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US Moderator announces our drugs are ILLEGAL

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US Moderator announces our drugs are ILLEGAL 8 years 2 months ago #9960

It seems Lucinda Porter's HCV Advocate article promoting generics will not (can not) be discussed on Delphi according to the moderator.
Imagine that....
M
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: Gaj, re_roll, fitz

US Moderator announces our drugs are ILLEGAL 8 years 2 months ago #9963

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Very thoughtful of her to reinforce your comment about where it was hosted so members/visitors to her site would know how to find it to read though!

:lol: :silly: :lol:
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: mgalbrai, re_roll, fitz

US Moderator announces our drugs are ILLEGAL 8 years 2 months ago #9965

I doubt Mensa will be sending her an invitation any time soon....
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: fitz

US Moderator announces our drugs are ILLEGAL 8 years 2 months ago #9967

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M....340 hits and going strong.
G....They(hep central people and her) might be seeing the writing on the wall
that generics will be available sooner than later......e.
contracted Gen 1a in the 70's, dx in 2007...ast 27 to 35...alt 43 to 96...vl 1.2 mil to 8.6 mil.
biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
tx started 2/11/16.... lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
28 days later.............lab results 3/9/16 ast 21, alt 21, vl UND
56 days later.............lab results 4/6/16 ast 20, alt 22, vl UND
139 days later...........lab results 6/29/16 ast 28, alt 30, vl UND...EOT
SVR24
The following user(s) said Thank You: mgalbrai, Gaj, fitz

US Moderator announces our drugs are ILLEGAL 8 years 2 months ago #9985

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I'm not surprised, that place is a monument to ignorance.

So far the forbidden word list I have been advised of includes the following words:
"generic(s)" , "other countries", "India", "China", "Bangladesh", "international", "buyers" , "club", "Freeman".

The acceptable words are "God", "Jesus", "Gilead", "Pray", "Wait", and "Hugs".
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
The following user(s) said Thank You: mgalbrai, Lynne-Francis-facebook, Tina-Hill-facebook, re_roll, Hazel, CC2B, fitz

US Moderator announces our drugs are ILLEGAL 8 years 2 months ago #9987

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2b wrote: I'm not surprised, that place is a monument to ignorance.

So far the forbidden word list I have been advised of includes the following words:
"generic(s)" , "other countries", "India", "China", "Bangladesh", "international", "buyers" , "club", "Freeman".

The acceptable words are "God", "Jesus", "Gilead", "Pray", "Wait", and "Hugs".


Thx for the laugh for today. :lol: :+1:
contracted Gen 1a in the 70's, dx in 2007...ast 27 to 35...alt 43 to 96...vl 1.2 mil to 8.6 mil.
biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
tx started 2/11/16.... lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
28 days later.............lab results 3/9/16 ast 21, alt 21, vl UND
56 days later.............lab results 4/6/16 ast 20, alt 22, vl UND
139 days later...........lab results 6/29/16 ast 28, alt 30, vl UND...EOT
SVR24
The following user(s) said Thank You: mgalbrai, Tina-Hill-facebook, Hazel, fitz

US Moderator announces our drugs are ILLEGAL 8 years 2 months ago #10001

I just hope the REDEMPTION link can help some people.
M
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: Gaj, fitz

US Moderator announces our drugs are ILLEGAL 8 years 2 months ago #10003

You got up the Redemption Link in the pit of Joy? and its still there!

Nice work Mike :+1:

saw your post in the Hep Forums and from the looks of things its getting a lot of attention.
SVR 24
The following user(s) said Thank You: mgalbrai, Gaj, fitz

US Moderator announces our drugs are ILLEGAL 8 years 2 months ago #10076

Looks like Joy zapped volleybosses' entire thread...
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: fitz

US Moderator announces our drugs are ILLEGAL 8 years 2 months ago #10078

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Well,VB, at least it lasted 12 days and received some exposure. Probability says
you saved at least one person which was your goal. I must say that was fun though.....e.
contracted Gen 1a in the 70's, dx in 2007...ast 27 to 35...alt 43 to 96...vl 1.2 mil to 8.6 mil.
biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
tx started 2/11/16.... lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
28 days later.............lab results 3/9/16 ast 21, alt 21, vl UND
56 days later.............lab results 4/6/16 ast 20, alt 22, vl UND
139 days later...........lab results 6/29/16 ast 28, alt 30, vl UND...EOT
SVR24
The following user(s) said Thank You: mgalbrai, fitz

US Moderator announces our drugs are ILLEGAL 8 years 2 months ago #10081

Thanks R,
I plan to follow up with whoever runs that whole show. I will ask them why a link to a government registered clinical trial was censored. I am contacting NPR if I don't get a satisfactory explanation.
This is simply unacceptable.
M
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: Tina-Hill-facebook, re_roll, CC2B, fitz

US Moderator announces our drugs are ILLEGAL 8 years 2 months ago #10093

What a shame it was removed - total ignorance on their behalf. I like your plan Mike something needs to be done about it. Total censorship and withholding of legitimate of FDA approved information about the Redemption Trial to people who need that medication to live is abhorrent.
SVR 24
The following user(s) said Thank You: mgalbrai, Gaj, fitz

US Moderator announces our drugs are ILLEGAL 8 years 2 months ago #10096

Yes. Two people contacted me who saw the REDEMPTION link there.
The woman should be ashamed of herself.
I sent the central Delphi people an email today. I hope they respond. Censoring sanctioned clinical trial information should not be tolerated.
Lives are at stake here.
One way or another I am going to get an answer from them or go to NPR with the story.
Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: Tina-Hill-facebook, Hazel, fitz

US Moderator announces our drugs are ILLEGAL 8 years 2 months ago #10097

I think she is scared of someone stealing her thunder, to me it comes across that Joy takes pleasure in having these vulnerable, ill people perceiving her as some kind a saviour and to be saved you must first worship her.

This woman has some serious issues and Dephi Forums need to be advised of misconduct (to put it mildly) that is happening on their platform.
SVR 24
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US Moderator announces our drugs are ILLEGAL 8 years 2 months ago #10101

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Flat out, bible thumping nuts; Gilead/Jesus/God saved her and she will HEAR NO BLASPHEMY!
way to go Mike, it just aint right.

If she allowed the info and then just spouted off her uninformed opinion, that would be stupid, but ok, But to totally censor legitimate info because of her own bizarre fears and prejudices is way out of line.
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
The following user(s) said Thank You: mgalbrai, fitz
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