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Sonix Tx Log 8 years 3 months ago #7156
Three weeks down, nine to go. I still feel a bit fuzzy in the mornings but generally more clear headed and energetic. I swim 3-4 times a week and have done 600 metres almost non-stop! Previously that would have been a struggle and would need a few rest breaks to swim that far. Still have that speedy feeling but not quite as intense. Sleep is still less than I'd like, average about 6 hours with intermittent waking some nights but not all. I sometimes try for a siesta but usually doesn't work. Occasionally I will have 10-15mg oxazepam or a couple of puffs of pot to ensure sleep if I have a big day ahead. Pot is actually better for this as the oxazepam seems to take longer to wake up and clear the brain the next morning. I'm not noticing much difference in the other symptoms originally posted. Skin is still prickly, seborrheic dermatitis unimproved, although my general mood is better overall. We had another heatwave in Melbourne just before New Year which knocked me around as usual, and I think I slept badly on New Years Eve causing subluxation in my neck but that's from the osteoarthritis/fibromyalgia which is likely not completely HCV related. And my osteopath is on holiday till next week. TL;DR - Some great improvements but still not 100% healthy. Looking positively to the future, 4 week blood tests next week.. M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15. SVR4 at 7Apr16 ALT 22 AST 22 SVR12 at 9Jun16 ALT 23 AST 25 Melbourne, Australia The following user(s) said Thank You: LondonGirl, Ariel | |
Sonix Tx Log 8 years 3 months ago #7165
Hi Sonix, Great to hear you are noting some improvements. Your comments about the heat are interesting, I noticed I handled it a lot better than I had pretreatment. Still bloody hot but I wasn't struggling like I have for the last couple of years. Although I am 4 weeks further into treatment than you. Best wishes for your 4 week results. G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: sonix | |
Sonix Tx Log 8 years 3 months ago #7168
On reflection I did seem to handle the heat better. I was out playing Ingress in 39C one afternoon! Wouldn't have considered that last summer. It was mainly in the car with the aircon running (struggling more like) at max. M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15. SVR4 at 7Apr16 ALT 22 AST 22 SVR12 at 9Jun16 ALT 23 AST 25 Melbourne, Australia | |
Sonix Tx Log 8 years 3 months ago #7292
Great to hear you are doing better sonix, swimming half a k a few times a week is massive progress. Fingers crossed here for your 4 week bloods Interesting point you and GAJ make about hot weather; I've always been fairly intolerant of it (thx to my Scot/Brit forebears maybe lol) but its been a real struggle the last few years. Never considered the possibility it could be hep-related so your experiences are intriguing on that point. GT1a since 1988, diagnosed 1990 F0, tx naive VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9 Started Mesochem sof/dac 12 weeks 01/01/2016 11/02/2016 - 6 weeks UNDETECTED AST 26 ALT 26 | |
Sonix Tx Log 8 years 3 months ago #7306
Ah jings, nae anither Scot!? Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog. Started Sof+Dac from fixHepC 10-Nov-2015. NO sides. Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000. Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3). | |
Sonix Tx Log 8 years 3 months ago #7308
Lol Got Robbie Burns & Scottish marchings bands along with my weetbix, growing up GT1a since 1988, diagnosed 1990 F0, tx naive VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9 Started Mesochem sof/dac 12 weeks 01/01/2016 11/02/2016 - 6 weeks UNDETECTED AST 26 ALT 26 | |
Sonix Tx Log 8 years 3 months ago #7311
'nother here too, Rossdhu Castle. So it was our pipes that Mike heard on his wee island. G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
Sonix Tx Log 8 years 3 months ago #7312
Try this: Substitute soap for Ego bath oil to wash your face. Mix about a capful with hot water in shower. It will go white. Use that to wash and rinse well. Use Ego Dermaid 0.5% cream in the morning - the purple gel not the pink Cream. Use canestan cream at night - a yeast called Pityrosporum ovale exacerbates it and this will kill it off over a few weeks www.ncbi.nlm.nih.gov/m/pubmed/8255067/ YMMV The following user(s) said Thank You: LondonGirl, sonix | |
Sonix Tx Log 8 years 3 months ago #7316
| HeyZhuk
Good idea, must remember to keep ohone charged too Hope skin improves Sonix, that can be quite miserable GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
Sonix Tx Log 8 years 2 months ago #10158
