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US Importation .... Legal or Not 8 years 4 months ago #3273

  • DrJames
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Speaking of Arlo this is kind of appropriate for this site.
YMMV
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US Importation .... Legal or Not 8 years 4 months ago #3297

To those that are reading these posts and wish to be successful dealing with Rachel at Mesochem:
Imagine you are at a costume ball. Rachel is there and she really wants to dance. However,she is picky. If you don't know the dance and step on her toe, she will break it off and go to the next-a lot of people want to dance with Rachel. To get another dance with her, you have to go home, change your costume and learn the dance steps. The next time, you get it right and have a wonderful dance, because Rachel is a great dance partner.
The moral here: learn the dance before you ask her the first time.
Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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US Importation .... Legal or Not 8 years 4 months ago #3299

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Or:

Rachel is a great pantomine actress, and she really wants for new actors to do panto with. But they have to be able to act. Learn to put on a bit of a song and dance, and you can join Rachel's show.
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US Importation .... Legal or Not 8 years 4 months ago #3396

Mike thanks for the detailed information. I followed what you suggested with Mesochem (Rachel). The long story short, I transferred the money to them on Sun (15 Nov), they received them on Tue. The medications were shipped the same day and they arrived in NYC on Thursday (19 Nov) morning around 10:00 AM. It was very easy - 3-4 emails exchanged between me and Rachel, one online bank transfer and fedex arrived at the door. I will wait for verdict from the external appeal, which should come through in the next 2 weeks. However, my doctor and I are skeptical about the outcome - I'm not sick enough, Daclatasvir is not preferred medication, so they the insurance company is trying to give me Sofosbuvir + Ribavirin + Interferon (I'm genotype 3a). Anyways, thank you to all who posted the information and good luck to importing in to the US, it seems to be working.
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US Importation .... Legal or Not 8 years 4 months ago #3398

Cole,
Each time I hear from people like you its like Christmas felt when I was a little kid. NYC. I'm putting pins on a map now. They are adding up!
Since you are in NY and Torpac is in NJ, you could always switch to the 00 profunnel. What dose do you need to cap?
Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24

US Importation .... Legal or Not 8 years 4 months ago #3400

The detailed information from you helped me make the decision. Thanks again!

I was thinking of doing 2 separate capsules - 400 mg Sofosbuvir and 60mg Daclatasvir. I will talk to Torpac tomorrow, they may have not shipped it since i ordered it on Thursday evening from them. You are right they are about 1h drive from home i can always switch it. Just wanted to check before i open the package. Thanks again.
The following user(s) said Thank You: mgalbrai

US Importation .... Legal or Not 8 years 4 months ago #3405

Good. Happy to help. This all goes back to Greg and Dr. Freeman- they are the trailblazers. I am kind of like a U.S. apprentice or whatever...anyhow, one more person gets to escape this Purgatory created by those big pharma jerks, the insurance asses and our spineless government.
Torpac. Not like Amazon. It took 3 weeks to get my funnel in Arkansas. Probably best to call and see if you can pick it up. The funnel makes this easy.
Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24

US Importation .... Legal or Not 8 years 4 months ago #3409

  • zhuk
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Great to hear you've been able to access your meds, Cole - with every bit of ease and lack of hassle that Mike has detailed. The process seems to be running like a top now..."sticking pins on a map" I love it heh


I'm unsure of what you mean here though, "my doctor and I are skeptical about the outcome - I'm not sick enough"? Your level of damage/fibrosis will make no difference, if anything the treatment should be easier...unless I've completely misunderstood you.
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26

US Importation .... Legal or Not 8 years 4 months ago #3414

Hey Zhuk,
I think Cole is not "sick enough" to get insurance approval. My health insurance only covers people on the transplant list, I nailed them on my external review.
Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: klhilde

US Importation .... Legal or Not 8 years 4 months ago #3416

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Well that was an obvious no-brainer on my part lol, thanks Mike! :pinch:


Every country has triaged supply, it won't be any different when the meds are finally approved here.
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
The following user(s) said Thank You: mgalbrai

US Importation .... Legal or Not 8 years 4 months ago #3419

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Hey Cole Welcome

Well just except his kind offer of that triple and through away the IFN and then you've got some good options with what's left. Feed the IFN to your plants, I'm thinking it would increase the growth bigtime. Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.

US Importation .... Legal or Not 8 years 4 months ago #3439

Some thoughts:
There are an estimated 2.8 million people in the U.S. infected with HCV. (That is down from previous estimates due to, imagine this, death) Most of them don't know it. So, say a million people realize they are sick. If one person could help 4 others access affordable treatment, and each of those did the same, After nine "generations" you have over a million people. Thats not going to happen, but ever little bit helps.

Who gets helped by widespread access to affordable generics?
1. The people who are sick
2. The insurance companies
3. The government (Medicare/Medicaid/VA)
3. Society as a whole-More healthy contributors.
Who is harmed?
Hmmmmmmmmmmm......
Those big U.S. pharmaceutical companies who register their corporations abroad to avoid taxes and their shareholders, that is who.

I don't think Customs is an issue.
Bottom line: generic importers are being patriotic, doing their duty to help Medicare and the states' Medicaid programs stay solvent.
We should get some kind of award!
I got mine a week ago......
Undetected!!!!!

Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: dointime, Jan-Dowling-facebook

US Importation .... Legal or Not 8 years 4 months ago #3441

Hey zhuk,
My insurance company is denying the dac + sof treatment, they are indicating that they may approve sof+interferon+riba, (most likely they will make me go again through 3 appeals). I'm genotype 3, they are following the AASLD guidelines - the triple regime is one of the two recommend regimes for my genotype. However, my previous treatment with interferon+riba was really hard and my doctor is refusing to make me go through it again. Further, she said that she hasn't treated a patient with inter+riba in more than 2 years and she doesn't see the point of doing it. According to her student and union insurances, as well as Medicare are almost impossible to get approval for treatment (I'm on a student insurance). Anyways, we are at the final stage of the appeal process, lets see what will happen. I really want to win it, mainly because Aetna has been assholes and I don't mind setting them back with a couple grants. Earlier this year they denied sof+riba for 6 months (not sick enough, so no medical necessity), back then we didn't bother appealing, since we knew that daclatasvir will be approve during the summer so we decided to wait. Anyways, i have the meds from mesochem will start them in two weeks, once i hear from the Department of Health about the appeal.

US Importation .... Legal or Not 8 years 4 months ago #3442

Cole,
Get it out of the insurance company's hands to the external review. That is where I beat them. My complaint was based on extra hepatic manifestations. I had 30 something pages of evidence and references to scientific findings and treatment recommendations. However, the biggest factor was one little note from my doctor saying I have been complaining of severe fatigue for two decades and that he could find no reason for my chronic fatigue other than HCV. The external review committee ruled harvoni was medically necessary and overturned the insurance company's denial of coverage. That was my third prescription in 18 months. I had taken each through every appeal I thought was available. They never informed me of my right to an external review. I found out when I FOI'd them about whether they covered ANYBODY. It turns out, they only had approved people who were on the transplant list-until me. They also mentioned one other case was still under external review. Based on that, I demanded my review and got my medicine-one day short of my 4 week mark on generics.
The system is so messed up.
I am trying to do what I can to help others avoid it.
Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24

US Importation .... Legal or Not 8 years 4 months ago #3443

  • gary
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Mate, congratulations on the undetected! Life has gotta be rocking for ya. Let's hope things continue in the same vein. Gary
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