emo the patient poodle

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6 years 5 months ago #12604

Hi Mike ThankYou
always so polite, ive noticed you are a Global Moderator these days, couldnt happen to a nicer guy. How we have grown in 6 short months. So much has happened and changed for the better. Love your work Jill


Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 ... waiting for svr 24
I now have SVR 36 weeks.
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6 years 5 months ago #12624

Hi Poodle, I am Ariel also in Victoria, based just out of Melbourne but my clinic is in Melbourne. I am currently week 9 almost done and have just read your thread. I wish you well on your double course, and hope for the very best outcome. I agree, best to be damned safe than regretful in future, I like your work. Nice to meet you here, thanks for your posts, Regards and all the best from Ariel


Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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6 years 5 months ago #12653

Hi poodle, that's great to hear you have worked out the issue and everything has settled down. 4 weeks! Not long now. Wishing you all the best with the rest of your Tx and beyond :)


3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx - ALT 71 AST 40 V/L 9 million
Day 11 - ALT 12 AST 15
4 week - LFTs normal - detected (same sample sent for v/l showed undetected) :/
6 week - UND
12 week EOT - UND
SVR4
SVR12
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6 years 5 months ago #12655

Thank you Ariel and Jaz. Nice to have your support. Yes I need to be careful with aspro. Iam probably over treating myself with the double dose, but I dont want to look back and wonder what if. For many people if they have up to date tests they will know exactly if 12 weeks is enough or not. I assume Ariel you are a buyers club purchase , and not taking meds from Melb hospital. Good to see the gp2u is fast tracking that process as well. Makes me wonder how quickly the free meds will last before the funding runs out. Hi Jaz how far are you on the journey ? Thanks and good luck to you both. Jill


Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 ... waiting for svr 24
I now have SVR 36 weeks.
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6 years 5 months ago #12677

Hi Jill the poodle :)
Yup you got it I am on Buyers Club Sof/led around about week 9 now not long to go on a 12 week course. Very privileged to afford these meds which have done the trick I was UND around day 32 or so blood collection reported at Day 40 by my GP. I'm off to the liver clinic this morning so driving up to Melbourne ergh early start and thick traffic.
Agree with you about the PBS meds I was told verbally not much would be given out just last week over the phone by the hospital. Hopefully people who were advancing liver disease got in by now.
Have a great weekend good the aspirin thingy got sorted
Yes look forward not back I hear ya on that one #love
Ariel x


Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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6 years 5 months ago #12752

Hi Ariel Hope the trip to Melbourne went well. I was with royal melbourne hospital but didnt bother going back to them for monitoring as the response from them was not to take buyers club medication. That was 6 months ago. I have felt safe in the care of gp2u and Saint Freeman.I heard today from a friend who i tried to encourage into buyers club, but i couldnt convince that she received 24 weeks of the real deal harvoni. Good on her, but cost the govt 120 k and 6 months longer with the virus. So some people are getting it. Its all very absurd really when the same ingredients are only $4000 for the 24 weeks. Mad that the money is being spent so exclusivly on a few when many could be included without the waiting. I wonder how are they going to tell people theres a cue.?........anyway. Hope your weekend is fabulous. Best wishes jill


Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 ... waiting for svr 24
I now have SVR 36 weeks.
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6 years 5 months ago #12757

