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Greedfighter's Twinvir to USA Journal 8 years 2 months ago #10337
| Hi Mike, I posted my story on your Delphi thread, hopefully I helped someone act before it's too late in USA! I really fear TPP is going to block access for people in USA. I'm sure everyone is getting sick of my posts about TPP, but I only mean well Gt 1a, F0, VL 6.5 million, AST 59, ALT 62 Started Twinvir 1/15/16 6 wk. labs VL UND, AST 27, ALT 20 EOT labs VL UND, AST 23, ALT 19 SVR 16, VL UND, AST 28, ALT 17 SVR 24 , VL UND, 10/8/16 SVR 125, VL UND, 9/22/18 SVR 230, VL UND, 10/3/20 |
Greedfighter's Twinvir to USA Journal 8 years 2 months ago #10620
| Day 26, and I feel more alert and clear headed than ever. I had no "crash" or relapse that others have described. In fact, I have not had a headache in at least a week. I'm going to wait until 5 or 6 weeks for blood work, only because I am poor and can't afford multiple tests. But I feel like I am virus free or close. I have not felt so alive for 30 years. Let me just add that I was impressed with the product packaging; Incepta not only sealed the bottle with foil, but on top of the foil a plastic wrap. And inside the bottle, cotton to buffer the pills so they would not be rattled around in shipping. Gt 1a, F0, VL 6.5 million, AST 59, ALT 62 Started Twinvir 1/15/16 6 wk. labs VL UND, AST 27, ALT 20 EOT labs VL UND, AST 23, ALT 19 SVR 16, VL UND, AST 28, ALT 17 SVR 24 , VL UND, 10/8/16 SVR 125, VL UND, 9/22/18 SVR 230, VL UND, 10/3/20 |
Greedfighter's Twinvir to USA Journal 8 years 2 months ago #10792
Good News Greedfighter, I'm 5 1/2 weeks in and just got home from having my 1st lot of bloods done. I had to travel to see my old GP, who had moved away, to get him to monitor me because the new GP wouldn't. I'm feeling pretty good though, some days not so, but I have noticed certain positive changes and feel happy with that. I'm not overly concerned about getting results because I feel like I'm improving and that's good enough for me All the best with the rest QLD Australia ☀️ G3a HCV 35 yrs Tx naive Started Sof/Dac 13/01/16 Dec '15 AST 70 ALT 89 GGT 124 Fibroscore 8.5 F1-F2 13 Feb'16 VL UND AST 24 ALT 26 GGT 50H | |
Greedfighter's Twinvir to USA Journal 8 years 2 months ago #10874
| So I hope everyone is up to speed about options for treatment being limited from India. Anyone in USA interested in treatment should email This email address is being protected from spambots. You need JavaScript enabled to view it. about Twinvir or other treatment options that are available. You better do it now, or deal with these fucking wolves Gilead and insurance companies. They will tell you what they told me, you are not on the transplant waiting list; denied. Do you want to wait until your liver is a piece of crap that needs to be surgically removed?? Someone told me today, Twinvir is $1000 for 12 weeks; there has been a price reduction. I paid $1400. I am jealous that you can get treated for so much less than me. What are you waiting for? Start emailing This email address is being protected from spambots. You need JavaScript enabled to view it.. And just for the record, this is no sales pitch, it's your life. I'm not gaining anything here. Or wait for the posts about how there are no options available left for generic treatment. Read all the posts from people saying "Thank god we acted when we did and got cured" Gt 1a, F0, VL 6.5 million, AST 59, ALT 62 Started Twinvir 1/15/16 6 wk. labs VL UND, AST 27, ALT 20 EOT labs VL UND, AST 23, ALT 19 SVR 16, VL UND, AST 28, ALT 17 SVR 24 , VL UND, 10/8/16 SVR 125, VL UND, 9/22/18 SVR 230, VL UND, 10/3/20 |
Greedfighter's Twinvir to USA Journal 8 years 2 months ago #10882
You sound fantastic GF.. I am feeling much better now than originally, I am sof led not sof dac, but had a migraine blah blah. With bugger all funds left the last thing anyone needs is to have to pay for support meds like pain killers and creams for rashes and stuff like that it really adds up, also if you are feeling great then getting around is easier and you can work maybe... All sounding awesome keep us up to date, I am following your ride, Hugs, Ariel Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
