emo Rohcvfighter reached EOT

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5 years 11 months ago #19569

Wow roshvfighter thank you soooo much for writing your story and sharing it with us. I enjoyed reading every word of it! #love
I'd like to share it elsewhere too as it brings a very important first person experience as well as very useful links.
Thank you also for your impeccable work translating texts to your language. You have inspired me to do the same and although not with the same "professionalism" I am slowly spreading the word about generics in my country as well. I agree once we are cured we automatically become activists as we want to share this blessing with as many people as possible. Congratulations on your brave journey and my heart felt wishes to your SVR! I will meet you there. #magic
Big hug from Brazil. :kiss:


Blood transfusion in 1992 - Diagnosed in 2007
Tx naive -G1b - F1
VL 2.270.000
ALT 40
Start tx June 4th/2016 with DAAs - Sof/Led from India
Bloods on two weeks of tx (June 18th)
AST 17 - ALT 10 - GGT 19
Virus UND
Bloods on six weeks of tx (July 16th)
AST 17 - ALT 8 - GGT 12
Virus UND
EOT on August 8th (did 9 weeks and 3 days)

SVR 4 Virus UND (September 7th)
AST 13 - ALT 5

SVR 14 Virus UND (November 12th)
Last Edit: 5 years 11 months ago by Meg. Reason: typos
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5 years 11 months ago #19570

I read every word of your post, I feel you feel very blessed to have met this team of Angels and rightfully so. I know all of us feel that way. I am very appreciative of your post and making it from another country that freedom does not seem 100% it is that much more impressive. I know your great journey will continue as you seem to be a leader of people and I hope your persistence will make opportunity a reality for others and will bring you the prosperity you desire in all avenues of life. Thank you again for your post, it did as you intended it to do.
In good health my friend.


Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
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5 years 11 months ago #19571

A heartfelt post reading it has brightened my day, wishing you an infinite SVR for the future from me. #flower


SVR 24
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5 years 11 months ago #19572

Congratulations on EOT, rohcvfighter! Thank you so much for telling your story :)

You are an activist in the truest and best sense of the word, and in the best way possible.

Respect!

Fitz


Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
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5 years 11 months ago #19578

Felicitări pentru EOT, rohcvfighter!

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5 years 11 months ago #19581

Dear Meg, Sven, Tina, Fitz, Adam,,

Reading your messages today brought me a lot of joy, I do not know what else to say, apart from THANK YOU! (and #love )

@Meg: I am really impressed about how easy and natural you may use the words and express your thoughts in such a candid way. If you think it might help others, for sure you may use the information. :)

I wish you all a nice Sunday!

Cheers,
RHF


In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
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5 years 10 months ago #20590

Thank you for your post Rohcvfighter!

I really can relate to your story, I was born in Bulgaria 1966.I also don' t know how I got hep C, you made me thinking about that in a different angle...... this about the vaccination in School, I didn't realize till now this how they did it at that time!!! So most likely the same was happening in Socialist Bulgaria when I was a child. I'm speechless.

Anyway, better to focus on the positive that we are here, and we doing our best to get healthy and live our life!
Congrats on your successful EOT and I wish you UND SVR @ 12 weeks!! and forever!

BIg :+1: :+1: Stay strong!


Genotype 1b, VL before TX:325 000,ALT41, AST41, F2
2004 INT/Rib,stopped after 5 months, due to severe side effects
SOFOSBUVIR+LEDIPASVIR from India Hepcvir-L /generic Harvoni
beginning of treatment :12/07/2016, Feeling OK
4 weeks AST 22, ALT 23 VL undetected
8 weeks AST 29, ALT 22.VL undetected
3/10/2016 EOT
EOT + 4 Weeks, LFTs Normal, VL = UND
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5 years 10 months ago #20593

Hi Murr,

Thank you for your wishes. On my turn I wish you an easy journey through the treatment and to reach the happy finish lines SVR12 and SVR24 :).

I am now almost 4 weeks after EOT and I am physically OK. The anxiety of waiting another 8 weeks till the next VL blood analysis is somehow difficult to handle, so I keep reminding me that other people reported similar things. My level of enthusiasm is quite low these days, so I was thinking to apply a placebo strategy : to take some Calcium pills, place it in some appricot jam to get the brown color like the generic drugs that I took during the treatment and then to start taking 1pill/day at 10:00pm :) Just kidding, despite the fact my sense of humour is in vacation these days and away from me.

Cheers,
RHF


In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
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5 years 9 months ago #21124

A reflection from today.....
Someone asked me recently how has it been for me to get treated with HCV generic drugs.
Honestly, I found it quite hard to answer to this question in just a couple of words/sentences, as there were so many things to tell... I gave a couple of explanations (which I hope were of a good quality), however the question was repeating and repeating in my head ("How could I describe my experience ???".....).

In the end, I decided to illustrate my experience as it follows:



Why is that?
- it was not a simple journey and to many it (still) seems impossible - but to me and others from here, we know it is a "possible" journey;
- I had to learn many things about the HCV generic drugs. And all this in a "hostile" environment for generic drugs;
- I put my trust in people I never knew before (@fixhepc) and I listened to their belief that "GENERICS WORK!".
- the trip on the water to get rid of HCV by generic drugs had many turbulences (finding reliable sources of information, supply chain, overcome the fears), but with the brave people from here and an overdaring doctor, the "scaring" journey turned to be one full of adrenaline and fun!
- talking about HCV and the generic drugs (here but also with my friends) helped me in better understanding my situation and gaining more confidence :)

Cheers,
RHF

Attachments:

In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
Last Edit: 5 years 9 months ago by rohcvfighter.
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5 years 9 months ago #21159

Awesome illustration. Awesome advice RHF. You ROCK, brother! :+1:


Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
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5 years 9 months ago #21177

Congratulations ROHCVfighter
Great reading of your reflection at EOT
Wishing you a great future too and will be waiting for your updates with good wishes from here in Oz
Happies to you
Ariel #flower #flower #flower


Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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5 years 9 months ago #21180

Hi Rohcvfighter
Not long to go mate.
Hoping for the best results for you #flower #flower #flower :+1:


Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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5 years 9 months ago #21229

Hi Rohcvfighter

I have read all your posts. #flower They were an inspiring and honest revelation of your thoughts and stories. I have experienced many of the same situations and feelings that you so aptly describe. I applaud your determination to source your treatment in a similar manner as many of us have done, holding onto trust and belief on the way. I sourced my meds from China before fixhepc transitioned to a partnership with other o/s pharmas ie India and Bangladesh.#love

and now we wait for news of SVR12
#woohoo!


gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
Last Edit: 5 years 9 months ago by pat1.
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5 years 9 months ago #21233

Congratulations Rohcvfighter!
You already had a happy EOT so I wish you a happy SVR12 with UND!

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HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful :)
virus not detected 06.02.2016 & SVR24
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5 years 9 months ago #21722

Hello Everybody,

I am now 10 weeks after EOT and reading lately so many wonderful news about people here reaching SVR12 or SVR24, I decided to make a blood test for the liver enzymes.
The results show that TGP and TGO got even better (couple of units lower) than those from EOT (which were already very good - at the middle of the normal range). I would take this as a promising result.

In 2 weeks time I will make the VL blood test,hopefully SVR12 will be confirmed.

P.S. last night there was an earthquake in Romania around 2:11 am, quite strong 5.6 on a Richter scale. Luckily no casualties, but some people got scared.

Cheers and a nice week-end,
RHF


In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
The following user(s) said Thank You: LondonGirl, coral, mgalbrai, Ariel, Gaj, Hieupham, Fara, fitz

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