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'In which LG seeks Redemption & makes new friends' 8 years 2 months ago #10301
| I should add lower back pain and sadness says kidney problems to me. Anger is liver and grief is kidneys. I have heard hep can have damaging effects on the kidneys as well. Even if your kidney functions look okay there can still be issues...I know this from personal experience and I am sure that the meds are a bit taxing on the kidneys. F49HepC25ysGT1a "mild" Harvoni 12 wks Brisbane, Australia |
'In which LG seeks Redemption & makes new friends' 8 years 2 months ago #10302
| My bad, grief is lungs and fear is kidneys. But still...once I am done tx I am going to be giving my kidneys some major tlc. F49HepC25ysGT1a "mild" Harvoni 12 wks Brisbane, Australia The following user(s) said Thank You: LondonGirl, Ariel |
'In which LG seeks Redemption & makes new friends' 8 years 2 months ago #10303
Thanks soooooooo much for this post LG I'M EXACTLY THE SAME ! So my poop yep tick same (agree not the most ladylike topic more Benny Hill than my usual choice of letting off some hot air My bones are hurting too and in the exact same body area, lower back hips and radiating to the knees. We're about four days apart in tx and seriously your blog is like my crystal ball. I'm so hearing you The songs are triggers too I am avoiding things that I associated with the time that I might have contracted this horrible illness, that's tricky because I am not really sure how I got it, so all sorts of stupid thoughts are being fielded off by my conscious brain. Also, I am suddenly having little panic flashes eg, I went to the hysterical movie called "Sisters" last night and without warning a path report sheet flashed into my conscious from gawd knows where!!!! This must all be part of our cleansing I can't rationalise this any other way See how awesome your bloodwork is yet this unwelcome fake depressing niggle is popping up All I can add to the support here is that I feel like hugging you and if we were closer just basically running amok down the beach and into the sea and going totally stir crazy together to let it all out bugger what the world thinks I actually logged in to seek out anything about sore bones and went to catch up with you and BAMMM read what was like a mirror Well hunny sending you big love from hot sunny Oz today One thing I know about you is you certainly are not in any pity party you are a bright star and I totally think that these sx are chemical and also may well be this virus being slain Hugs Ariel Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
'In which LG seeks Redemption & makes new friends' 8 years 2 months ago #10307
| Thank-you Flying Fox Just looking up Pysyllium capsules Ingredients : Psyllium Husks, Capsule Shell (Gelatine), Anti-Caking Agents (Magnesium Stearate, Silicon Dioxide). Interesting . Will read more Edit : Pysllium : www.healthline.com/health/psyllium-health-benefits#1 Sounding interesting, but not sure re the dietry benefits, having just got some weight on Also, there's a comment below which says: "Do not take it with any supplements or any medication because they will also be trapped and eliminated by the psyllium fiber" So I'm not really sure about that one while on tx. Thank-you for the info though, interesting GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
'In which LG seeks Redemption & makes new friends' 8 years 2 months ago #10310
London girl your tests are great, so happy for you and thankyou for the post. Sharing helps everyone. I find walking is the best thing for back pain and sadness. If you get an opportunity watch a movie called The Way. Its about the Camino de Santiago in Spain. My daughter is walking it in June so I was interested in the movie. Might even consider walking it myself! Probably a good idea to take it at the opposite time of day to the meds, just to make sure it doesn't interfere with absorption. - good point Flying Fox EOT UNDETECTED Week 8 all bloods within normal limits Week 4 Undetected 2016 - 28 January started Harvoni & Riba treatment VL pretreatment 639,000 alt- 77 2015 fibroscan - 6.6 2 x non responder peg interferon & riba geno 1a The following user(s) said Thank You: LondonGirl | |
'In which LG seeks Redemption & makes new friends' 8 years 2 months ago #10311
| Ariel
Sounds wonderful
Yes and you know, that damn virus 'reaches the parts that others can't' (name that ad?) - No doubt including brain, heart and backside too Hope next week is more like the last few weeks and this recent purge deals with those little ******** quickly and efficiently for us both ! On the yogurt and fruit, back to the Magnesium as an after dinner treat GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
'In which LG seeks Redemption & makes new friends' 8 years 2 months ago #10312
| hey Magpie -
You are most very likely right, except it's dark, cold and extremely windy here - I need to walk, hopefully tomorrow
