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TOPIC: Australian PBS listing in March!

Australian PBS listing in March! 5 years 10 months ago #5659

  • Paul-Jarman-facebook
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Does indeed look like good news but $1b only treats 20k patients that doesn't take into account clinical expenses and no information regarding timeframes. Is that $1b straight up or 200m per year. Need more detail.

www.sbs.com.au/news/article/2015/12/20/g...on-hepatitis-c-cures

A billion-dollar investment to improve access to hepatitis C cures could lead to the disease being "all but eradicated" within a generation, the government says.

About 230,000 Australians are estimated to have the disease, which kills about 700 people a year, but the large five-year subsidy for four drugs, some that can cost up to $100,000, will halt the spread of hepatitis C, Health Minister Sussan Ley said.

"There is great hope we can not only halt the spread of this deadly infectious virus, but eradicate it altogether in
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
Last Edit: 5 years 10 months ago by Paul-Jarman-facebook.
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Australian PBS listing in March! 5 years 10 months ago #5660

  • zhuk
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Very promising news, especially for those very unwell who need treatment asap...triaging will be mandatory. And it seems likely that thanks to the work of FixhepC and the doc it has been pushed into the spotlight where the Govt could no longer ignore it. Great stuff.

I'm with you Vovoro - what possible anti-generic deals may have been struck in order to deal with Gilead??
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
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Australian PBS listing in March! 5 years 10 months ago #5661

  • darbara
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They dont buy from from Gilead at todays prices. Gilead has competition a much much cheaper rate will be offered. If need be Gilead will make the drugs in India and sell it ahead to wherever. Harvoni in Europe comes from Ireland today.
It could be made in Australia with a licence from Gilead, BMS or whoever. This way it would also create jobs.
Treatment naive
F 3/4
Genotype 1 a & b
V/L 17 MILLION
Started Harvoni 11th Dec 2015 for 12 weeks
4 weeks VL UND
6 WEEKS ALT 32, AST 34
EOT 03/03 2016 ! UND
ALT 34, AST 26
04.04.2016 SVR 4
26.05.2016 SVR 12
16.08.2016 SVR 24
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Australian PBS listing in March! 5 years 10 months ago #5662

  • Joan
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Thats fantastic news!! Its a start … considering priority for those very sick people they will be cured!!!
GT2B Diagnosed 1989
Started Tx 6.Nov.2015
F3 Fibroscan 17: April.2015
Alt PreTx: 186 Ast PreTx: 157 VL PreTx: 733,000 27.10.2015
Alt Week 4: 14 Ast Week 4: 28 VL Week 4: UND 7.12.2015
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Australian PBS listing in March! 5 years 10 months ago #5674

  • Archer
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Its wonderful news ... a historic event.

I'm certain this would not have occurred without the global focus on a hardworking, humanitarian and courageous group of people in Tasmania. The Government's initial 2014 decision to purchase only simeprevir (to be paired with interferon) in favour of sofosbuvir - shamefully understated the fact that many Australian HCV sufferers were effectively being discarded as cost saving collateral - left to die - the authorities knew that many sufferers whose condition was more advanced, could not access this treatment because of the high risk of liver failure.

I never could reconcile how this "glaring" fact somehow escaped being sufficiently publicised by the media or understood by the general public - it should have been. However, the global spotlight on Australian treatment which has so recently occurred through the Tasmanian endeavour may have eventually made this dirty little secret apparent - a shame which no Government in a "developed" nation like Australia would be eager to see focused.

