emo Undetectable week 5 post treatment despite feeling crap

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6 years 3 months ago #15709

Oops. Can someone move this to Patient Stories?

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6 years 3 months ago #15711

I've moved it to SVR. It's important to remember that just because you don't have Hep C you can still get all the variations of flu etc.

As always, if the symptoms persist, see a doctor.


YMMV
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6 years 3 months ago #15712

Fantastic news........hope you feel better soon though....I also put my SVR12 post in the admin section....must be the rush to spread the good news :)


Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
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6 years 3 months ago #15714

Thanks Lynne & thanks Dr Freeman. I actually came down with a cold on Friday. Perhaps the liverish feelings I had were the beginnings of that. In between the 5 days of complete crap and getting the cold on Friday was about a week of feeling run down with insomnia (though I think the insomnia was largely worry). I slept well last night :)

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6 years 3 months ago #15715

Feels really good to have joined the SVR section if only in a small way as yet :) :)

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6 years 3 months ago #15717

:woohoo: Congratulations Phoenix! :woohoo:

Great to hear of your SVR5 and hope your cold goes away soon so you can really celebrate. :+1: :cheer:


G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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6 years 3 months ago #15719

Great news! Congrats on your first UND! So what are you taking, generic drugs or real Harvoni?


G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
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6 years 3 months ago #15720

Thanks Gaj & Fretboard :)

Actually my third UND. Was UND at weeks 4 and 8 during treatment. This is my first UND post-treatment.

I took generic drugs from Mesochem through FixHepC. 12 weeks Sof/Dac, and the proof seems to be there so far that it's good stuff :)

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6 years 3 months ago #15722

Congrats Phoenix on your SVR, hope your cold takes a hike soon :+1:


GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22
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6 years 3 months ago #15727

Phoenix wrote:


Actually my third UND. Was UND at weeks 4 and 8 during treatment. This is my first UND post-treatment.

I took generic drugs from Mesochem through FixHepC. 12 weeks Sof/Dac, and the proof seems to be there so far that it's good stuff :)

Great news! Always glad to hear about a Mesochem success story!!

Attachments:

G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
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6 years 3 months ago #15728

Feeling like crap too

Liverish

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6 years 3 months ago #15729

Hi again Phoenix I had insomnia all the way through my treatment but I really did get used to it after a while because my energy levels were so much better throughout the day.....all back to normal now!! Went to sleep okay but around 4am - 5am, boing eyes wide open! :) :)


Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
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6 years 3 months ago #15732

Thanks CC2B.

Hang in there Tweakmax! I have SO discovered that liverish does not necessarily equal virus. The crap feeling will almost certainly pass.

Lynne I really relate to a strange new energy/insomnia thing. It feels sometimes like I might just need less sleep now, like my biorhythms are being reset in a good way, but it still takes a bit of getting used to. Though when I feel crap it feels like the same old crap! I think I'm getting easier with the idea that the road to recovery will still have twists and turns.

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6 years 3 months ago #15736

Thankyou Phoenix for being honest and posting this. I had a little smile at your turn of phase for the title as that would be my sentiments exactly! ( apart from the UND as haven't had the test yet.) I find your post quite reassuring.
I am going for a liver function test next week as I asked my gp for one and won't get a VL test until 12 weeks post EOT, as per NHS standard.
Cheers, and really glad you remain undetected. Congratulations! :) :+1: :lol: #duck #flower


Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
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6 years 3 months ago #15743

I would imagine that "liverish" could be our troubled livers fighting their way back from so many years of hardship even now that we have hopefully cleared HCV . I am getting a bit stronger every day, but I am still not completely up to scratch and I finished tx over 8 weeks ago.


HCV 35 yrs G1a F3 Tx naive
started Lesovir-C 15/12/2015
pre tx: VL 5,250,000 ALT 374 AST 208
FIBROSCORE 10.4

4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL
8 weeks tx ALT 29/ AST 34. VL UND
4 weeks after tx UND. SVR4. ALT 24/AST 18
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