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TOPIC: Jakarta group starts own Buyers Club

Jakarta group starts own Buyers Club 5 years 4 months ago #17539

Joy
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www.echo.net.au/2016/06/jakarta-group-st...-dallas-buyers-club/

NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24.

A thousand thankyous to Dr James and the amazing FixHepC team.

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Jakarta group starts own Buyers Club 5 years 4 months ago #17546

Matt-Kenney-google
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Wow Joy! Good on Jakarta! Although, I have the same concerns expressed by Joe in the comments on the article. He asks, "Is it a good idea to publicise this? Inodnesian police and customs will appreciate this heads up."

GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!

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Jakarta group starts own Buyers Club 5 years 4 months ago #17575

Joy
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Yes Matt, I share those concerns, especially since names and positions are mentioned.

With 3 million living with Hep C and even the price of generics out of range for most, let's hope Indonesia's National Insurance lists the new meds asap.

NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24.

A thousand thankyous to Dr James and the amazing FixHepC team.

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Jakarta group starts own Buyers Club 5 years 4 months ago #17586

Gaj
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While there will be some risks associated with the publicity I suspect they made the decision to to go public via the AAP as a means of spreading the word and generating additional support for their/our cause much like a couple of Tasmanians did in the Australian media last year.

Here's a link to additional reading about generic HCV treatment in Asia:

www.amfar.org/activists-driving-down-cost-hepatitis-c-treatment

G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND

Last Edit: 5 years 4 months ago by Gaj.

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Jakarta group starts own Buyers Club 5 years 4 months ago #17593

Joy
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Thanks Gaj.

Yes, those wonderful Tasmanians who stuck out their necks for all of us. Eternally grateful. Now more are taking risks to help others, and it will continue to spread. Because people care about people.

“Right now many of our community members are surviving HIV, but dying from hepatitis C,” says Aditya Wardhana, executive director of the Indonesia AIDS Coalition.

Feeling very sad about that.

NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24.

A thousand thankyous to Dr James and the amazing FixHepC team.

The administrator has disabled public write access.

The following user(s) said Thank You: mgalbrai, fitz