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Hello to all my future friends 7 years 9 months ago #19320
Welcome Semisweet. I remember Day One - it's fabulous! Coral G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 | |
Hello to all my future friends 7 years 9 months ago #19326
| Hello Semisweet and welcome, Day one is a great feeling. All my best wishes for a good outcome. G3a. Probably infected 40 years ago. Diagnosed July 2015 7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa. Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16 VL UND @ 4 wks, 12 wks EOT 6/7/16 SVR 12 SVR 24 PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc |
Hello to all my future friends 7 years 9 months ago #19327
Genotype 1a Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby | |
Hello to all my future friends 7 years 9 months ago #19341
G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!! Started tx 6/1/16 with Harvoni. 12 Month Labs= UND | |
Hello to all my future friends 7 years 9 months ago #19368
Thanks to all and glad to meet you!!! I thought I'd be posting on my first day. but I found myself needing some quiet time to really take it in - what this means, how long I've been waiting, and how I had resigned myself to not getting treatment..... and how scary that was. And now that it's here it seems too good to be true! Surreal.... I'm about to take my third one. So far, no sidesl, so different from the IFN/Riba poison. I'm elated, and in awe of this tx! | |
Hello to all my future friends 7 years 9 months ago #19419
| Well! Hello semisweet! Love that monicker See what happens ... a guy takes a couple of days off (away from this crazy world of electronic gadgets and such) and up pops another American Truly happy you discovered this place. You'll find you can't stay away. It's my home away from home. As you've already seen, they treat ya like family here and EVERYONE has a story. Thanks for sharing some of yours with us. Congrats on starting tx and TG for Dr. James and Fixhepc indeed! I know like the rest of us here, you'll want to spread the word to those of us whose "grains of rice" had to come from that rice bowl, because Gilead was too greedy to share from theirs. Looking forward to following your progress sis Matt GT1a; Got it some time in the 70's; Diagnosed @1976 Tx naive METAVIR: A2-F2 SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000 3 weeks after SOT: AST 27 ALT 31 VL 138 Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24 Hep C RNA "NOT DETECTED" AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24! |
Hello to all my future friends 7 years 9 months ago #19474
Welcome SS and best wishes for a quick UND and SVR. Keep us updated You can add your stats under your profile. Best wishes for few or no sides! GT2b diagnosed 10/2015 since: unknown 11/20/15 VL= 214,070 12/4/15 ALT=18 AST= 24 1/16/16 started sof/dac 2/13/16 @4wks VL=UND ALT=13 AST=22 3/12/16 @8wks VL=UND ALT=10 AST=18 4/9/16 EOT VL=UND ALT=11 AST=19 9/23/16 SVR24 ALT=11 AST=22 | |
Hello to all my future friends 7 years 9 months ago #19589
Hi Matt-Kenney and CCB2! Sending virtual hugs! I'm on day ten. I had a really hard workweek...I've been working four ten hour days with three days off, by choice. i don't know if it was from the meds, but I just couldn't fall asleep for hours, and also had the dreaded wake ups and couldn't get back to sleep. I was crushingly tired all week, especially my last day. i really don't know how I made it through. So, I'm changing to four nine hour days and a 1/2 day on Friday. I think that extra hour at night will help me wind down. I've felt better over the weekend (got in some good sleep). Waiting for my burst of energy!!! | |
Hello to all my future friends 7 years 9 months ago #19592
Hey Semisweet I'm not a doctor but I do believe people who have gone through the previous regimes of Tx have a harder time of it initially. Your experience is certainly different to mine but hopefully the good bits will kick in for you very soon. Genotype 1a Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby | |
Hello to all my future friends 7 years 9 months ago #19595
Hi semisweet, Apparently insomnia is an issue for about 6% of patients while on Harvoni. fixhepc.com/forum/experts-corner/786-off...t-reports.html#12379 Hopefully for you like many others it will just be until you get over the novelty/excitement of commencing treatment. Giving yourself more time to wind down each night should help as you say (switch off the computer fixhepc.com/forum/experts-corner/598-how...y-insomnia.html#8330 G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
Hello to all my future friends 7 years 9 months ago #19604
Hi Semisweet, Sounds like what my doc calls "broken sleep". Work you ass off, go to bed and sleep great for a couple of hours and wake up at 2:00 am with a tired body and a mind in overdrive and toss and turn until its almost time to get up and drop off to sleep again. It was hell for me and left me tired, listless and cranky. About every fourth night I would simply pass out from exhaustion. This started happening to me during the stressful fight for treatment and continued until about week 3 or 4, when my first great labs came back. I have no tips on how to deal with it. I would say relax, but that sounds stupid. Age, for me, is another factor. I just don't sleep as well as I used to.. The days get longer. The years get shorter. The sleep comes harder. Then there's the peeing..... m This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
Hello to all my future friends 7 years 9 months ago #19661
| Yup semisweet, What mgalbrai said ... GT1a; Got it some time in the 70's; Diagnosed @1976 Tx naive METAVIR: A2-F2 SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000 3 weeks after SOT: AST 27 ALT 31 VL 138 Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24 Hep C RNA "NOT DETECTED" AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24! |
Hello to all my future friends 7 years 8 months ago #20734
| Hi semisweet, I'm happy you are starting treatment. You will be fine, your energy level should increase! On your way to the cure! Gt 1a, F0, VL 6.5 million, AST 59, ALT 62 Started Twinvir 1/15/16 6 wk. labs VL UND, AST 27, ALT 20 EOT labs VL UND, AST 23, ALT 19 SVR 16, VL UND, AST 28, ALT 17 SVR 24 , VL UND, 10/8/16 SVR 125, VL UND, 9/22/18 SVR 230, VL UND, 10/3/20 |
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