Welcome, Guest
Username: Password: Remember me

TOPIC:

Beaches Treatment - Harvoni (Aus PBS) 6 years 6 months ago #16035

  • Meg
  • Meg's Avatar
  • Offline
  • Premium Member
  • Premium Member
  • Posts: 100
  • Karma: 12
  • Thank you received: 327
Hi Beaches
Thank you for your reply. So happy for you. #flower
I am from Brazil by the way where my insurance does not cover the tx and even if I appeal - nothing guarantees me that the insurance company won´t appeal back and I will end up with a huge debt in the future. The government health program here has imported Harvoni from Gelead but only gives it to the very sick folks (F3 and F4) and even then it is not enough to help the majority of them. So there are a lot people in despair and waiting to be approved.
Given the situation I googled Generic Harvoni and found both this group and Gregg Jefferys blog. I have been communicating with him to get the meds from India. Just need to figure out some details on how to wire the money then wait for the meds. My doctor and everyone I spoke to about Generic Harvoni are very suspicious though. Unfortunately. it seems I will have to do the tx by myself. He will though write the blood test prescriptions as follow ups so I will be able to check the progress.
Blood transfusion in 1992 - Diagnosed in 2007
Tx naive -G1b - F1
VL 2.270.000
ALT 40
Start tx June 4th/2016 with DAAs - Sof/Led from India
Bloods on two weeks of tx (June 18th)
AST 17 - ALT 10 - GGT 19
Virus UND
Bloods on six weeks of tx (July 16th)
AST 17 - ALT 8 - GGT 12
Virus UND
EOT on August 8th (did 9 weeks and 3 days)

SVR 4 Virus UND (September 7th)
AST 13 - ALT 5

SVR 14 Virus UND (November 12th)

Please Log in or Create an account to join the conversation.

Last edit: by Meg.

Beaches Treatment - Harvoni (Aus PBS) 6 years 6 months ago #16041

  • beaches
  • beaches's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • The life you save will be your own. START TREATMENT
  • Posts: 760
  • Karma: 25
  • Thank you received: 2254
Hi Meg
Thank you for your good wishes.
I am so sorry to hear that you are having trouble accessing Tx.
It also makes me angry. Doctors do not have the right to be ignorant imo - that's just lazy.
Dr James Freeman published some very interesting information about the effectiveness of generics, and you can find it on the forum. I'm sure it is still on the post about EASL translators. Just use the search string EASL and you will find the attachment. Even if your doctors are not interested in finding out the truth it will surely help you.
The Australian government is funding Tx for all Hep C patients but I believe it's still not totally easy to get it, as doctors have to do some training to be allowed to prescribe and I suspect that many just can't be bothered.
I hope you persist in your attempts to access generic treatment (the vast majority of people on this forum have used them and and are getting their SVR12 clearances). Just do what you have to do. I cannot believe how much my life is changing and I still have 4 weeks of Tx to go. :+1: #love #flower
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: Ariel, Matt-Kenney-google, Meg

Please Log in or Create an account to join the conversation.

Beaches Treatment - Harvoni (Aus PBS) 6 years 6 months ago #16055

  • Hazel
  • Hazel's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 414
  • Karma: 39
  • Thank you received: 1699
Hi Meg, Hey Beaches,
Show your doctor this article: EASL endorsement on efficacy of generics, first results presented April 2016:

ilc-congress.eu/low-cost-generic-direct-...randed-formulations/

This is the head of the International Liver Congress, where there were 10, 000 delegates, saying the drugs do work and are safe if you source them safely. See Greg Jefferys was a co-author- those results came from drugs he helped people source, or here, at fixhepc.
good luck!
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
The following user(s) said Thank You: Ariel, Gaj, beaches, Matt-Kenney-google, Meg

Please Log in or Create an account to join the conversation.

Last edit: by DrJames.

Beaches Treatment - Harvoni (Aus PBS) 6 years 6 months ago #16058

  • beaches
  • beaches's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • The life you save will be your own. START TREATMENT
  • Posts: 760
  • Karma: 25
  • Thank you received: 2254
Laws around patents need to be changed
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: mgalbrai, Matt-Kenney-google, Meg

Please Log in or Create an account to join the conversation.

Beaches Treatment - Harvoni (Aus PBS) 6 years 5 months ago #16822

  • beaches
  • beaches's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • The life you save will be your own. START TREATMENT
  • Posts: 760
  • Karma: 25
  • Thank you received: 2254
Hi everyone

Just under 2 weeks of Tx to go! :woohoo:

I wasn't going to post because there is nothing dramatic to reveal apart from dramatic improvements.

However given recent developments around our prostitute of an Australian government I thought I'd better take the opportunity.

My last day of Tx will be Friday June 10, and on that day I'll get bloods done. 2 weeks later I'll go to the doc and get the results.
I am very confident (genotype 1a,F0 scan pre Tx, LFTs very good and VL <15 at week 4) that I'll be clear and if not I'll go another round or whatever.

Sx have been none to minimal.
Many improvements, including but not limited to
Much more energy
Wonderful sleep quality. The one night I couldn't get to sleep was because I didn't realise for quite a while that I was that little bit too cold and needed an extra blanket.
Improved skin tone - yellowish tinge has gone from skin and eyes.
Noticeably sharper mental focus

My Tx is the branded Harvoni product but if I hadn't been able to access it, I would have gone with the generics without hesitation. I had become aware of it around September last year, but the chips just fell my way regarding the timing of the branded product being listed on the PBS.

