emo Awesome things happening after EOT

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4 years 6 months ago #25555

Hi Erica,

Thanks for the update on how it's going and your kind words. Jan is fabulous!

Fingers crossed for SVR.


YMMV
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4 years 6 months ago #25559

James-Freeman-facebook wrote:

Hi Erica,

Thanks for the update on how it's going and your kind words. Jan is fabulous!

Fingers crossed for SVR.

Thanks so much, Doc! I will keep you posted.


Gt 4ACD
No treatment of any kind until FixHepC. <3
Tx started Monday, Sept 18, 2017!!!
Pre-tx: Ferritin 988, AFP 30.2, AST 109, ALT 148, VL 8864293
4wk: Ferritin 31, AST 23, ALT 17, VL <1.18 Log (detected)
8wk: Ferritin 8, AST 18, ALT 20, VL <1.18 Log (UND)
12wk EOT: Ferritin 9, AST 18, ALT 19, VL <1.18 Log (STILL UND)
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4 years 6 months ago #25567

Hi Erica,

Congratulations on those results and thanks for such a wonderful and personal post. It made me reflect again on all of the subtle but significant changes that I have experienced since getting this monkey off my back. I hope that your post will encourage others who may be holding back a little on getting treatment to jump on in and know that it is better on the other side.

Keep on enjoying this Hep C free life. #flower #flower

Coral


G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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4 years 6 months ago #25572

coral wrote:

Hi Erica,

Congratulations on those results and thanks for such a wonderful and personal post. It made me reflect again on all of the subtle but significant changes that I have experienced since getting this monkey off my back. I hope that your post will encourage others who may be holding back a little on getting treatment to jump on in and know that it is better on the other side.

Keep on enjoying this Hep C free life. #flower #flower

Coral

Thank you, Coral. That is EXACTLY my hope, as well. This wasn't even possible just a few short years ago. I figured I'd just...die from Hep C, far too early, and that would be that. My gratitude and amazement is just...I have no words. This, today, right NOW is our NEW life. There is an infinity of enjoyable experiences to be had, small and large. We've got some catching up to do! LET'S GO DO STUFF!!!! :)


Gt 4ACD
No treatment of any kind until FixHepC. <3
Tx started Monday, Sept 18, 2017!!!
Pre-tx: Ferritin 988, AFP 30.2, AST 109, ALT 148, VL 8864293
4wk: Ferritin 31, AST 23, ALT 17, VL <1.18 Log (detected)
8wk: Ferritin 8, AST 18, ALT 20, VL <1.18 Log (UND)
12wk EOT: Ferritin 9, AST 18, ALT 19, VL <1.18 Log (STILL UND)
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4 years 2 months ago #26180

I've got 51 Epclusa pills down, 23 to go, estimated EOT of April 28. UND at 4 weeks, pristine abdominal scan. I am blessed.

Now my focus is how soon I can get the Epclusa out of my system after April 28. My only side effects are (i) a bizarre dehydration which keeps me from spending more than 30 minutes in HR zone 3, and (ii) boundless HR zone 1 and 2 energy, which I suppose could be considered to be insomnia.

It sounds from others here that it only takes a few days to clear out. It would be good to get a long, hard ride in the weekend after 4.28.


1970's-Bad behavior as a teenager.
2001- Insurance Company denies coverage due to HCV positive
2002- Another HCV positive reading and referral to liver doctor.
2003-Commence Interferon Combination treatment. VL 205,088 after 3 months. Doctor says stop.
2007-VL 1,045,320.
2017-VL 3,121,174.
2.5.18-Commenced generic Epclusa.
3.7.18- VL Undetected!
3.13.18-US Abdomen Complete scan reflects "Normal echogenicity with no mass detected. No dilated intrahepatic biliary ducts".
8.1.18- VL Undetected!
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4 years 2 months ago #26181

When you stop the tablets you get rid of 1/2 every day so:

1 ->1/2 of 1 = 1/2 left
2 -> 1/2 of 1/2 = 1/4 left
3 -> 1/2 of 1/4 = 1/8 left
4 -> 1/16 left
5 -> 1/32 left
6 -> 1/64 left
7 -> 1/128 left

So within a week you are down to 1% of the drugs left. 2 weeks and it is 0.01% and at 3 weeks you have only one millionth of the blood levels you had when you stopped.


YMMV
Last Edit: 4 years 2 months ago by DrJames.
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4 years 2 months ago #26182

Thanks, Doc. That information is very helpful as I plan my post-treatment regimen.


