby | |
Hi everyone ! 8 years 1 week ago #18968
| Welcome fixhepcnow, I'm in the same boat as most who've replied to you, in other words, haven't had same experience as you. Having said that, I couldn't help but notice one of our moderators has visited this topic and he's a pit bull when it comes to researching and finding answers. In any case, I doubt you'll wait long to get some help answering your quesquestions and support to go along with it. Congrats on starting tx to fix hep c MK GT1a; Got it some time in the 70's; Diagnosed @1976 Tx naive METAVIR: A2-F2 SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000 3 weeks after SOT: AST 27 ALT 31 VL 138 Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24 Hep C RNA "NOT DETECTED" AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24! The following user(s) said Thank You: pat1 |
Hi everyone ! 8 years 1 week ago #18974
Welcome. Most people who are on the modern HCV treatments seem to be able to participate in normal activities reasonably well. If you also need Ribavirin then it can be a bit tougher depending on your individual response to that drug. Unless someone else here can provide experience of how these medications interact with the others you need to take, my suggestion would be to discuss it with your doctor or local HIV support group if available. Something that may be of assistance at least from a safety aspect assuming your other medications are listed is the below linked Hep Drug Interactions checker from Liverpool University. www.hep-druginteractions.org/checker G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
Hi everyone ! 8 years 1 week ago #18981
Welcome Fixhepcnow! All I can say is I know of one other dual diagnosed person and she went through tx with Harvoni and continued going to school and everything else she does. I know she doesn't work but when I saw her New Years day, she was doing really well. Is your HIV undetectable because of ARV therapy? G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!! Started tx 6/1/16 with Harvoni. 12 Month Labs= UND The following user(s) said Thank You: pat1, Matt-Kenney-google | |
Hi everyone ! 8 years 1 week ago #18984
| Hi FHCN I know of someone who was in the same situation as you and are now clear of the HepC. but they're not on this forum. Will PM you. All the best for you treatment. LG GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC The following user(s) said Thank You: pat1, Matt-Kenney-google |
Hi everyone ! 8 years 1 week ago #18985
| Yeah I'm taking one of a newer drugs for HIV Triumeq, I doubt many studies have been made about the interactions with hepcivir-l so it seams that I'll be a little bit of a Guinea pig. I'm so glad that all of you are so helpful. I was so upset when I got diagnosed (month ago) spoke with my doctor but because its not yet chronic infection they wouldn't be able to give me any medications as they only prescribe them for people with cirrhosis. I'll definitely keep you all posted! On Tuesday I've got meeting with my doctor and probably than I'll start my medication |
Hi everyone ! 8 years 1 week ago #18986
| My friend was on an Abbvie treatment, he did have some spikes in Alt, but I think put it down to a herb he had ingested. He also had to take Riba, so your treatment should be easier, of course so long as no known interactions and medical advise. ps Check your PMs have messaged you. GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC The following user(s) said Thank You: pat1, Matt-Kenney-google |
Hi everyone ! 8 years 1 week ago #18987
Hi Fixhepcnow, I was able to run the checker using the three drugs that make up Triumeq plus those that make up Hepcivir-L and at least as individual drugs it looks like they should be okay to mix based on current knowledge. Usually if they are not sure it will be highlighted in amber with a warning that they haven't checked that particular mix. See below screenshot. G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
Hi everyone ! 8 years 1 week ago #18988
| That makes me more confident The following user(s) said Thank You: Matt-Kenney-google |
Hi everyone ! 8 years 1 week ago #18994
| íhi Fhcn, I took hepcivir-l for 12 weeks. If it's via MonkMed / FixHepC Redemption it will be fine and many are now UND on that medicine, some SVR 4 and maybe (as I sometimes find it hard to keep up) SVR 12. I may have a photo somewhere, will see if I can dig it out for you. GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
Hi everyone ! 8 years 1 week ago #18995
| That's how my one looks like. It was really tricky, the doctor at gp2u wanted me to call some number has provided me with to pay on the phone but I'm glad I've gone via fixhepc website and monkmed afterwards |
Hi everyone ! 8 years 1 week ago #19010
G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!! Started tx 6/1/16 with Harvoni. 12 Month Labs= UND The following user(s) said Thank You: Fixhepcnow | |
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