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TOPIC: I don't understand my bloods results, or my viral load....

I don't understand my bloods results, or my viral load.... 5 years 7 months ago #21849

  • coral
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Great results Donna! Those meds certainly got stuck in and achieved a quick result for you. We all know what a relief it is to see those numbers on paper. #flower #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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I don't understand my bloods results, or my viral load.... 5 years 7 months ago #21927

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These results were from 3 weeks after I started treatment
( it's written as 2 wks on form)
Undetected !!!!!
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I don't understand my bloods results, or my viral load.... 5 years 7 months ago #21928

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:woohoo: Congratulations Donna, magic result after 3 weeks! #magic
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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I don't understand my bloods results, or my viral load.... 5 years 7 months ago #21930

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And again, it is the time for a #woohoo!
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
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I don't understand my bloods results, or my viral load.... 5 years 7 months ago #21934

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Fantastic results, Donna! Wow!!!

Love it!
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
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I don't understand my bloods results, or my viral load.... 5 years 7 months ago #21948

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Great results Donna!...So happy for you! #flower
HCV since 35-40yrs., GT 1a , Dx 2004; VL 4-5 mil, F2-3
Tx sof/led started 3/4/16
4wks VL <15
9 weeks VL UND, ; Alt-15,Ast-13
16 weeks VL UND Alt-20, Ast-22;
EOT 24 wks UND
SVR 4 UND
SVR 12 UND, Alt.15, Ast. 17
SVR 24 UND
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I don't understand my bloods results, or my viral load.... 5 years 7 months ago #21975

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Hi Donna that is so fantastic and look like you are well on the way to ridding yourself of this horrible beast! Yay!!!!!!! :+1: :cheer: :cheer: :cheer: Like yourself I have a son with special needs and want to be around for him as long as possible. I worry that there is no-one who will love him and care for him the way I do and he will always need 24/7 care.

I am travelling this treatment journey with you albeit just a few weeks ahead, (on week 8 of treatment) My 4 week results ended up a total mess!!! My GP is lovely and was willing to help but not a specialist in this area so is learning as we go along!!! Got my ALT (down to 23) Have had to do another blood test for my AST which was missing (final result was 33) and then another to redo VL which the lab had watered down due to not having enough blood sample!!! Complete botch up but have them now just over the past couple of weeks. Not exactly week 4 results haha!!! I too am UNDETECTED!!! (using I think the quantitive test which has simply said undetected, rather than qualitative test which does give an actual figure). Hope I have this info correct wouldn't want to be talking crap. As you say Donna it is all a bit confusing but it does start to get a little clearer all these results!!!

This is so definitely the right place for you to come for info super educational along with amazing support from lovely people who have been on this journey already or who are in the process, or those who are sadly in the shit position of having to try again.It is an amazing place.

Looking forward to seeing you reach the end goal! #flower #flower #flower Lots of love and hugs to you!
Nadia
Diagnosed Hep C genotype 1b early 1990's. Treated 1998 peg Interferon/Riba non responder :-(( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016. :-))
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!
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I don't understand my bloods results, or my viral load.... 5 years 7 months ago #22031

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Thanks for all the lovely messages... not feeling great at the moment... very tired due to the insomnia..
Its great that it's all working with the meds.... only got 8 weeks left till I'm finished
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I don't understand my bloods results, or my viral load.... 5 years 7 months ago #22046

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Hi Donna,

Lack of sleep can be a problem on these meds. Here is a post from Dr Freeman on the subject.

fixhepc.com/forum/experts-corner/598-how...y-insomnia.html#8330
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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I don't understand my bloods results, or my viral load.... 5 years 7 months ago #22065

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Thanks for that Gaj
It's been difficult with lack of sleep. The first month of treatment I managed alright, but it's kinda caught up with me. I've been all over the place emotionally, and the last few days I'm tearful. I know the medications are working so just trying my best to stay positive.
I really appreciate all the support on here, thanks to everyone who has replied to my post ❤️
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I don't understand my bloods results, or my viral load.... 5 years 7 months ago #22066

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Hi Donna,

Apart from the lack of sleep there are a lot of physical and emotional changes happening for most of us while on this treatment so you're not alone there. I had difficulty controlling my feelings at the same stage as you but it did settle down with time. (I was almost blubbering over pictures of cute puppies let alone interactions with people. :blink: :blush: ).

For the insomnia I learnt not to fret about getting back to sleep but rather to just relax and lie there and rest even though I was awake, often that allowed me to drift in and out of a light doze for a couple of hours which helped. I also saw my GP and he prescribed some sleeping pills but because I wasn't keen on taking those too often I just used them once or twice a week when I felt really exhausted or needed a good night's sleep before an important day. Again, as treatment progressed I found I was able to adjust and get enough sleep to keep me going.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
Last Edit: 5 years 7 months ago by Gaj.
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I don't understand my bloods results, or my viral load.... 5 years 7 months ago #22067

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You've got this! Your % is better as you've shown excellent progress.
Awesome! Keep it up!

Note: I agree with GAJ, emotional support des unknown why, but it may come up from time to time but Fitz told me this so it helped when it happened. Just like GAJ said.
Your good to go!!
Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
Last Edit: 5 years 7 months ago by Sven. Reason: Information included
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I don't understand my bloods results, or my viral load.... 5 years 7 months ago #22070

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Gaj wrote:
Hi Donna,

For the insomnia I learnt not to fret about getting back to sleep but rather to just relax and lie there and rest even though I was awake, often that allowed me to drift in and out of a light doze for a couple of hours which helped. I also saw my GP and he prescribed some sleeping pills but because I wasn't keen on taking those too often I just used them once or twice a week when I felt really exhausted or needed a good night's sleep before an important day. Again, as treatment progressed I found I was able to adjust and get enough sleep to keep me going.

Hi Gaj,
I had also some moments of insomnia. Not too many, however in one of the nights I tried a trick that worked. Instead of doing the classic trick to imagine me counting the sheep, I imagined I was financial manager at Gilead :idea: , sitting on a mountain of cash (made from bills of 100$ :woohoo: ) and started to count them. It seems it worked, I do not remember reaching 10 000$ :whistle: ..... I guess Gilead would fire me instantly for not having been able to count at least 1 billion $..... :evil: :evil: :evil: :evil:
Another interesting trick I tried in one other night was to imagine me counting the 84 pills from the 3 bottles. If you think it is easy, try it. It is not. And if you fall asleep, you may thank me later B)

Cheers,
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
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I don't understand my bloods results, or my viral load.... 5 years 7 months ago #22072

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Made me laugh that rohcvfighter
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I don't understand my bloods results, or my viral load.... 5 years 6 months ago #22363

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Good morning from Oz Donna
I'm just catching up after some domestic duties that were rather time consuming
Yes to the insomnia and general tiredness which by week ten shifted into overdrive with a very zooomy sensation even during the day. Emotions run up and down I found maybe the tiredness catches up plus the demands of single parenting or it's just how it is. But the best thing is you are clear and just really "overtreating" and that's how my DAA tx ran too
I'm here barracking for you to the finish line and I am sure there's an occasional whinge in my blog re not sleeping etc haha!
Sending you love and goodvibes I am sorry I have been absent for a week doing family stuff but I have logged in to this awesome news all over the forum
Go for it Donna we got your back girl xxxxx
Love from Ariel #love
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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