A quick update. I got 4 week blood results - VL DET <15 down from 223,000 ALT 22 (<45) down from 54 AST 22 (<35) down from 42 Platelets 123 (150-450) down from 157 All other tests in range. So looking pretty good and promising. I had another qualitative VL test this week at 6.5 weeks so hopefully und. Side effects have abated so I no longer feel speedy but generally a bit less fatigued. Sleeping better too. I have had attacks of the lazies and had a few siestas. Some of the symptoms have abated too, less itchy, a bit more clear-headed and less muscle pain. Not profound changes but noticeable. It's good reading of everyone's successes here and hopefully I'm close too. M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15. SVR4 at 7Apr16 ALT 22 AST 22 SVR12 at 9Jun16 ALT 23 AST 25 Melbourne, Australia | |
Sonix Tx Log 8 years 2 months ago #11574
6.5 week blood results - undetected! I'm still feeling a fatigued (or lazy?) but find if I have to do something, I just need to start doing it and the energy comes somehow. I work part time at one of Melbourne's premier music venues, setting up and operating sound and lighting. I had a little break for 6 weeks and did my first show back with Albert Hammond from The Strokes a couple days ago. It was a warm humid day and I had excessive sweating most of the time, but drank lots of water and a little soft drink and managed to keep up despite being crazy hectic most of the night with 3 bands on 2 stages all needing me to help. The sides are manageable although I attribute some of the sweating to Tx. I was speaking to a friend who is doing 24 weeks sof/dac and he mentioned feeling "toxic". This is something I haven't seen mentioned here before but I know what he means as I feel the same. Just over 2 weeks to go and hopeful the remaining sides will abate after EOT. To infinity and beyond! M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15. SVR4 at 7Apr16 ALT 22 AST 22 SVR12 at 9Jun16 ALT 23 AST 25 Melbourne, Australia | |
Sonix Tx Log 8 years 2 months ago #11575
Right on. I hope my next one is 'UND". I'm a sound engineer, too. I worked in a studio as a recording engineer recording and mixing bands' albums. $10/hr. It's a 'glamour job'. Lol. I ended up doing my own album, then got a real job. This email address is being protected from spambots. You need JavaScript enabled to view it. Genotype 3 VL 4,100,000 ALT 101 AST 71 Treatment Naive Started Sof/Dac Jan 12, 2016 VL= <15 4 weeks in. AST/ALT normal. VL=UNDETECTED 8 weeks in. SVR4= Virus back. 3,300,000 Started generic Epclusa Sep. 23, 2017 4 weeks in <15 *Detected. 12 weeks in <15 *Not Detected. 16 weeks in <15 *Not Detected. Finished 24 weeks treatment 3-17-18 SVR5 <15 Not Detected. SVR 20 <15 Not Detected. SVR 44 <15 Not Detected. Thank you Jesus. Thank you Dr. James | |
Sonix Tx Log 7 years 10 months ago #18242
Got the magic phone call from Dr James today - SVR12! Quietly celebrating with a little cab merlot and watching Grateful Dead videos. This one gives me a warm fuzzy glow inside every time I hear it - As I was walkin' 'round Grosvenor Square Not a chill to the winter but a nip to the air, From the other direction, she was calling my eye, It could be an illusion, but I might as well try, might as well try. She had rings on her fingers and bells on her shoes. And I knew without askin' she was into the blues. She wore scarlet begonias tucked into her curls, I knew right away she was not like other girls, other girls. In the heat of the evening when the dealing got rough, She was too pat to open and too cool to bluff. As I picked up my matches and was closing the door, I had one of those flashes I'd been there before, been there before. Well, I ain't often right but I've never been wrong. Seldom turns out the way it does in a song. Once in a while you get shown the light In the strangest of places if you look at it right. Well there ain't nothing wrong with the way she moves, Scarlet begonias or a touch of the blues. And there's nothing wrong with the look that's in her eyes, I had to learn the hard way to let her pass by, let her pass by The wind in the willow's playin' "Tea for Two"; The sky was yellow and the sun was blue, Strangers stoppin' strangers just to shake their hand, Everybody's playin' in the heart of gold band, heart of gold band. Muchos gracias to Dr James, Hieu ( Cảm ơn nhiều M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15. SVR4 at 7Apr16 ALT 22 AST 22 SVR12 at 9Jun16 ALT 23 AST 25 Melbourne, Australia | |
Sonix Tx Log 7 years 10 months ago #18251
Fantastic news, Sonix! So happy for you!!! Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016 2 Week Results 20 June, 2016 AST 19, ALT 32 4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35 6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15 8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND 12 Week Results 31 August, 2016 LFTs Normal, VL = UND EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4" SVR12, 21 Nov 2016. CURED!!! The following user(s) said Thank You: sonix | |
Sonix Tx Log 7 years 10 months ago #18253
G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
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