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TOPIC: Would you like to be part of a social movement?

Would you like to be part of a social movement? 6 years 7 months ago #670

Sirchinenge Offline Moderator What a difference a year makes:) Posts: 269 Thank you received: 366 Karma: 3	Yes, you can announce your forum here if you'd like same go's with talking to your FB group.
	Sob/Dac from Oct 29 2015 Geno 1b Fiberscan 9.9 Pre treatment Fiberscan 7.4 week 10 VL 1.3 million pre treatment Week 2.5 VL 96 Week 5.5 VL 17 Week 10 VL UD SVR 3 UD SVR 16 UD Cured: All liver functions in normal ranges. The administrator has disabled public write access. The following user(s) said Thank You: Ann Bee, Alsdad

Would you like to be part of a social movement? 6 years 7 months ago #671

Alsdad
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Ok. I've set a forum up more as a backup to this place than anything else. Should something happen to the fixhepc forum (and make no mistake: Big Pharma will be trying to make something happen to it) we will have somewhere to re-group. The people managing this resource will be welcome to the same management access to my new forum. In fact, being the tech neanderthal that I am, I'd appreciate the help/guidance.

At the moment it's here:

killthedragon.freeforums.net/

But if it starts getting traffic, I'm going to move it behind a premium secure server, where it will be found under this domain name:

www.killthedragon.co.uk

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Would you like to be part of a social movement? 6 years 7 months ago #672

Nadia Offline Premium Member 3a F0 Sof/Dac from 01.10.2015 Posts: 106 Thank you received: 86 Karma: 1	I like the name, Alsdad.
	Virus not detected from 14.10.2015 The administrator has disabled public write access. The following user(s) said Thank You: Ann Bee

Would you like to be part of a social movement? 6 years 7 months ago #677

Chester Offline Elite Member Posts: 209 Thank you received: 259 Karma: 4	Nice one Alsdad. I've already seen you doc. So you know Chester's hep c air BnB is up and running for anyone who needs it.
	Huon Valley, Tasmania Hep C+ since 1980s Genotype 1b F3/4 VL 480,000 Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015 UND at 4 weeks Finished treatment 19 November 2015 12 February 2016 UND SVR12 The administrator has disabled public write access. The following user(s) said Thank You: Ann Bee, berrinice, LondonGirl, Nadia

Would you like to be part of a social movement? 6 years 7 months ago #682

Jolie Offline Premium Member Posts: 131 Thank you received: 111 Karma: 2	hi, I had a little pick into your forum, well done ! I really hope none will shut this one down, I don't think we're are such a threat to big pharma, or are we???
	Geno 3, Fibro 8.7 pKA, tx experinced in 2005 - Peg/Riba, relapsed. Started tx 1/12/2015 with Indian Sofo & Chinese Dac. 5 weeks result all normal, ALT 18 - down from ALT 73 at the start of tx. 5 weeks HCV PCR RNA - UND. - down from 2 ML 9 weeks HCV PCR RNA - UND. The administrator has disabled public write access. The following user(s) said Thank You: Ann Bee

Would you like to be part of a social movement? 6 years 7 months ago #683

LondonGirl
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Alsdad, sent you a chat message, please read.

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

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Would you like to be part of a social movement? 6 years 7 months ago #687

Vicki
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Geno type 3b. On sof/dac for 12 weeks.
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It's impossible for me not become politicised, as I continue to learn more about the bully Phama's the Governments and the mess we're in.
I'm currently reading as much as I can about civilians vs the Pharma companies. It's Scary. I read John La Carre' 'The Constant Gardener 10 years ago and was horrified by the terrorism that these Companies wage upon the vulnerable.

*What about an online campaign hosted by "The Sum Of Us" or "Change" does anyone have any experience with any of this??
I can investigate what is necessary to get it kickstarted.

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Would you like to be part of a social movement? 6 years 7 months ago #691

2b Offline Platinum Member Posts: 350 Thank you received: 495 Karma: 1	I've got insurance in US but and I'm high end of F2, almost F3 and 65 and bastards want me to get sicker before they say MAYBE they will let me have medicine, Insurance company is definitely betting on the statistics that people like me will die before they have to pay for the meds.
	GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!" Last Edit: 6 years 7 months ago by 2b. Reason: typo The administrator has disabled public write access.

