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Ariel takes the Plunge 8 years 4 months ago #6586
Well the day is almost here my meds arrive shortly thank you to those who have affirmed this choice to take my own life into my own hands and with the fantastic work by James and his team here, the vibe, the understanding of the anxiety of a relapser, I feel like I have landed in the right place..not much support out here in the wilds so I will defs blog my tx story, I hope to inspire others to take this important decision. I am Gen 1a, have a low viral load, F0 so a good little liver still in the ol bod, had a rotten time on intfn/ribva, like many so let's not go there done and dusted and all....I am starting this today seeing it is New year. Already feeling the love here. Love without boundaries is my phrase for the New Year. I hope to achieve my SVR and to be free as a result. Love ya all! cannot wait to post my first update into tx and thanks again to the FixHepC peeps for this all of it. Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
Ariel takes the Plunge 8 years 4 months ago #6588
There is no such thing as failure. There is only low aim. Props for being your own messiah and saving yourself. Wishing you all the best, Ariel. Huon Valley, Tasmania Hep C+ since 1980s Genotype 1b F3/4 VL 480,000 Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015 UND at 4 weeks Finished treatment 19 November 2015 12 February 2016 UND SVR12 | |
Ariel takes the Plunge 8 years 4 months ago #6589
Great stuff, Ariel...congrats on making the decision to get proactive and take your treatment into your own hands. Looks like we will be tag-teaming on this huh. I am GT1a as well and like you (both fortunately and amazingly enough), have managed to stay at F0 over the years...and despite the new good news re the PBS I think those in relative good health like us will be down the public queue. All the more reason to act to shoot for SVR before our status worsens, IMO! Strangely enough I also have PTSD, will be interesting to see if the hep had any influence on that as tx progresses. Look forward to following your progress GT1a since 1988, diagnosed 1990 F0, tx naive VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9 Started Mesochem sof/dac 12 weeks 01/01/2016 11/02/2016 - 6 weeks UNDETECTED AST 26 ALT 26 The following user(s) said Thank You: Ariel | |
Ariel takes the Plunge 8 years 4 months ago #6590
| All the best Ariel........looking forward to seeing your test results down the track. Lives in Bendigo, Victoria No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal Insomnia the only side effect Undetected at 4 weeks SVR4 - undetected - all bloods good and GP very happy SVR12 bloods to be done at end of April 2016 SVR12 - undetected!!! The following user(s) said Thank You: Ariel |
Ariel takes the Plunge 8 years 4 months ago #6599
Hi Ariel, Want to wish you luck, you'll be fine, how exciting for you. Please keep posting. xo J the young dragon slayer is: HepC 1a since birth Male aged 15 VL 2000000 Started Twinvir/ 10-11-15-then Sof/led. NO sides so far ! after one week VL : 37 after 4 wks VL : UND ! EOT 2/2/16 UND.! 4 wks. post tx results....pending.... 7/3/16 VL result : 4 week post tx: SVR ! 12 weeks SVR ! 24 wks SVR yeeaa!! The following user(s) said Thank You: Ariel | |
Ariel takes the Plunge 8 years 4 months ago #6601
| You will be ok Ariel most people seem to cruise through the treatment without too many issues, the nerve wracking bit is waiting for them to arrive but shouldn't be much longer. Two time relapser. SVR 4 achieved 12/16 at last SVR 12 achieved 22/02/2017 The Bastard has been defeated GT 3 - about 28 yrs with HCV The following user(s) said Thank You: Ariel |
Ariel takes the Plunge 8 years 4 months ago #6621
| One blessing regarding this horrible situation we find ourselves in, is the wonderful people we meet along the path GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC The following user(s) said Thank You: Ariel |
Ariel takes the Plunge 8 years 4 months ago #6630
Hi Ariel the mermaid Wish you good luck and let us know your journey! With these new medicines it will be an easy one. HCV since I don't know. Diagnosed in 2010. GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive, started 12 wks Twinvir on 06.12.2015. Feeling great and grateful virus not detected 06.02.2016 & SVR24 This email address is being protected from spambots. You need JavaScript enabled to view it. The following user(s) said Thank You: Ariel | |
Ariel takes the Plunge 8 years 4 months ago #6632
Hi London Girl, You are almost there, beginnig of the treatment. I am sure it will be an easy one for you too. The only side effect I noticed is that I am gaining weight! I must pay attention to what and how I eat! HCV since I don't know. Diagnosed in 2010. GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive, started 12 wks Twinvir on 06.12.2015. Feeling great and grateful virus not detected 06.02.2016 & SVR24 This email address is being protected from spambots. You need JavaScript enabled to view it. The following user(s) said Thank You: LondonGirl, Ariel | |
Ariel takes the Plunge 8 years 4 months ago #6640
hi Ariel, just wanted to wish you all the best & symptoms-free tx, What a fantastic way to start New Year, the year to get out of hcv prison & be free for so many here. I too was a relapser on the old tx, please don't forget that it was the old toxic tx that has failed us, not the other way round, we did not fail, we fought the battle as advised. The new DAA tx is just not comparable with the old tx & with hardly any fibrosis at all, you'll be fine, Congratulations of taking charge of your own health & life, Geno 3, Fibro 8.7 pKA, tx experinced in 2005 - Peg/Riba, relapsed. Started tx 1/12/2015 with Indian Sofo & Chinese Dac. 5 weeks result all normal, ALT 18 - down from ALT 73 at the start of tx. 5 weeks HCV PCR RNA - UND. - down from 2 ML 9 weeks HCV PCR RNA - UND. The following user(s) said Thank You: Ariel | |
Ariel takes the Plunge 8 years 4 months ago #6642
Victorious warriors win first and then go to war, while defeated warriors go to war first and then seek to win Sun Tzu, The Art of War This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
Ariel takes the Plunge 8 years 4 months ago #6643
Ariel - Good Luck! Lots of support here! Debs X Geno 1a, F1, tx naive, had it 35 yrs. Started Cipla HepcvirL on 12/01/16 Starting VL 490,000 At 16 days in <15 4 week results: UND 8 week results: UND 5 weeks EOT alt 25 SVR 15 - Not Detected 6 months EOT - Not Detected The following user(s) said Thank You: Ariel | |
Ariel takes the Plunge 8 years 4 months ago #6668
Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
Ariel takes the Plunge 8 years 3 months ago #7575
Hey Ariel So good that you came over to the bright side. Best of luck to you with tx and sx. You will be okay and be UND and SVR b4 you know it. Lots em Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016. The following user(s) said Thank You: Ariel | |
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