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Side effects for sofosbuvir/Daclatasvir combo. 8 years 6 months ago #827
I can now report that the side effects have subsided to a large degree. Starting to feel much better and confident. Had liver function tests and I am WELL UNDER the normal limits. An amazing result after two short weeks. ALT down from 62 to 11 Very happy chappy here. G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015 | |
Side effects for sofosbuvir/Daclatasvir combo. 8 years 6 months ago #855
I'm still waiting for my meds to arrive but getting excited hearing all the positive feedback. Thanks everyone for the encouragement and all the best with slaying the dragon. NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive. Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct. Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. A thousand thankyous to Dr James and the amazing FixHepC team. | |
Side effects for sofosbuvir/Daclatasvir combo. 8 years 6 months ago #856
Good luck Joy. You may have some pretty ordinary days while your body adjusts. G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015 | |
Side effects for sofosbuvir/Daclatasvir combo. 8 years 6 months ago #875
I had a similar experience. Ist week the the Sofosbivir smelt toxic. Into the 2nd week I couldn't smell a them at all. | |
Side effects for sofosbuvir/Daclatasvir combo. 8 years 6 months ago #887
Yes Johnboy I am prepared for side effects, all worth it to be Hep C freeeeeeeeee. And I might be one of the lucky ones without sides. I've been living with my dragon for over 30 years and very ready to say goodbye to the shame, stigma, and secrecy that came with it. Received an email yesterday confirming my order has arrived in Australia, awaiting testing and encapsulating, so it won't be long now. Whoopee. NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive. Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct. Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. A thousand thankyous to Dr James and the amazing FixHepC team. The following user(s) said Thank You: Ann Bee | |
Side effects for sofosbuvir/Daclatasvir combo. 8 years 6 months ago #894
I have never had shame, secrecy or stigma over this. I point blank refuse to feel such emotion. I am very open about it and that shocks many I talk to. Slay away! G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015 The following user(s) said Thank You: MtGoat | |
Side effects for sofosbuvir/Daclatasvir combo. 8 years 6 months ago #896
Good for you Johnboy. I found so much ignorance out there, particularly concerning transmission (the leper effect) that I shut up about it. I couldn't be honest in my work environment without risking losing jobs or customers. It's almost as stigmatised as HIV was. NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive. Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct. Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. A thousand thankyous to Dr James and the amazing FixHepC team. The following user(s) said Thank You: tweakmax | |
Side effects for sofosbuvir/Daclatasvir combo. 8 years 6 months ago #899
I'm reasonably open about it But i did tell the doctor that i got it from a blood transfusion (I had 2 serious injuries that required transfusions before you could test) However during my misspent youth i also shared needles with a guy I knew had hepatitis But it was just an off the cuff comment someone said about him being yellow I thought it was something you got from eating dodgy food in poor countries and thought no more about it- until i tested positive whoops that's the problem with a war on drugs - it's a war on education as well i told the doctor this because i reckon the info goes on a database And i reckon the more needle users that have it, the more reason no-one needs to care i reckon there is definitely a stigma of it being a 'junkies' disease We live in a punitive society and i reckon regular punters see Hep c as your punishment for being a fool That's my theory anyway 52 y.o. G3a for about 30 years Previous tx 2004 interferon/ ribavarin 2004: ALT 624 AST 263 Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493 6/11/15: Sof/ dac started 26/11/15: ALT 41 AST 41 7/12/15: ALT 36 AST 30 Virus undetected 2004 biopsy F3 Fibroscan appt Jan 11 2016. | |
Side effects for sofosbuvir/Daclatasvir combo. 8 years 6 months ago #900
Sad but true. The only negative attitude I ever had was from a doctor. He couldn't find my deadset easy to find veins and then asked if I had ever used needles. I said yes, then he viciously jabbed me in the upper arm to take blood. It was the most disgusting behaviour. G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015 | |
Side effects for sofosbuvir/Daclatasvir combo. 8 years 6 months ago #903
Yep well no blood transfusions here, mis-spent youth banging up and sharing up Afghanistan and Burmas finest. We had no idea, hep c wasn't even invented lol and nor was needle exchange. Huge regrets now as a grandfather, father and responsible world citizen. Em Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016. | |
Side effects for sofosbuvir/Daclatasvir combo. 8 years 6 months ago #904
| I believe there are many in the medical profession who believe they need to be 'cruel to be kind' thinking that we may 'learn our lesson' if they are cruel to us. It is shocking. Some maybe think we will not 'endanger' ourselves again if they make our experience as difficult as possible. Some think it's our own fault and we are wasting medical resources. Seems to me, many of us are over 50, this has been my experience since diagnosis, they would prefer to have us labelled junkies out of a 'life-style choice' I think. It keeps public opinion on the side of no funds for treatment. They also seem to overstate the cost of treatments in the press. Well, English Health Authority do anyway. It's handy for them to blame NICE. Johnboy - The blood test thing is interesting ....sorry you had to experience that. I believe HepC patients all over, are discriminated against. My personal experience of the medical profession in England regarding this illness has been, in a word, bad. LG GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
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