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Hep C sufferers’ ire at activist-website ban 7 years 10 months ago #17780
"A website which raises awareness about a medical cure for hepatitis C could be hidden from Australians". WHY??? thenewdaily.com.au/life/2016/06/14/hep-c...ctivist-website-ban/ Nishkama Karma Cùng nhau loại bỏ Viêm gan C trên khắp thế giới! The following user(s) said Thank You: Joy, LondonGirl, coral, Vororo, 2b, pat1, mgalbrai, CJ, Ariel, Gaj, Lynne-Francis-facebook, beaches, Hazel, Greedfighter, Matt-Kenney-google, Meg, GT2, fitz, Sven | |
Hep C sufferers’ ire at activist-website ban 7 years 10 months ago #17782
YES!!!!!! Genotype 1a Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby The following user(s) said Thank You: pat1, mgalbrai, Ariel, Gaj, Lynne-Francis-facebook, Tina-Hill-facebook, Hazel, Matt-Kenney-google, Meg, fitz | |
Hep C sufferers’ ire at activist-website ban 7 years 10 months ago #17784
Yes, WHY? I am still awaiting a reply from my email to the Health Minister. Jeff GT3a 1990 Failed Inter 1998, comb in 2000. HCC 2012 Started 24/52 Sof/Dac 27th October 2015. 1. Bloods 2 October 2015: AST - 165 (20-40), ALT - 265 (5-40), GGT 189 (5-50) 2, Bloods 20 November 2015: ALT etc normal; VL 19 3. Bloods 8 January 2016: AST - 40, ALT - 59, GGT 48 VL RNA UND 4. EOT 12 April 2016 - blood tests: all is well, CT scan: okay 5. AFP 11 June 2016: 4 ref< 11 6. VL July 2016: DET 7. Oct16 start treat - June17 UND 8. Jun 18, lfts okay, platelets a bit low. The following user(s) said Thank You: mgalbrai, Ariel, Lynne-Francis-facebook, Tina-Hill-facebook, Hieupham, Hazel, Matt-Kenney-google, GT2, fitz | |
Hep C sufferers’ ire at activist-website ban 7 years 10 months ago #17793
| Great article Hieupham! ... looks like SOMEBODY got to Richard Woolverage! That deserves a hearty "YES! " indeed GT1a; Got it some time in the 70's; Diagnosed @1976 Tx naive METAVIR: A2-F2 SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000 3 weeks after SOT: AST 27 ALT 31 VL 138 Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24 Hep C RNA "NOT DETECTED" AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24! |
Hep C sufferers’ ire at activist-website ban 7 years 10 months ago #17801
| A well written article that hopefully will rattle some chains. SVR 24 |
Hep C sufferers’ ire at activist-website ban 7 years 10 months ago #17804
Good article ... I left a comment responding to David Piper: David Pieper • 3 hours ago This is a non-story as the drugs are now available to every Australian for the cost of a regular prescription. There are no hepatitis C patients that are angered, but there are over 13,000 of them who are delighted to have commenced treatment since March with drugs have been made available on the PBS GT2: Really? 13,000 out of 230,000 HCV sufferers in Australia ... 5% may be "delighted" ... however, 95% are angry ... now that's an ongoing story ... Went back to check if there was as response to it. Yep ... it was deleted ... say no more. P.S. Always remember ... whoever pays the piper calls the tune ... 1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2 22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve) 10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India 09/05/16: ALT 34, VL: NOT Detected 17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72 The following user(s) said Thank You: coral, pat1, mgalbrai, Ariel, Gaj, Lynne-Francis-facebook, beaches, Hieupham, Greedfighter, Matt-Kenney-google, fitz | |
Hep C sufferers’ ire at activist-website ban 7 years 10 months ago #17806
Wait and see GT2, I left one too and it seems to take quite a while to be moderated. Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 | |
Hep C sufferers’ ire at activist-website ban 7 years 10 months ago #17807
Great article - thanks for posting Hieupham. Anne says " The TGA complaint follows the letter of the law but ignores the spirit of humanity". Indeed! G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 The following user(s) said Thank You: pat1, mgalbrai, Ariel, Gaj, Tina-Hill-facebook, Hieupham, Hazel, Matt-Kenney-google, GT2, fitz | |
Hep C sufferers’ ire at activist-website ban 7 years 10 months ago #17808
| Ive joined the party GT2 - just waiting to for my comment to be moderated. SVR 24 |
Hep C sufferers’ ire at activist-website ban 7 years 10 months ago #17809
Hi guys My comment was up, then down, now back up ... you may be right ... just takes time to be moderated. Thanks GT2 1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2 22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve) 10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India 09/05/16: ALT 34, VL: NOT Detected 17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72 | |
Hep C sufferers’ ire at activist-website ban 7 years 10 months ago #17810
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Hi GT2 your comment is still up there mate - ive just read it now SVR 24 |
Hep C sufferers’ ire at activist-website ban 7 years 10 months ago #17813
Waiting Yep you're still there GT2 Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
Hep C sufferers’ ire at activist-website ban 7 years 10 months ago #17852
| Got my 2 cents in to Mr. Pieper's comment as well MK GT1a; Got it some time in the 70's; Diagnosed @1976 Tx naive METAVIR: A2-F2 SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000 3 weeks after SOT: AST 27 ALT 31 VL 138 Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24 Hep C RNA "NOT DETECTED" AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24! |
Hep C sufferers’ ire at activist-website ban 7 years 10 months ago #17881
Well done all I'm under a nom de plume on that Pieper thread in my reply due to Australia's stupid prejudices and all. Anyway, I wanted to know more about this man who is clearly not about treating all asap from his glib comment. He has a strong profile for the PBS. Also, Thankyou Hieu amazing reply to the other discreditor suggesting we are guinea pigs! Ty also international friends www.hepmag.com/blog/will-prioritised-treatment mobile.twitter.com/seymour_akshun Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
Hep C sufferers’ ire at activist-website ban 7 years 10 months ago #17888
Great article. In good health to all. Contracted HCV 1980's Geno Type 1a F3 ( doc says once treated I'll be F2 maybe F1) Meds shipped 6/17/2016 arrived early 7/2016 Viral count - 3,471,080 4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected) 8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected) 11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected December 19th 2016: Cured! Viral count: zero!!! 2018 viral count: still zero! Cured! | |