1970's-Bad behavior as a teenager.
2001- Insurance Company denies coverage due to HCV positive
2002- Another HCV positive reading and referral to liver doctor.
2003-Commence Interferon Combination treatment. VL 205,088 after 3 months. Doctor says stop.
2007-VL 1,045,320.
2017-VL 3,121,174.
2.5.18-Commenced generic Epclusa.
3.7.18- VL Undetected!
3.13.18-US Abdomen Complete scan reflects "Normal echogenicity with no mass detected. No dilated intrahepatic biliary ducts".
8.1.18- VL Undetected!
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4 years 2 months ago #26183

I'll just add my 2 cents....

Just over 2 years now since becoming undetected. I recently reached a new level of well being, it really feels like every 6 months or so things become even better. Mostly energy level, but also mentally. Just great.
:cheer: :+1:


Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
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4 years 2 months ago #26184

As one of the brave explorers who took the leap of faith that this site was legit and that generic meds would work you earned it GF!

Plus all rhe encouragement you’ve given others over the years....


YMMV
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4 years 2 months ago #26225

I feel the same more than a year after becoming undetected as I did before treatment. The awesome thing that happened is that a nightmare of worries and not being able to work for a year due to exosure prone procedures beimg part of my work is behind and I live my life without even thinking of it. I hope very much I will be able to direct other people stuck in that nightmare to this website so that I do at least tiny bit of useful action in return to those people who made it possible, in particular you , James.


Diagnosed September 2016.
1b
ALAT in 40s.
VL 460 000
Fibroscan 12.5
Start of treatment 18/10/16
Wk 2 VL 145
Wk 4 VL detected unquantifiable
Wk 8 VL detected unquantifiable
Wk 12 undetected
week 30 after eot - undetected
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4 years 2 months ago #26227

Thanks countless,

Hep C is interesting in the way it impacts people. Some are very symptomatic and see dramatic changes with treatment, whereas others seem to be weathering the storm in a t-shirt and shorts.

The psychological part is neglected - it's nice to know you and your blood are no longer infectious, and of course if exposure prone procedures are part of daily life...


YMMV
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4 years 2 months ago #26296

Greedfighter wrote:

I'll just add my 2 cents....

Just over 2 years now since becoming undetected. I recently reached a new level of well being, it really feels like every 6 months or so things become even better. Mostly energy level, but also mentally. Just great.
:cheer: :+1:

Hey GF this is pretty much what is happening to me! Good to hear you are doing well.
I have to admit to unexpected effects when I got the first SVR ,3 months post EOT. I never thought it was going to be such a Big Deal and so tough to process. But I'm good now (started treatment in March 2016).
Physical health is hugely improved apart from cholesterol. (I suspect my sub optimal liver wasn't making much of it, and when it got better it made up for lost time). Mental sharpness and learning ability have also improved out of sight.
Keep on enjoying life!


Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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4 years 1 month ago #26391

Hi beaches!

I'm glad you are doing well and feeling great like me! It really does keep getting better over time after being infected for so many years. My only advice to you would be just watch the cholesterol and fat levels in the food you eat. My Father died from a stroke that was caused by a high fat/ high cholesterol diet. You really do have to watch what you eat. I've become a food label hound :silly: :+1:


Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
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  • The life you save will be your own. START TREATMENT
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4 years 1 month ago #26393

So true, greedfighter!
My total cholesterol level jumped from low 4 to mid 6 within 6 months of clearing the virus, as my newly healthy liver set about making cholesterol with a vengeance. Dammit!
But still, the feeling of well-being continues to increase. It's good to know I've been given back some quality time so yeah, it's worth actively monitoring all the other health indicators.


Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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3 years 10 months ago #27002

I received my latest Undetected test on 8.1.18, 3 months after EOT. Another Undetected test late next month and I will be at SVR.

Thanks for the great service, support, and information that is provided through this venue!


1970's-Bad behavior as a teenager.
2001- Insurance Company denies coverage due to HCV positive
2002- Another HCV positive reading and referral to liver doctor.
2003-Commence Interferon Combination treatment. VL 205,088 after 3 months. Doctor says stop.
2007-VL 1,045,320.
2017-VL 3,121,174.
2.5.18-Commenced generic Epclusa.
3.7.18- VL Undetected!
3.13.18-US Abdomen Complete scan reflects "Normal echogenicity with no mass detected. No dilated intrahepatic biliary ducts".
8.1.18- VL Undetected!
The following user(s) said Thank You: coral, Hazel, Iain, hanknassi, Mar

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