Would you like to be part of a social movement? 6 years 7 months ago #693

WILSON1
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Hi 2B, we were talking bringing meds into US.- It dawned on me that probly you and certainly I have gotten generic Viagra or Cialis online (course it was for someone else). Generic Viagra will not be legal for 5 more years! There is probly more Gen. than brand Viagra sold in US. Order it and comes in the mail. It is supposed to require a script. Is EXACTLY the same as as bringing in Sof-Dac.Is a nice thought.

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Would you like to be part of a social movement? 6 years 7 months ago #700

DrJames
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It could work but as mentioned on our Supply Chain Integrity page the problem is that according to Forbes Up To 77 Percent Of Viagra Bought Online May Be Fake, And Possibly Dangerous, Research Shows

Now that study was funded by Pfizer (who make Viagra) but you would have to be a rampant optimist to expect all mail order DAAs to be the real deal. The financial incentives to sell fakes are just way too strong.

YMMV

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Would you like to be part of a social movement? 6 years 7 months ago #702

WILSON1
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I totally agree with you Dr. It is important to be as well informed as possible. I believe the Buyers Club has an excellent supply chain and is proven. .I am curious what would be necessary to obtain these meds from the buyers club into the US? Mesochem turned out to become a proven source but there certainly are scams out there. I guess what I was saying is that having merchandise mailed into the US may not be the risk I feared it is..Both the phonies and the true do find their way in without much trouble. The buyers Club is premium as it is a proven route to go, is a God send to very many just as you are for making things happen. Thank you again Dr. Freeman! .

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Would you like to be part of a social movement? 6 years 7 months ago #705

Alsdad Offline Moderator Posts: 335 Thank you received: 294 Karma: 5	Greg wrote about a 'worst case scenario' getting his Indian Sof into the US here: hepatitisctreatment.homestead.com/greg-jefferys-blog.html It's the 8th August entry.
	Last Edit: 6 years 7 months ago by Alsdad. Reason: additional info The administrator has disabled public write access. The following user(s) said Thank You: mgalbrai

Would you like to be part of a social movement? 6 years 7 months ago #711

Joy
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Hi Vicki,

Change.org had a petition targeting Gilead from a US perspective over a year ago, with close to 50,000 signatures:
www.change.org/p/gilead-sciences-make-cu...link#petition-letter

And another from the Hep C Coalitian:
www.petitionbuzz.com/PETITIONS/HEPC

And one mentioned on Greg Jeffery's blog:
www.change.org/p/hon-susan-ley-prime-min...s-of-viral-hepatitis

There are several others (including Avaaz) but they are out of date or focused on a particular country (like Canada or Mexico).

I think it's an issue that needs to be international, and target not just Gilead but all those involved in regulating pharmaceutical companies.

The Trans Pacific Partnership currently under discussion favours Big Pharma, and getup.org has a petition opposing that:
www.getup.org.au/campaigns/tpp/tpp/the-d...youve-never-heard-of

NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24.

A thousand thankyous to Dr James and the amazing FixHepC team.

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Would you like to be part of a social movement? 6 years 7 months ago #732

Vicki Offline Senior Member Geno type 3b. On sof/dac for 12 weeks. Posts: 45 Thank you received: 39 Karma: 2	Thanks Joy, That's very informative. I'm aware that The TTP is going to make Pharmaceuticals more expensive. I have signed and shard the Getup campaign. Best wishes Vicki
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Would you like to be part of a social movement? 6 years 7 months ago #733

Joy
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Today's ABC news:

"A dispute between Australia and the US over patent protections for pharmaceuticals is holding up the Trans-Pacific Partnership. Negotiations between the 12 countries in the US city of Atlanta have been extended for an extra day, as the US seeks to increase the length of time patents for new biologic drugs are protected.

The move is being resisted by Australia and Japan."

www.abc.net.au/news/2015-10-04/pharmaceu...ew-robb-says/6826278

NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24.

A thousand thankyous to Dr James and the amazing FixHepC team.

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The following user(s) said Thank You: DrJames, Vicki