emo Is itching common with hep c?

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2 years 11 months ago #28049

Hello Apogal,

Welcome to the forum.

Itch certainly troubles some patients with Hep C. It becomes increasingly common as liver disease progresses and happens with all the liver diseases.

While there are no guarantees, yes, itch often resolves with treatment.

Best of luck with your treatment!


YMMV
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2 years 11 months ago #28052

I had lots of itchy patches and responses to clothing, shampoo, food and sea etc for the 30 + years I had Hep C.

I had ecxema, psoriasis, dandruff etc- not charming.... I had no idea they were HepC connected- specialist never said a word- the psoriasis made me ineligible for a pegylated interferon trial at one point.

I also had cirrhosis- they sound the same and people often swap the words around! Mine got bad, decompensating, and yes skin itchier at that point.

Then- tah dah! #magic# FixhepC, got meds, survived, cured, no hep C, now have none of the above, I can wear what I want, use hotel shampoos, now there are tubes of cream gathering dust in the cabinet..

And even the cirrhosis, has melted away against all expectations to a normal liver.
So, imho, the best treatment for the skin, not 'just' liver is DAA's, and my advice is to everyone- don't wait, get fixed. Best $ I ever borrowed and repaid.


Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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2 years 11 months ago #28053

I took my 5th dose this morning. I am praying this will take that away. Thank you for your helpful response. Did it get better before treatment was through or did it take longer? I only have mild scarring and a fatty liver. Fibro was a 1. I've had this 16 years now. Itching began about 14 years ago. My liver was much worse but began an extreme lifestyle change. Hoping this works and I find relief. It's pretty intense. I too am aggravated by certain foods and soaps as well as other things.

Last Edit: 2 years 11 months ago by Apogal.
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2 years 11 months ago #28054

Hi Apogal,

I have to say, I did 24 weeks treatment- I wasn't undetected until 18 weeks- had failed 2x before so the skin improvements were not my focus, I didn't track when/ how much it improved on treatment. Everything I noticed about feeling better was so marvellous- I emerged realising skin was better too.
Pretty sure it took a while but I had bad cirrhosis so you would expect it to sill be an issue until that was cleared up. I didn't have fatty liver surprisingly, as I am a fatty!

Drinking lots of water is the key, especially for you at the moment, with so much dying virus to be flushed out of your system, it could well be the itching will be worse before it is better while your body adjusts to all that change happening. It is going to be cool hearing how it is going for you, let us know every week or so?


Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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2 years 11 months ago #28055

Thank you so much for your answer. Yes I believe it may get worst before it gets better. I've been trying to drink plenty of water. Sometimes forget tho. Looking forward to healing.

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2 years 11 months ago #28068

Hello Apogal,

Itch is very common with Hep C and while there is no 100% guarantee most patients troubled by itch before treatment find it goes away on/after treatment.

Please keep us updated about what you notice.


YMMV
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2 years 11 months ago #28076

Hey. Thanks everyone for the replies! Today is day 11 of epclusa. The itch, which is my main symptom, does seem some better. Not real sure yet. It's kinda on and off now. I thought it was getting better then had a bad day yesterday. Today is some better. I'll try and keep everyone up to date.

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2 years 11 months ago #28078

Hello Apogal,

Fingers crossed it becomes less and less.


YMMV
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2 years 10 months ago #28141

I also have itching. It was occasional before treatment. Now it starts 30-60 min after taking Mavyret with my last late evening meal. The itching is fairly intense for aprox 8 hrs then tapers off.

I started treatment 9-19'19, GT 3a, 40 years ago I had numerous transfusions, diagnosed approx 2006. Age 70. Fibroscan was inconclusive due to inflamation; showed stage 4 but it is suspected stage 3. A 1 cm lesion was detected via C T.

Over the past 5 years I have developed type 2 diabetes, psoriasis slight murmur and hypertension. I have familial ITP diagnosed 40 years ago with occurence in my daughter and granddaughter - they do not have HCV. My platelets have gone down gradually over the years and it is thought they may improve slightly, - I have no bleeding problems.

I am hopeful the increased itching is a sign the virus is being killed off quickly and will become less intense. Has anyone else had similar issues and experience with Mayvret and or treatment progression and or results of treatment? What may I possibly expect?

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2 years 10 months ago #28142

Hello Pacific,

The itching is almost certainly a mild drug allergy. You may find some over the counter antihistamine, probably taken 1 hour before the Maviret helps a bit. Short of changing the medication this is likely to continue through the entire treatment, but stop the day after your last tablet.

How long are you scheduled for? Ideally we would like 16 weeks Maviret for someone F4 with GT3.


YMMV
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2 years 10 months ago #28147

Trestment scheduled for 12 weeks.

CT was unremarkable except liver 8mm hypodensity in hepatic segment 2, too small to characterize. Alt 170, AST 124, alpha fetoprotein serum 20, 9, bilirubin .6, IGG serum 1,437, creatinine .72, hemoglobin 16.5, hematocrit 50.1, MPV 13.1, platletes 32, mutation S62T/Y93H, HCV realtime 3,820,000, HCV log 6.58

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2 years 10 months ago #28148

Trestment scheduled for 12 weeks.

CT was unremarkable except liver 8mm hypodensity in hepatic segment 2, too small to characterize. Alt 170, AST 124, alpha fetoprotein serum 20, 9, bilirubin .6, IGG serum 1,437, creatinine .72, hemoglobin 16.5, hematocrit 50.1, MPV 13.1, platletes 32, mutation S62T/Y93H, HCV realtime 3,820,000, HCV log 6.58

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2 years 10 months ago #28149

Hi Pacific,

Hmm, Maviret is good but 12 weeks with your profile is sub-optimal. I know you mentioned ITP but 32 platelets is pretty low and suggest more cirrhosis rather than less. I've treated patients with as low as 13 platelets and they now have ... tada ... 2x at 26 and SVR 24 and are back on the road driving trucks from Texas to Florida so I've seen worse.

GT3 + F4 + Y93H is as bad as it gets. If I was you, and of course I'm not, I would be throwing the kitchen sink at it. If this treatment fails you are in a world of pain. I will send you a PM.


YMMV
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2 years 10 months ago #28150

PS: The hypodensity in the liver is most likely a cyst, particularly with the AFP of 20 which, although it is > 11 is completely normal for cirrhosis. 200-2000 is normal for HCC so you are much closer 2x to normal on the AFP than cancer 10x +

With cirrhosis, there is a 3% per year risk of HCC (aka liver cancer) so you will need several years of follow up with AFP and Ultrasound once you are cured, but at the moment it looks normal and unworrying.


YMMV
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2 years 10 months ago #28153

Thank you for this information. I am relieved about the interptetation of the hypodensity and the tumor marker. I just finished week 2 and actually have more energy than I have had in years. Also. my ankles are no longer swollen.

A molecular test was done and indicated my mutation reacted to the Mayvret. I am hoping my scheduled blood tests will indicate it is working.

I will keep you all posted as I get results. My fingers are crossed and praying for a cure. 40 years living with this disease, as all of you - I want to finally win the war and enjoy better health.

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