So if anyone is reading this and wondering whether they should access the new DAAs, I say to you do it without a shadow of a doubt, it will change your life.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: coral, pat1, mgalbrai, Ariel, Gaj, Lynne-Francis-facebook, isaing4, Hazel, Matt-Kenney-google, Meg, GT2

Please Log in or Create an account to join the conversation.

Beaches Treatment - Harvoni (Aus PBS) 6 years 5 months ago #16826

  • GT2
  • GT2's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • Posts: 295
  • Karma: 9
  • Thank you received: 970
Well said Beaches.

I think everyone "better take the opportunity", and grab it with both hands, before it is too late ...

Having a confident & positive attitude, along with regular exercise, which you have and do, goes a long way in helping the DAAs defeat this insidious HCV ... so, from what you've written, I have little doubt that you've got this thing beaten already ... the official confirmation is a mere formality.

Then, you'll definitely have the green light to go out and make up for your deprivation in your youth ... ;)
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
The following user(s) said Thank You: pat1, mgalbrai, Ariel, beaches, isaing4, Matt-Kenney-google, Meg

Please Log in or Create an account to join the conversation.

Beaches Treatment - Harvoni (Aus PBS) 6 years 5 months ago #16829

  • beaches
  • beaches's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • The life you save will be your own. START TREATMENT
  • Posts: 760
  • Karma: 25
  • Thank you received: 2254

GT2 wrote: Then, you'll definitely have the green light to go out and make up for your deprivation in your youth ... ;)


GT2 that's been happening regardless. I've sacrificed many dollars and quite a bit of my hearing at the altar of live music.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: Matt-Kenney-google, Meg, GT2

Please Log in or Create an account to join the conversation.

Beaches Treatment - Harvoni (Aus PBS) 6 years 5 months ago #16833

Lookin' good beaches.
Thanks for updating your progress and experience with sdfx. As has been said many times in this forum, we are all different and so can expect different sdfx during and after tx. A wise proverb says, "Plans fail when there is no consultation, But there is accomplishment through many advisors." Thank you, for adding your voice to OUR consultation sis.
Hope to be seeing it still in the months to come ... let that "generic rebel spirit" SOAR! ;) :+1: #love #flower
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
The following user(s) said Thank You: pat1, mgalbrai, beaches, isaing4, Meg, GT2

Please Log in or Create an account to join the conversation.

Beaches Treatment - Harvoni (Aus PBS) 6 years 5 months ago #16950

  • beaches
  • beaches's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • The life you save will be your own. START TREATMENT
  • Posts: 760
  • Karma: 25
  • Thank you received: 2254
Not an update but some nice shots for your enjoyment.
First day of winter, sunrise at Manly Beach. Air is cool, water is warm (no wettie yet)



Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
Attachments:
The following user(s) said Thank You: pat1, mgalbrai, Ariel, Gaj, Lynne-Francis-facebook, Hieupham, MtGoat, Matt-Kenney-google, Meg, GT2, fitz

Please Log in or Create an account to join the conversation.

Beaches Treatment - Harvoni (Aus PBS) 6 years 5 months ago #16969

  • GT2
  • GT2's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • Posts: 295
  • Karma: 9
  • Thank you received: 970
Nice pics

You'd need a wettie here this morning ... 4.9C at 7.25am ... beautiful cloudless blue sky though ... a fresh but beautiful start to winter in the West.
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Beaches Treatment - Harvoni (Aus PBS) 6 years 5 months ago #16972

  • Ariel
  • Ariel's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
Great updates Beaches
I'm sure you will cross the finish line with a great outcome girl x
Sounds like you are at the ripping energy I recall from the last fortnight of tx it was phwoar!
Sydney is GRRReat
Cold snap in the air but not like down home!
Loving your Manly Pics
Splashes from Ariel x
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: pat1, beaches

Please Log in or Create an account to join the conversation.

Beaches Treatment - Harvoni (Aus PBS) 6 years 5 months ago #16974

WOWZERZ! beaches ... That's beautiful... Wish we could be there with you to witness that sky/beach canvas!
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
The following user(s) said Thank You: beaches

Please Log in or Create an account to join the conversation.

Beaches Treatment - Harvoni (Aus PBS) 6 years 5 months ago #17068

  • beaches
  • beaches's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • The life you save will be your own. START TREATMENT
  • Posts: 760
  • Karma: 25
  • Thank you received: 2254
Just as an FYI to anyone living in Sydney, RPA offers the new DAAs

(how's that for a trio of TLAs?) to ALL Hep C patients
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: pat1, mgalbrai, Ariel, Gaj, Matt-Kenney-google, Meg, GT2

Please Log in or Create an account to join the conversation.

Beaches Treatment - Harvoni (Aus PBS) 6 years 5 months ago #17073

  • Ariel
  • Ariel's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
That's fantastic Beaches
Anyone who needs in any State could even fly in on a cheap flight if no luck at home. Ty for the update xxx
Splashing Manly salty water at ya
Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: pat1

Please Log in or Create an account to join the conversation.

Beaches Treatment - Harvoni (Aus PBS) 6 years 5 months ago #17074

  • beaches
  • beaches's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • The life you save will be your own. START TREATMENT
  • Posts: 760
  • Karma: 25
  • Thank you received: 2254
Definitely worth getting in touch with them....
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Time to create page: 0.844 seconds

Copyright © 2015-2020 FixHepC

Back to Top