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New member Intro 8 years 2 months ago #16134
Thanks Mike, very succinct! Geno 1a, F1, tx naive, had it 35 yrs. Started Cipla HepcvirL on 12/01/16 Starting VL 490,000 At 16 days in <15 4 week results: UND 8 week results: UND 5 weeks EOT alt 25 SVR 15 - Not Detected 6 months EOT - Not Detected The following user(s) said Thank You: mgalbrai | |
New member Intro 8 years 2 months ago #16136
Welcome Mike good luck with tx and yes what Mike the other said From Ariel who is now clear of HepC thanks to FixHepC go for it Mike Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 The following user(s) said Thank You: mgalbrai | |
New member Intro 8 years 2 months ago #16138
Hi Mike, I believe shipping to the alternative UK address would be your best option due to Irish customs laws. Importing 12 weeks medication at a time there is okay with appropriate documents and prescription complies with that requirement. With your co-infection the Redemption trials via an initial consultation with www.gp2u.com.au is a good option as Mike suggests. Participation in Redemption also provides ongoing medical support from the Monkmed team per below post from them: fixhepc.com/forum/new-to-forum/327-new-m...html?start=135#13297 G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: LondonGirl, mgalbrai | |
New member Intro 8 years 2 months ago #16140
We need another Mike. Then we could be like the brothers Darrell on the old Bob Newhart Show. Or, like the three "Joses" in one of my classes: Hose A, Hose B and Hose C... Summer is almost here.... This old teacher is going batty... m This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
New member Intro 8 years 2 months ago #16143
We could just rename everyone to Bruce YMMV The following user(s) said Thank You: mgalbrai, Debs, Gaj, Lynne-Francis-facebook, Hazel, Matt-Kenney-google, Meg | |
New member Intro 8 years 2 months ago #16149
[ Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 | |
New member Intro 8 years 2 months ago #16161
Hello, I'm here finding help for my boy. I managed to secure him generic sof-led just two days ago. He is what you call naive - low viral load and no involvement thankfully. He's on a bit of an emotional roller coaster which I completely understand. But I'd like to help him to get beyond it. Without sounding crass or cliche'd. He's become very indecisive and who wouldn't being faced with this awful disease. Any tips or point me in the right direction I would be grateful. Thank u | |
New member Intro 8 years 2 months ago #16165
I am assuming your boy is <18. If so you may find getting in touch with CJ helpful: fixhepc.com/forum/patient-stories/311-yo...e-dragon-slayer.html is the story of he treating her 15 yo (now 16 yo son) with DAAs. He is SVR12 and it was a more comfortable run than the Interferon/Riba he was offered (actually he would still be on treatment with that, and with a 50:50 chance of cure). YMMV The following user(s) said Thank You: Matt-Kenney-google | |
New member Intro 8 years 2 months ago #16169
Hello Thank you for your reply. He is 26years old and thankfully came home and explained what had happened. He's a very young 26yr old. He started the meds, I'm trying to encourage him to eat much cleaner, so cut out junk and pop etc. But still eats too much fried foods. He has fatty liver which runs in our family but no other stuff going on. I checked his blood work and it looks great right now. I was unsure what the blood work would be for his 4/52? I read Cre and thought I've not seen that before, can I ask please is this creatinine? I've ordered FBC, viral load, liver function but am unsure about the Cre? Thank u! So grateful for this site and thankful to Parag who suggested it. The following user(s) said Thank You: Gaj | |
New member Intro 8 years 2 months ago #16170
Hi D, Most of us had HCV longer than your son has been alive and we're still scrapping around causing mayhem and mischief. If he can digest fried food with no issues, that's a good thing. My sudden-onset, sometimes violent dyspepsia, led to my eventual HCV diagnosis. The thought of fried anything literally turns my stomach. I'm glad he's onboard with this. It's not a complicated or hard treatment. m This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
New member Intro 8 years 2 months ago #16171
Thank you! I have already lost a son to cancer and the thought of watching my son suffer with hep c is just devastating. So this gives me hope. | |
New member Intro 8 years 2 months ago #16172
Hi, It sounds like your son has only had it for a short time which is good news as HCV usually takes decades to cause serious damage. In which case if he can cut back on pop and junk food during treatment it won't hurt but the main thing is that he makes sure he takes his pills regularly. I think most of us have experienced strong emotions initially on treatment whether from the medication or the chance of a cure but usually that settles down with time. As Mike says, it is a straightforward treatment and he has everything in his favour from his age to the length of time he has had the virus so you both can relax and be glad that we now have these medications available to treat him before the complications set in. G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
New member Intro 8 years 1 month ago #16182
Hi Dubaichic, Sorry, only just seen your posts. I'm sorry for you, the loss of a child must be dreadful. Your boy with HCV will be ok. My son is 16 and Dr Freeman helped him. He had the Sof/Led and sailed through, no side affects and it worked brilliantly, so try not to worry. Please tell your son this, and if you would like to chat at all I'd be really happy to. Just PM me and I'll send you my phone no. Where abouts are you? We are in Sydney. Hope it all goes well for you and your son. I know it's frightening, but really, it's an easy treatment, and it works!!!! Love Cindi x J the young dragon slayer is: HepC 1a since birth Male aged 15 VL 2000000 Started Twinvir/ 10-11-15-then Sof/led. NO sides so far ! after one week VL : 37 after 4 wks VL : UND ! EOT 2/2/16 UND.! 4 wks. post tx results....pending.... 7/3/16 VL result : 4 week post tx: SVR ! 12 weeks SVR ! 24 wks SVR yeeaa!! | |
New member Intro 8 years 1 month ago #16192
| for Dr James F - am halfway through sof/dac did additional riba for the first month- then stopped it- would you recommend taking it for thest few months or month of treatment as a security measure against any mutant viral strands ?? or can it be taken alone for a month at EOT ? any feedback appreciated best wishes from Bob in ireland |
New member Intro 8 years 1 month ago #16193
Hi Bob, I presume you stopped the Riba because of the sides. It takes 21 days to drop by half so you will have had nearly 6 weeks worth. It's not something usual, but will certainly have done no harm. Monotherapy with any drug, even Sofosbuvir is a bad idea so don't take it after treatment. Given you've stopped it I would stay stopped secure in the knowledge you hit the virus hard at the start. YMMV The following user(s) said Thank You: Bob in ireland | |
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