Hey Jill yes the hospital was a loooong wait for me I wrote up on my thread it's called "Ariel takes the plunge"
Re giving out scripts I watched patients being pushed back to later appointments as I sat for a good hour in clinic also no obvious people's on tx. I sat waiting for the nurse to "find a doctor for me" in a room for a good while. That went well but to note, the doctors who is usually there has gone overseas at this time hmmmm. I was also made aware not many people wear on tx and well I bought mine so I guess not many are available on PBS who knows how triage works!
I was told same verbally a week earlier as a response to my comment on the phone to receptionist "I bet you're flat out now its March 1" no she said its very expensive and no we are not etc .....
I basically started tx before I told them and presented on tx "assuming" I would be seen after an initial phone call to the receptionist to say same went pear shaped back a few months ago, like you I wasn't sure if a public hospital would see me using generics. The first consult on generics was about a 1/10 and the second about a 2/10 lol.
Saw a different gastro on Friday and she was lovely but clearly relieved I was UND. I am sure they are getting a lot of agro people wanting meds because I asked straight up. I'm so glad I ignored the gift wrapped speech by Minister Ley and after the knock back in Dec 1 ordered my script and meds. By the time her announcement was ready I was on tx. It irks me that I know some very unwell people who believe they will be treated but no nothing yet.
I agree about costing us time waiting around with the virus it's like holding a bomb with the fuse lit but the fuse is of unknown length. The virus doesn't just enter your body it enters every part of life. I'm so glad I landed here.
My bloods and all are being done by my GP and I am just using the hospital so I have the "specialist" contact as the original script came from interstate, and we have to have a specialist.
Well lovely to talk re hospitals and tx and the rollout
Almost into week 10 for me and hopeful for a successful EOT and SVR. As a peginf relapser I will do a two week post tx bloods just to watch for any signs of hidden resistance that hasn't shown but hoping for the best of course. Been UND since around day 32 on these but of course time will always tell.
Have a great day thanks for touching base
Hoping your tx is chugging along and you have the extra nukes sorted Jill
Xxx Ariel


Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
Last Edit: 6 years 2 weeks ago by Ariel. Reason: My privacy has been breached outside this forum
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6 years 2 months ago #17089

Hey Jill
I have been thinking of you and wondering how your Tx is faring. I hope that you are travelling through ok #flower


gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
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6 years 2 months ago #17265

Hi Pat Thankyou for asking about me. I have been well despite a couple of set backs. I had a very bad flu which developed into a bit of pleurisy for about a month. When I was on the verge of recovering I fell over and hurt my right leg quite badly. Only in the past couple of days Ive put these events behind me. My last medication was April 9th. 6 months treatment. I decided not to do 4 week testing but to hold out for the all important 12 week SVR.which should be 2nd July. However I understand our forum wont be avaliable to us Aussies after the 15th June. So I wont be able to post my results. Iam thinking and feeling pretty good though and Iam confident It will be favorable results. My energy is very good despite being sick and injured for the past 2 months. At a dentist appointment recently the dentist and nurse both remarked how improved my gum health was, they did not know about my recent medication so their coments weren't influenced by new information. One of the many benefits of being virus free is better immune , better gum health. I also recently dug a 20 meter trench to connect a new shed to the rainwater storage system so I can say all is well. Many best wishes to you and forum friends Jill


Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 ... waiting for svr 24
I now have SVR 36 weeks.
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6 years 2 months ago #17268

Hi poodle,

Glad to hear you are on the mend and feeling well. Wishing you SVR12 in early July.

I've sent you a PM. :)


G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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6 years 2 months ago #17281

Hi Jill, I've seen you post elsewhere, but happy to see your blog here. Sounds like you've weathered your recent setbacks well and are moving forward to srv12.
Best to you on that and hoping to maybe hear from you banned Aussies in some way after your banishment begins :( :+1: :+1:

Matt


GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
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6 years 2 months ago #17309

Poodle
Wow you can dig a 20mt trench! that is impressive, so glad to hear from you and read your positive post #love #flower
I wish you all my very best for SVR12
cheers


gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
Last Edit: 6 years 2 months ago by pat1.
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6 years 3 weeks ago #19757

Hi Everyone
Happy Grateful and Relieved to announce I can join the lucky group of SVR 12.
Many thanks to all who care so much and contribute to the forum with such diligence , always informative and eager to help. Thankyou James Freeman and all at fixhepc for your world class care. Jill xxx


Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 ... waiting for svr 24
I now have SVR 36 weeks.
The following user(s) said Thank You: LondonGirl, coral, Ariel, Gaj, Hieupham, Fara, Matt-Kenney-google, GT2, fitz

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6 years 3 weeks ago #19758

Yay Poodle :cheer: Let me be the first to congratulate you - So delighted to read your most excellent news #flower #love


GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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6 years 3 weeks ago #19759

#woohoo! Congratulations Jill!

It's party time for Poodle!


#dance


G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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