I would like to share my experience with you regarding my side effects of Harvoni six months after treatment. ( I previously had discussed this at 9 months post Harvoni) I have developed symptoms that are flu-like but there are several things that lead me to believe it is not the flu. Started with what looked and acted like the flu. Sore throat, fever (very high) body aches so bad I was unable to walk or have any form of touch to my body. ear ache. head was full of stuff, lungs were also full of post drainage, all the wonderful things u you expect with the flu.
The first bout I suffered took over a week to get through. Upon feeling better the second bout kicked in worse than the first time. I was so sick I could'nt make it to the doctor. Lasted about four days. Felt good for two days and bout three kicked in. Not so bad as the second time but when the fourth time hit, it was devastating. Could not move, body hurt so bad I wanted to die. Fever so high I was talking to people who were not there, body hurt so bad I could not make it to the bathroom. This last three days, and when the fever broke I was 100% back to a fantastic place that I had not felt in months. Now there is no flu that acts like this that I am aware of. No one that I know of gets a drastic fever and poof when it breaks your just fine, like nothing was ever wrong. It was amazing. Compiling this information I found out my roommate who was treated with Harvoni had the same symptoms, not as bad but the same amount of time the same end result. I did not think too much about it until I spoke with a friend of mine after not seeing her in six months, who was treated with Harvoni before I was, and she had the exact same illness. To the letter. Well there is no way that I can say all three of us had the same illness for the same amount of time, with the same results. There is no doubt that Harvoni had played a big role in this illness. I am presently be treated by my primary Dr who has communications with my Hep C clinic and they are trying to come to a reason for this. The last time I spoke with them they felt like my auto immune system has been compromised and they are trying to find a way to correct this very disturbing problem. They both have told me to notify Gilead and the FDA to file reports of my condition so they will mandate Gilead into putting this information on a warning. It could very well kill someone who is not able to handle the six weeks of illness that has made me so ill. So I suggest the same for you. Anyone who has any form of side effects report it. Even if it seems unrelated please report it to the FDA and Gilead. They have done almost no studies about the post Harvoni treatment.The drug was fast tracked through the FDA and had little to no studies which should of been done. Gilead has made 61.8 billions dollars off of this drug last year. They need to invest some of that money in studies that can help post Hep C patients and Harvoni users. You may save some lives with your remarks.