Ooh, going to look that up now, many thanks. I have read quite a few books on El camino. It's one tough 'walk' ! Good for your daughter, I have always wanted to do this and some friends of mine are doing it. I have to say though, there's no way I could manage that right now. That's one helluva trip in more was than leg ache Thanks for all your responses ladies, they are much appreciated and aso, I love hearing from you all GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC The following user(s) said Thank You: Ariel |
'In which LG seeks Redemption & makes new friends' 8 years 2 months ago #10320
| Yes maybe the psyllium will interfere...I'd like to get a definite answer on that because I am pretty reliant on it at the moment. Another option might be to try soaking linseeds (flaxseeds) in water for a couple of hours and then just drink the juice. That works, and not by creating a jelly of fibre like the psyllium. I think we need to create a whole poop thread somewhere because I'm very interested to know if people found their digestive issues resolving after treatment. F49HepC25ysGT1a "mild" Harvoni 12 wks Brisbane, Australia The following user(s) said Thank You: LondonGirl |
'In which LG seeks Redemption & makes new friends' 8 years 2 months ago #10321
|
Great idea FF, we could call it 'The Poop Scoop ' but seriously, you read so much conflicting advise re these issues, it may well be helpful and good 'fodder' (sorry!) for research. We don't seem to get much help from Drs re this, they all see to go extremely quiet on this subject for some reason. I would also like to know if these issues improve after treatment, I sincerely hope that is the case. GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC The following user(s) said Thank You: Ariel, flyingfox66 |
'In which LG seeks Redemption & makes new friends' 8 years 2 months ago #10322
| I guess they go quiet because they don't have a clue. Hep C sufferers haven't been listened to, and their experiences are not officially recorded or validated. It really is only since I found this forum and the Facebook and started reading other peoples experiences that I figured out just how many of the problems I was having was common to us all. Of course there are other factors to consider. Modern diets are pretty dodgy. Everyone feels better when they eliminate refined carbs, not just heppers. But I believe the virus uses up our credit points, on the health front, so we are especially sensitive to environmental stresses and strains. F49HepC25ysGT1a "mild" Harvoni 12 wks Brisbane, Australia The following user(s) said Thank You: LondonGirl |
'In which LG seeks Redemption & makes new friends' 8 years 2 months ago #10340
Great Movie Magpie, it was very profound - although some could watch it and not take in the soul-searching aspects - it was such a beautiful and honourable journey the father took. It made me wish I could go and do it! It was reminiscent of the movie, 'Eat, Pray, Love,' taking a physical journey in order to make a spiritual one. Congrats LG on your latest blood results Well LG, I could quote you again and Debs and Ariel - OMG! You described EXACTLY how I'm feeling. Hey, if ever you want to discuss GI probs (gotta love autocorrect trying to put the word 'probe' after GI Alternating diarrhoea, constipation and pale 'floating' stools I take Inner Health Probiotics daily to help with these issues. Constipation - I eat extra fibre e.g. fruit, greens; if that fails I take 'Super Greens', tablets - they contain Spirulina, Chlorella, Barley Grass and Wheat Grass - also comes in powder forms to mix in smoothies etc. Great source of protein and heaps of vitamins, excellent for vegans. I'm not taking it daily, only for constipation, 3-4 tablets and plenty of water. Of course you could try the old remedy of drinking Epsom Salts in water but only if you can control the gag reflex! I have continued with the Magnesium through Tx because the lower back pain, muscle spasms, leg cramps at night etc., are all improved by taking it. When I've not had enough money and gone without I really notice these symptoms hit back. As you say, travelling about and eating out can mess you up, so try and take probiotics with you. Many have to be kept in the fridge but there are varieties for travelling. I'm also finding walking is very therapeutic lately. I've noticed I'm able to walk 2x p/d now, whereas previously I was in so much pain and fatigue in the am, I couldn't do a walk. I had a massive meltdown yesterday and was stressed out and crying - haven't been this bad for awhile, all my emotional stuff catching up with me - so, I stopped what I was doing and took my son and our dog off. Even though it was wild weather, strong gusty winds and spitting rain, we've had storms on and off for 1 1/2 weeks now. Wow, it was so cleansing and emotionally I was a lot calmer when I got back. Totally weird because I HATE the Wind - it usually makes me very cranky and irritable. Yes, things are changing within...a lot of