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TOPIC: discomfort in liver after tx

discomfort in liver after tx 3 years 5 months ago #16430

  • LondonGirl
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These medicines are for ridding the body of the virus, but I guess they don't cure the damage and digestive issues caused by it overnight, so if there was liver damage previously, it will still be there, albeit with less inflammation ? Time has shown an improvement in many patients from what I have read. My liver has improved quite a bit on the medicines. (I am still on treatment, so we shall see after it ends).

I also still get this discomfort on the lower right hand side as many have described above. I went for the amazing new LiverMultiScan and strangely, that area was the clearest part of my liver regarding fibrosis ! I have read the lower ribs cage can become inflamed, gallbladders can also cause problems. When you see your liver on the LiverMultiScan it makes your realise just how large and important the liver is - I was shocked at the size of mine, it is huge and goes right around to the left side too ! it makes sense to me now, that if the liver is unhappy, then nearly everything else will be.

Who knows what it is, maybe something in the 'piping' ? ;-) It would be very interesting to know !
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
Last Edit: 3 years 5 months ago by LondonGirl.
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discomfort in liver after tx 3 years 5 months ago #16442

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darbara wrote:
For me now its nearly all the time since the last 4 days. Its from the right side just below the liver right till the back. Its not sharp just strong dull pain, more like a swelling. Feels like a sprain or muscle twist. Hoping it goes away. But it was gone on treatment but now back. Crap!

Hi darbara,

I also have some pain in that area which comes and goes, I liken it to a mild "stitch" that you would normally get from exercise. I have discussed it with my Hepatologist but he hasn't been able to find anything obvious to explain it via physical and blood tests or scans.

Only you can tell how much the pain has increased in intensity and/or frequency in the last few days. Consider that it may be HCV related or possibly a sign of something else but if the increase is marked then seeking medical advice to determine whether it is important would seem to be prudent if only to give peace of mind.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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discomfort in liver after tx 3 years 5 months ago #16460

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I also had pains just below the liver before tx, and it was stomach related. Diagnosis was helicobacter pylori, which I eradicated with antibiotics therapy. After DAA tx I'm again getting my stomach upset with lost of gasses and sometimes pain, so if it not stop soon, I will again run some stomach tests.
As I understood liver don't hurt, the only pain in liver can come from gallbladder issues.
Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
22 Jan. 2016 - Back from Delhi with 12 week Ledifos supply :) Thx to Parag
Started TX on 27.Jan.2016 - AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
19. Feb 2016 - ALT 14, AST 14, GGT 19, ALP 107
19. Apr 2016 EOT - Undetected :)
26. Apr 2016 (1 week after EOT) - ALT 14, AST 17, GGT 12, ALP 77
28. Aug 2016 (17 weeks after EOT) - UND, ALT 15, AST 12, GGT 5, ALP 39 :)
Last Edit: 3 years 5 months ago by Geno1b4.
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discomfort in liver after tx 3 years 5 months ago #16461

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I've had tons of weirdness around my liver area and gastro problems and FINALLY about 10 weeks after EOT it is starting to let up. Hopefully it stays like this!
HCV 35 yrs G1a F3 Tx naive
started Lesovir-C 15/12/2015
pre tx: VL 5,250,000 ALT 374 AST 208
FIBROSCORE 10.4

4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL
8 weeks tx ALT 29/ AST 34. VL UND
4 weeks after tx UND. SVR4. ALT 24/AST 18
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discomfort in liver after tx 3 years 5 months ago #16462

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Hi
I'm F0 and went in with a very low VL (240,000ish)
I have had exactly what Gaj described
It went away.
I'm around 7 or 8 weeks past EOT not sure exactly
My pain was like a sharp stitch
I didn't worry about it just asked my GP and talked to a friend for peace of mind
I got SVR 4 regardless of the pain stabs
And yes they've gone.
Ariel
(Who's just tried to allay any people's worries in a long winded manner)
:+1: I agree a GP check.
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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discomfort in liver after tx 3 years 5 months ago #16471

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I've had the mild to moderate sharpish pain around lower right ribcage as well, both during and particularly post-treatment. But not for a few weeks now - I'm about 8 weeks post treatment with SVR5. Doesn't seem like anything to worry about B)
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discomfort in liver after tx 3 years 5 months ago #17372

