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Ariel takes the Plunge 7 years 7 months ago #21367
Damn! Dental pain is the worst, and on a weekend too. Seems like a universal law, no matter what part of the world we're in. Hang in there mermaid. Keeping you in my thoughts! Glad you got that colonoscopy, and are urging others to do the same. Had mine earlier this year, and was thinking I should insist they buy me dinner before the next one, but glad I did it all the same. Thoughts and prayers, Ariel! Fitz Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016 2 Week Results 20 June, 2016 AST 19, ALT 32 4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35 6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15 8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND 12 Week Results 31 August, 2016 LFTs Normal, VL = UND EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4" SVR12, 21 Nov 2016. CURED!!! | |
Ariel takes the Plunge 7 years 7 months ago #21370
Oh Ariel you poor Mermaid. Toothache is the absolute pits. I hope those antibiotics move their butts and do their stuff so that the dentist can make the pain go away. Thanks for the timely reminder about the colonoscopy. Hep C is notorious for taking all of the attention. Wishing you a dentist with small hands and a speedy recovery. G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 | |
Ariel takes the Plunge 7 years 7 months ago #21372
Thanks for the love Beaches Fitz and Coral Yup it's certainly a glum start to my SVR24 week roll with the punches eh! Thinking about it we have great names for an underwater Jazz quartet between us: Fitz the Bottlenose with the Reefdwellers, Coral, Beaches and Ariel Sorry Fitz for the nose reference at least I haven't lost my sense of humour with this pain Thanks heaps for the hugs again most appreciated and kind this is really ordinary for sure bring on Monday mr Dentist! A Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
Ariel takes the Plunge 7 years 7 months ago #21387
Monday = D for dentist day thinking of you and hoping that you are now pain free follow up scans very important gt 1a VL 6m F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015 sof/dac 10 December for 12 weeks pre tx alt 85 ast 51 4 wk alt 34 ast 31 UND <35 8 wk alt 29 ast 32 UND <15 12wk alt 25 ast 25 EOT 3.3.16 SVR24 UND KPa5.3 F0 in normal range I am well .forever grateful to fixhepc | |
Ariel takes the Plunge 7 years 7 months ago #21388
Dear Pat1 Thankyou and to Fitz Coral and Beaches too I'm not cracking jokes today sadly. I lost a massive molar it did have a big abscess The nurse said it was a whopper abscess The other tooth has a smaller abscess It was drilled and some dentist muck put in it. These two were holding a bridge sadly. I'm now in buckets of pain but it should subside and I have a sheet of instructions to follow. Not really up for SVR24 this week at all. Overload. But I can always go on Monday next. Anyway over the past month I have had all scans (except the checkup on my right axial node and boobies) and a colonoscopy and a funeral interstate and now this so yeah maybe I should buy my first ever lottery ticket Cheers to all, and I hope you are okay, yes HCV can leave strange other issues like teeth, so can the old tx imo. Coral I think of you going again daily and I wanted to say how stoked I am to see your updated signature and you are on meds I wish you success and am backing you to SVR XX Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 The following user(s) said Thank You: pat1, mgalbrai, Gaj, Matt-Kenney-google, rohcvfighter, Meg, fitz | |
Ariel takes the Plunge 7 years 7 months ago #21393
| Ouch - Bumner! Sending big love across the seas, hope you're all fixed up soon . GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
Ariel takes the Plunge 7 years 7 months ago #21396
Me too Gills!! This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
Ariel takes the Plunge 7 years 7 months ago #21400
Hi Ariel, Thanks so much for your thoughts. I am into the second week of my new meds. I'll post separately once things have settled in. I'm on the Viekira Pak, Ribaviran, and Solvadi. Quite the cocktail with a few more side effects this time round. Thank goodness that rogue tooth has gone. Take it easy. Xx G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 The following user(s) said Thank You: pat1, Ariel, Gaj, Lynne-Francis-facebook, beaches, isaing4, Matt-Kenney-google, Meg, fitz | |
Ariel takes the Plunge 7 years 7 months ago #21402
Good luck, Coral, hope you make it. Those nasty mutants, it's time they went. Genotype 1a Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby | |
Ariel takes the Plunge 7 years 7 months ago #21410
Thanks Coral I think another tooth is going today!! It's not over til the fat lady sings as they say! SVR24 is certainly on hold while my chompers are sorted. Ribavirin I have had myself for 43 weeks I hope you are okay on it please let us know how you feel and I can recommend Dermaveen wash for the skin if you get the rash. Hoping you don't but I guess you have been educated about the riba. I'm glad you are on a whopper of a cocktail because it's all about cure and I will look forward to your news as you fight on to the common goal. Wishing you the best Coral xxx Splashes of soothing waters from Ariel Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
Ariel takes the Plunge 7 years 7 months ago #21502
| Aw A, I feel for what you're going through ... Hope you get through it all ok. Nice to see you still cheering on Coral. BTW, Coral, I love the fighter in you too. As Ariel said, keep us up to date as you can Love to you both, Matt GT1a; Got it some time in the 70's; Diagnosed @1976 Tx naive METAVIR: A2-F2 SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000 3 weeks after SOT: AST 27 ALT 31 VL 138 Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24 Hep C RNA "NOT DETECTED" AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24! |
Ariel takes the Plunge 7 years 7 months ago #21504
Thanks Ariel, Beaches and Matt for your thoughts. I am with my Dad at the moment during his last days as he has nearly lost his battle with prostate cancer. I'm a bit of a mixture of intense sadness and side effects at the moment. I'm staying with family and their job is to remind me to take my medication! Will post about my treatment when I surface from all of this but I enjoy reading everyone's posts in these quiet waiting times. G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 The following user(s) said Thank You: LondonGirl, pat1, mgalbrai, Ariel, Gaj, Lynne-Francis-facebook, beaches, isaing4, Matt-Kenney-google | |
Ariel takes the Plunge 7 years 7 months ago #21508
| Oh Coral I am so sorry to hear of your Dad's struggle...wishing you and your family strength and compassion during this tough time. Lives in Bendigo, Victoria No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal Insomnia the only side effect Undetected at 4 weeks SVR4 - undetected - all bloods good and GP very happy SVR12 bloods to be done at end of April 2016 SVR12 - undetected!!! |
Ariel takes the Plunge 7 years 7 months ago #21509
Thinking of you Coral May peace be with you and yours at the time of passing to the ongoing for your father. Sending you love xxx A Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
Ariel takes the Plunge 7 years 7 months ago #21511
Ah Coral I feel for you! I lost my Dad to cancer too. Treasure these last days even though they are not fun, and yes, remember to keep taking the meds. I wish you long life Genotype 1a Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby | |
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