soul-searching, reassessing my life, reviewing regrets, trying to just 'let shit go'! It is hard there's a lot to forgive and I'm really beating myself up with a lot of 'what ifs.' It is a grieving process, finally having a chance to be virus free and 'healed' and looking at how its affected my life - 35 years having this. I feel so very isolated, abandoned - my family and friends back 'home', haven't contacted me to see how I'm doing - and very alone on this journey. It still amazes me how no-one wants to talk about this 'virus' and they'd rather ignore me than confront it. As I've said before I couldn't do this without the support and opportunity to vent anything and everything here and not 'feel' judged. Thank you all and I feel so much better knowing others are feeling the same - although I don't mean I'm glad others are feeling alone and depressed etc Lots of QLD Australia ☀️ G3a HCV 35 yrs Tx naive Started Sof/Dac 13/01/16 Dec '15 AST 70 ALT 89 GGT 124 Fibroscore 8.5 F1-F2 13 Feb'16 VL UND AST 24 ALT 26 GGT 50H | |
'In which LG seeks Redemption & makes new friends' 8 years 2 months ago #10349
Hi Arial, I am also going through self examination and cathartic purges of relationships that were less than ideal, my mood is easily triggered by small things which take me to significant life events that I thought I had dealt with. Maybe having a second chance at being healthy for while made me feel like this too. One of the few privileges having had this terrible virus has bestowed on me (us?). I am sure you will come through your period of self examination liking what you see. Yours J. GT3a 1990 Failed Inter 1998, comb in 2000. HCC 2012 Started 24/52 Sof/Dac 27th October 2015. 1. Bloods 2 October 2015: AST - 165 (20-40), ALT - 265 (5-40), GGT 189 (5-50) 2, Bloods 20 November 2015: ALT etc normal; VL 19 3. Bloods 8 January 2016: AST - 40, ALT - 59, GGT 48 VL RNA UND 4. EOT 12 April 2016 - blood tests: all is well, CT scan: okay 5. AFP 11 June 2016: 4 ref< 11 6. VL July 2016: DET 7. Oct16 start treat - June17 UND 8. Jun 18, lfts okay, platelets a bit low. The following user(s) said Thank You: Ariel | |
'In which LG seeks Redemption & makes new friends' 8 years 2 months ago #10357
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FFox, In a word 'Yep' - It's discrimination, the way I see it.
Getting this lined up to watch now Magpie
There's another one for my list, thanks Chejai. I am such a fussy movie fan, preferring Independent, but you do get the occasional good 'blockbuster'. Thanks for your good wishes re bloods too. My instincts are, the med blew away the majority of 'easy' ones and now they're fighting the stubborn ones and I a suffering sx more as a consequence. Also meds building up tiny me. Have woken up sneezing, but not a cold, heavy eyes. sinus' head feels ' full of gunk' this morning. Going for a brisk, breezy walk after watching this film. (I also hate wind!)
Than-you for that Chejai, it's good to know I'm not alone, have never really suffered from bowel probs, but thinking maybe I have without knowing, a build up inside the bowel ....Either way, I don't like it much!
I know a medical herbalist with scientific degrees etc etc They say you shouldn't take Probiotics 'willy nilly' and you have to get the right ones, balance them correctly and for you as an individual and add with other things. They also do the poop test and send it to Germany for a thorough diagnostic. Think I'm going to go for this EOT. The Germans are so up on bowel and digestive function, apparently some even having 'see trough loos' so you can keep a eye on your poop!
Thank-you again, it seems a few of us, particularly the women (or maybe we discuss it more?) are going through this mid tx. I read a very interesting article today, saying depression can be brought about by an inflammation & inbalance in gut flora : "Chronic inflammation appears to be a significant underlying factor causing symptoms of depression" : ow.ly/XVwuF
GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
'In which LG seeks Redemption & makes new friends' 8 years 2 months ago #10361
" Have woken up sneezing, but not a cold" Now that you mention it LG - I have had the sneezes throughout, at any time of the day. It's not a cold and I don't get hay fever. Comes with intermittent watery runny nose. It's not something I ever had except on this DAA tx. So clock another side effect - sneezing. dt The following user(s) said Thank You: LondonGirl, Ariel | |
'In which LG seeks Redemption & makes new friends' 8 years 2 months ago #10362
Dt and LG Sinuses : tick agree here sniff sniff Lucky though it's been warm and I am close to the ocean so I just get in amongst it and that annoying fluey sx is controlled, but yep agree another sx glad you mentioned it Thankyou xxx bit of a club aren't we Thanks for the updates LG X Re movies bit of a score here, Monty Pythons Holy Grail is on TV! Big laughs Well back to the Knights ha! Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |