For anyone looking for info about Harvoni treatment and side-effects, there is the Harvoni Support Group page on Facebook. Many, many reports from people currently undergoing treatment, mainly in the U.S. It's a private group and you have to apply to join but well worth it. Good luck, Sean : )
Gt. : 1a. VL : 2m. Fibro : F1.
Dx : 2008.
Previous Tx : Squalamine : '08
Ozone Therapy : '09
Int. & Riba : '10
Sof. & Dac. since 9th Nov.'15
UND @ week 4
12 week SVR at end of April '16
Just don't tell them anything about generics or discuss anything other than being treated on Gilead's Harvoni.
I mentioned I was not on Harvoni but on Dak and was interested in Harvoni sides.
I got bumped straight off the site. So stay silent.
G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
Ledipasvir or Daclatasvir
7 years 11 months ago #874
hi londongirl,i am 57 and had hepc geno 1a for about 38 years f3 fibrosis at baseline.i did 24 weeks harvoni 2 years ago on one of the first trials and had NO side effects or after effects except more energy,less fatigue.i cant really comment on daclatasvir/sof as i havent tried it but i can certainly vouch for sof/led.although i had 24 weeks on the trial i was u/d at 4-5 weeks and convinced that if i had stopped at 12 weeks i would still have cleared.i thought long and hard about letting a friend take my second 12 weeks but it just wasnt practical or responsible.good luck.
Thank-you David. I appreciate appreciate your post.
I have read about the Harvoni and know that it seems very tolerable in most patients.
I am a little concerned as I am so tiny - It amazes me that someone my weight would have the same dosage as a large, well-built guy, you know? To give you an idea I can fit in child's clothes age 12-13. I also have had some immune responses and have been quite ill intercepted with better phases, weight-loss & muscle wasting has been an issue and a there are a few other issues that worry me somewhat but I'm going to discuss these with the Hepatologist when I see him. Not that they will necessarily be totally forthcoming I'm sure! I feel monitoring is essential, not so much endless blood tests, but blood pressure, listening to heart etc - basic obvs, want to get this in place.
I find it ludicrous that many of the medical profession seem to say none of our symptoms are connected to the virus, yet they don't really seem to want to investigate them either! there are clearly common symptoms in many sufferers, eg joint pain .
Yes, I know I have to rid myself of this here thing and my body is letting me know that.
I thank each and every one of you for your input and advise.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
Ledipasvir or Daclatasvir
7 years 11 months ago #878
Dont worry about being tiny.I am nearly six foot and have been under 10 stone for years.i know that ribavirin is weight based but the daa's are not.you will be fine and cured easily.Heart monitoring can be important if you are taking any meds for arythmia,they dont mix well with sofosbuvir .otherwise its ok.
I'm thinking you could make that decision once you get a good saturation of the drugs in your system and go from there. It's only day 3 for me so I can't comment on sides etc as there are non to speak of. Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.