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Its 13 weeks EOT should get results soon but the discomfort in the Abdomen, liver swelling type feeling and bloating continue.
Treatment naive
F 3/4
Genotype 1 a & b
V/L 17 MILLION
Started Harvoni 11th Dec 2015 for 12 weeks
4 weeks VL UND
6 WEEKS ALT 32, AST 34
EOT 03/03 2016 ! UND
ALT 34, AST 26
04.04.2016 SVR 4
26.05.2016 SVR 12
16.08.2016 SVR 24
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discomfort in liver after tx 3 years 5 months ago #17373

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Hi Dabara, Have you tried cutting out gluten? Just a thought.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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discomfort in liver after tx 3 years 5 months ago #17374

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no not tried will try it
Treatment naive
F 3/4
Genotype 1 a & b
V/L 17 MILLION
Started Harvoni 11th Dec 2015 for 12 weeks
4 weeks VL UND
6 WEEKS ALT 32, AST 34
EOT 03/03 2016 ! UND
ALT 34, AST 26
04.04.2016 SVR 4
26.05.2016 SVR 12
16.08.2016 SVR 24
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discomfort in liver after tx 3 years 5 months ago #17433

Hi Darbara

I can certainly relate to those pains: I've had them for years in my liver. When I speak to doctors they say that the liver has no nerve endings in it so it can't feel pain, but the surrounding capsule does have nerves and it gets irritated when the liver is swollen.

But regardless of what the science says the pains I get are so specific and described by other HCV sufferers so they must be coming from the liver. I get 3 types of pain, all below the right rib cage...

- occasional dull ache/stitch lasting a few seconds-minutes
- very occasional short darts of pain/twinges
- occasional burning sensation lasting few minutes

As others have mentioned your pre-treatment liver damage will take time to heal. I hope the sub-text isn't that you worry that you have relapsed...hold tight and wait for the EOT +12 VL; and you know the odds are hugely stacked in your favour.

I'm still on treatment and got these pains much more at the beginning of treatment than usual...I re-framed them as my liver healing rather than something to worry about.

Patrick
45 yo male; UK; HCV since 1996; G4; F2-3 (fibroscan score 9.1);
Null responder interferon/ribavirin 2008;
4/16 Harvoni 8 weeks; Pre-tx VL 2.1 million; week 4 VL 269; EOT UND; but...
6/16 Tx extended w/ generic sof/dac x 12 weeks due to concerns around my slow response to Harvoni. UND at end of 2nd round of treatment and EOT+4.
Last Edit: 3 years 5 months ago by rememberdecember.
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discomfort in liver after tx 3 years 5 months ago #17435

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I have had them for over 2 years BUT there are times when its gone for a few months. A month into treatment and I had nothing. 2 months after treatment its back again. I dont fear relapse as there is enough treatments out there. Ive done myself a favour by stoping booze for the last 12 years or so, thats helped me I am sure of it.
Treatment naive
F 3/4
Genotype 1 a & b
V/L 17 MILLION
Started Harvoni 11th Dec 2015 for 12 weeks
4 weeks VL UND
6 WEEKS ALT 32, AST 34
EOT 03/03 2016 ! UND
ALT 34, AST 26
04.04.2016 SVR 4
26.05.2016 SVR 12
16.08.2016 SVR 24
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discomfort in liver after tx 3 years 5 months ago #17830

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Perhaps not too much related with the purpose of this thread, but here is a tip that works every time in my case when I have this liver discomfort: I chew a small piece of fresh ginger (15-20 grams) and afterwards I drink a glass of water. It is spicy, but you don't have to swallow the fiber part of the ginger, the juice you can get from it makes wonders. In my case, the discomfort goes away in couple of minutes.

Some caution needs to be taken into account if one takes pills to decrease blood pressure
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
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discomfort in liver after tx 3 years 5 months ago #17831

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Good Tip Rohcvfighter

I HATE ginger ... with a passion.

But, found it to work exactly as you described.

For the Aussies here, I used "Buderim Crystallised Ginger" ... it's not too hot ... but works.

I viewed it as medicine ... I haven't tasted any sort of medicine that has tasted good.

:+1:
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
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discomfort in liver after tx 3 years 5 months ago #17833

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GT2 wrote:
Good Tip Rohcvfighter

For the Aussies here, I used "Buderim Crystallised Ginger" ... it's not too hot ... but works.

:+1:

GT2 I hate to tell you but when you eat crystallised ginger you may as well be eating lollies (candy to you, American friends)
Have you tried a hot drink of ginger and fresh mint with hot water poured over it?

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
Last Edit: 3 years 5 months ago by beaches. Reason: added music clip
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discomfort in liver after tx 3 years 5 months ago #17834

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If you like juice apple, carrot, celery and ginger (about 1 inch of root) is not a bad drop.
YMMV
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