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TOPIC: on tx "pulsating, heart beat, speedy feeling"

on tx "pulsating, heart beat, speedy feeling" 3 years 3 months ago #15393

  • Annasnow
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Hello ,
I have been very wakeful and energised around midnight and eg now near 3 and still feel awake, after sof/led. Try to restrict my tv / computer time but not strict enough with myself. if possible i would sleep to midday and go with it but wonder if anyone else has sleep cycle out of wack.
Great so many are UND. I cannot afford the path to check if now UND.
Thank you peeps taking time to write on here.
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on tx "pulsating, heart beat, speedy feeling" 3 years 3 months ago #15394

  • Gaj
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Hi Anna,

My clock tells me it is 3:50 am where I am now :P and I rarely manage to 'catch up' fully.

I also often see people on here at strange times for the timezone they are in so this seems to be a common issue on Tx. Dr James posted some suggestions that you may consider here fixhepc.com/forum/experts-corner/598-how...y-insomnia.html#8330
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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on tx "pulsating, heart beat, speedy feeling" 3 years 3 months ago #15405

  • Ariel
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Hi Annasnow
Wishing you a good result too when you can get tested.
Love from Ariel #flower
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
Last Edit: 3 years 3 months ago by Ariel.
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on tx "pulsating, heart beat, speedy feeling" 3 years 1 month ago #18819

  • Bob in ireland
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rapid heart beat episodes can be caused by portal vein hypertension -- if there is inflammation/restriction on portal bllood flow I was lead to believe that the heart is trying to compensate/regulate to the change/pressure of flow?

I get racing heart almost like palpitations at the moment I wake up in the morning - once I am up it goes completely and only seems to happen at this time mostly ...
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on tx "pulsating, heart beat, speedy feeling" 3 years 1 month ago #18828

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I get racing heart almost like palpitations at the moment I wake up in the morning

I used to get that alot Bob, still do occasionally, also wake up in a sweat. I used to get it at other times too, particularly when I reached up for something and had to stretch.This has improved since on treatment.

I was concerned about it. I told my new NHS "consultant" about it (allocated after my old consultant retired) . He said "It's nothing to do with the liver, see your GP" and other such stuff. The GP did a heart ECG but it came back 'normal'.

I emailed my previous consultant , he said 'Get an UltraSound' - It showed nothing either, (although looking at that ancient NHS screen, I'm surprised they could see anything at all!). When I had the new amazing LiverMultiscan, it showed more fibrosis in that area. It all made sense to me somehow.

LG
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
Last Edit: 3 years 1 month ago by LondonGirl.
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on tx "pulsating, heart beat, speedy feeling" 3 years 1 month ago #18829

  • DrJames
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Hi Bob,

It would be a good idea to have a checkup.

It is also useful to take your pulse and record the rate on your phone by saying now now now every time you feel a beat. Different rhythms are diagnostic of different issues.
YMMV
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on tx "pulsating, heart beat, speedy feeling" 3 years 1 month ago #18830

  • fitz
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I'm wondering, and have been some time, if with rapid resolution of inflammation of the tissues directly inside and outside of the liver including portal vein, connective tissues, etc. are somewhat compressed or stressed as the liver shrinks a bit, leading to higher pressure within the portal vein itself along with liver pain(?), until the body adjusts to the 'new normal'?
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
Last Edit: 3 years 1 month ago by fitz.
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on tx "pulsating, heart beat, speedy feeling" 3 years 1 month ago #19280

I have never slept more than 2 hrs at a time since first feeling very unwell -20 odd years ago. It doesn't bother me as I fall asleep watching t.v. during the evening. The other thing since being unwell I've noticed I almost always fall asleep directly after eating a meal. Even straight after breakfast, before I finish my coffee!!.
Since starting treatment 53 days ago I find myself feeling wide awake around 1 to 2 am after dozing in front of television since dinner.
Another side effect? I have noticed my vision is blurry at times, I wear specs for long distance sight but dont need them to read.
Speaking of -Reading was once my fav pastime but since being unwell I can't read more than 4 pgs before falling asleep.
Anybody else had the blurred vision since starting treatment?
All in all I feel better on treatment, nothing hugely dramatic yet -although I'm sure my head is clearer.
GOOD LUCK TO EVERYBODY
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