But let us see how the HCV saga really unfolds - meanwhile as "all" Australians receive the drugs - generics for many may still remain the better option; there is also valuable, additional support offered by this forum and many people in the "village" still seeking assistance. There are still "many miles to go".
Fem. Gen 1a.18.4 kPa. IL28b - CT. Cirrhosis 4B/c. MELD 11. Portal Hypertension. Ascites. Varices. (Gr.3). post surgical Coma 2011- Tx denied. 15/09 - INR 1.2 platelets 58 (150-450) albumin 32 (35-50) bilirubin 40 (2-20) ALT 183 (0-45) AST 281(0-41) GGT 39(0-45). Liver lesions AFP 16 <8.
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Australian PBS listing in March! 5 years 10 months ago #5676

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How can they possibly treat everyone who wants to be treated straight away?
It just doesn't make sense.
It's great news but still I am very dubious about just how universal it will be.
F49HepC25ysGT1a
"mild"
Harvoni 12 wks
Brisbane, Australia
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Australian PBS listing in March! 5 years 10 months ago #5677

  • mgalbrai
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Perfectly stated Archer!
I don't think Gilead would have lowered its prices enough for a deal to be struck in any other first world country. Only one that allows its citizens to self-import generic treatments with the help the amazing Dr. Freeman, his Buyers' Club and REDEMTION e trials could force Greediad to make a deal.
A generation is a long time in relative terms.
Yes, a lot still to do.
Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
Last Edit: 5 years 10 months ago by mgalbrai. Reason: Addition
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Australian PBS listing in March! 5 years 10 months ago #5688

  • marcj
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''1 billion over 5 years'' ... it will be a priority set up.

To put it simply If your non-cirrhotic, you could still be waiting 3-4 years.

Generics are still the way to go ...
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Australian PBS listing in March! 5 years 10 months ago #5689

  • beaches
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Such good news! I just feel bad for people it's too late for.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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Australian PBS listing in March! 5 years 10 months ago #5691

  • Vicki
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Great :cheer:
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Australian PBS listing in March! 5 years 10 months ago #5693

  • Chejai
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WOW! That really is fantastic news. I can see why my Specialist kept telling me to 'wait' until my appointment in April. Nevertheless, I can't help but feel skeptical too, I know the news article says it will be 'available to everyone no matter their condition', I still suspect it could only be handled by triaging in the public clinics. So, that is certainly great news for the sickest - my brother has cirrhosis - so hoping he gets access and monitoring with his clinic in NSW.

I'm still happy I'll be starting tx soon. :)
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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Australian PBS listing in March! 5 years 10 months ago #5695

  • marcj
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Actually might be better to clarify ... treatment for many and that would be classed as the majority would be "'years'' away ...

3-4 years might be somewhat optimistic ... another billion after 5 years?

So many people will come out of the woodwork now that it's on the PBS.

The other thing to consider is that the liver/gastro units in all the major hospitals in this country could not possibly handle the influx of people wanting treatment now. The liver clinic in my town can only handle 40 patients maximum.

More questions than answers at this point ... heavily triaged is a certainty

I don't have a great deal of faith in bureaucracy, if you are seriously ill I wish you all the best you deserve it as for everyone else, don't hold your breath.

As I said generics are way to go.
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Australian PBS listing in March! 5 years 10 months ago #5696

  • Joy
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Health Minister Sussan Ley interviewed on Channel 9 this morning:

www.9news.com.au/health/2015/12/20/08/14...gh-hepatitis-c-cures

She reiterates treatment availability for EVERY SINGLE PATIENT. (2:30 mins onward)

I expect we'll be hearing more from Dr James about what's really going on...

:whistle:
NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.
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Australian PBS listing in March! 5 years 10 months ago #5697

  • Joy
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Greg Jeffery's scathing blog today:

Firstly if you go past the headlines and read the details it is actually one billion to be spent over 5 years, about $200 million a year, or what was being spent already each year on treating people with Interferon. This means in real terms that the PBS scheme will treat about 4,000 people each year, or less than half of the 10,000 new cases every year.

hepatitisctreatment.homestead.com/IndianheteroHarvoni.html
NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.
Last Edit: 5 years 10 months ago by Joy. Reason: Grammar
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Australian PBS listing in March! 5 years 10 months ago #5698

  • Chapel
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People at Hepatitis C Treatment w/o Borders are taking starkly different views on the announcement, from a spin exercise to cures for all as Sussan Ley says. Greg J is not buying it at all...
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
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