Greedfighter's Twinvir to USA Journal 8 years 2 months ago #11943
| I went and had my 6 week blood work today, PCR viral load and liver function. I will post my results once received. Gt 1a, F0, VL 6.5 million, AST 59, ALT 62 Started Twinvir 1/15/16 6 wk. labs VL UND, AST 27, ALT 20 EOT labs VL UND, AST 23, ALT 19 SVR 16, VL UND, AST 28, ALT 17 SVR 24 , VL UND, 10/8/16 SVR 125, VL UND, 9/22/18 SVR 230, VL UND, 10/3/20 |
Greedfighter's Twinvir to USA Journal 8 years 2 months ago #11974
Good luck with your 6 wks blood tests! I was also on Twinvir but EOT. Waiting UND's game has begun! HCV since I don't know. Diagnosed in 2010. GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive, started 12 wks Twinvir on 06.12.2015. Feeling great and grateful virus not detected 06.02.2016 & SVR24 This email address is being protected from spambots. You need JavaScript enabled to view it. The following user(s) said Thank You: Greedfighter | |
Greedfighter's Twinvir to USA Journal 8 years 1 month ago #12841
| Got my 6 week blood work results....VL UND HCV RNA IU/mL <15 Not Detected <15 IU/mL HCV RNA,QN,PCR <1.18 Not Detected <1.18 log IU/mL The first test, RNA IU/mL is the Qualitative result and shows no active infection. The second test is quantitative and confirms it! Gt 1a, F0, VL 6.5 million, AST 59, ALT 62 Started Twinvir 1/15/16 6 wk. labs VL UND, AST 27, ALT 20 EOT labs VL UND, AST 23, ALT 19 SVR 16, VL UND, AST 28, ALT 17 SVR 24 , VL UND, 10/8/16 SVR 125, VL UND, 9/22/18 SVR 230, VL UND, 10/3/20 |
Greedfighter's Twinvir to USA Journal 8 years 1 month ago #12842
As we say hereabouts, Well, ain't that something!!! Good for you!! M This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 The following user(s) said Thank You: Greedfighter | |
Greedfighter's Twinvir to USA Journal 8 years 1 month ago #12843
Way to go GF Happy for you it's a good feeling Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 The following user(s) said Thank You: Greedfighter | |
Greedfighter's Twinvir to USA Journal 8 years 1 month ago #12844
Looking good there GF! G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: Greedfighter | |
Greedfighter's Twinvir to USA Journal 8 years 1 month ago #12846
Right on!!! This email address is being protected from spambots. You need JavaScript enabled to view it. Genotype 3 VL 4,100,000 ALT 101 AST 71 Treatment Naive Started Sof/Dac Jan 12, 2016 VL= <15 4 weeks in. AST/ALT normal. VL=UNDETECTED 8 weeks in. SVR4= Virus back. 3,300,000 Started generic Epclusa Sep. 23, 2017 4 weeks in <15 *Detected. 12 weeks in <15 *Not Detected. 16 weeks in <15 *Not Detected. Finished 24 weeks treatment 3-17-18 SVR5 <15 Not Detected. SVR 20 <15 Not Detected. SVR 44 <15 Not Detected. Thank you Jesus. Thank you Dr. James The following user(s) said Thank You: Greedfighter | |
Greedfighter's Twinvir to USA Journal 8 years 1 month ago #12858
YESSSS, I never get tired hearing this! Congrats GT2b diagnosed 10/2015 since: unknown 11/20/15 VL= 214,070 12/4/15 ALT=18 AST= 24 1/16/16 started sof/dac 2/13/16 @4wks VL=UND ALT=13 AST=22 3/12/16 @8wks VL=UND ALT=10 AST=18 4/9/16 EOT VL=UND ALT=11 AST=19 9/23/16 SVR24 ALT=11 AST=22 The following user(s) said Thank You: Greedfighter | |
Greedfighter's Twinvir to USA Journal 8 years 1 month ago #12862
Congrats GF on your results! That's very awesome.... HCV since 35-40yrs., GT 1a , Dx 2004; VL 4-5 mil, F2-3 Tx sof/led started 3/4/16 4wks VL <15 9 weeks VL UND, ; Alt-15,Ast-13 16 weeks VL UND Alt-20, Ast-22; EOT 24 wks UND SVR 4 UND SVR 12 UND, Alt.15, Ast. 17 SVR 24 UND The following user(s) said Thank You: Greedfighter | |
Greedfighter's Twinvir to USA Journal 8 years 1 month ago #12863
Woohoo. I wish i was sufficiently tech savvy to put in the dancing banana but you know I am feeling it. Added # woohoo! (without the space) HCV 35 yrs G1a F3 Tx naive started Lesovir-C 15/12/2015 pre tx: VL 5,250,000 ALT 374 AST 208 FIBROSCORE 10.4 4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL 8 weeks tx ALT 29/ AST 34. VL UND 4 weeks after tx UND. SVR4. ALT 24/AST 18 The following user(s) said Thank You: Greedfighter | |
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