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Hello from UK, need help please 7 years 1 month ago #873

  • Sirchinenge
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I've both Irish and UK passports:) Born in London spent my early years in Ireland.
Sob/Dac from Oct 29 2015
Geno 1b
Fiberscan 9.9 Pre treatment
Fiberscan 7.4 week 10
VL 1.3 million pre treatment
Week 2.5 VL 96
Week 5.5 VL 17
Week 10 VL UD
SVR 3 UD
SVR 16 UD
Cured:
All liver functions in normal ranges.

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Last edit: by Sirchinenge.

Hello from UK, need help please 7 years 1 month ago #897

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Okay I'm confused now, yeah was talking about the random post further up and referring to Sirchinenge. But Jolie we're happy to take you also and LG you might us well come and get a suntan lol Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.

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Hello from UK, need help please 7 years 1 month ago #920

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Welcome Muir,

Yes, Dr Freeman can write you a script so the buyers club can import on your behalf
unless you plan on flying into Australia you will still need a script from a Dr in the UK.

Any questions feel free to ask.
Sob/Dac from Oct 29 2015
Geno 1b
Fiberscan 9.9 Pre treatment
Fiberscan 7.4 week 10
VL 1.3 million pre treatment
Week 2.5 VL 96
Week 5.5 VL 17
Week 10 VL UD
SVR 3 UD
SVR 16 UD
Cured:
All liver functions in normal ranges.

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Hello from UK, need help please 7 years 1 month ago #990

Em, Would love to come and get a sun tan and meet you good people, but alas, responsibilities, maybe oneday.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: Life

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Hello from UK, need help please 7 years 1 month ago #1242

I had a 30 min video appointment with Dr Freeman last week, which was extremely helpful. Clearly the situation with the Buyers Club is very new, and evolving all the time. I'm hopeful that I will be able to get 12 weeks of Sof/Dac through the Club in the near future, but I'm not counting any chickens.
The attitude of my Consultant & my Doctor disappointed me, when I mentioned generics they both reacted as if there was a really bad smell...more interested in doing things by the book than in getting me well.
In the meantime I'm avidly following all those who are doing Sof/Dac treatment on the 'Nadia's Journey' thread.
Best wishes to all.
Born 1954, male
Genotype: 3a
Infected: early 80s
Diagnosed: 2013
Treatment: 24 weeks Int/Riba 2014 relapsed,
currently waiting for Sof/Int/Riba treatment (12 weeks) on NHS
Fibroscan: 10.3-F3 in 2/2014
Latest Viral Load: 52000 in 6/2015
ALT, ALP & AFP all in normal range 6/2015

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Hello from UK, need help please 7 years 1 month ago #1255

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Welcome MM, glad you found us and our good Dr! Well if you go buyers club you can do 2 things, come and get it or run the UK customs scenerio however the odds would be pretty good of getting it through. I'm sure you've been lurking about and will notice lots of UK folk in and about here. All awesome human beings wanting the same thing, a cure for this disease and to make it available to the masses. Emi
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.
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Hello from UK, need help please 7 years 1 month ago #1331

OK - So yesterday NICE approved Harvoni, DAC and the AbbVie. For restricted use on NHS England.

However, Nothing will be implemented for 3 months, rumour has it Feb/March 2016.

The details for GT3 are very vague and they have not addressed this GT properly.

Many hospitals have been devolved from central Gvt and are hugely in debt and will not have the budget.

There will be waiting lists and post-code lottery.

For GT1 Tx naive only 8 weeks Harvoni.
and not all treatments the EASL recommended duration.s.

As a treatment 'guidance' (but I believe not legally in the small print) We should all have access to the approvals as listed by NICE and they have 3 months to implement this according to the HepC Trust

A pleasing step in the right direction, but maybe not all it's cracked up to be in the headlines.

We watch, and wait? The reality for many is one - two years away.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: Alsdad, Jolie

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Last edit: by LondonGirl.

Hello from UK, need help please 7 years 1 month ago #1332

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The reality for most sufferers at the moment in the UK is no DAA-only treatment until they have significant liver damage. That's not going to change unless the price of new meds comes down drastically.

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