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End of treatment update 8 years 3 weeks ago #14068
Hello again all Haven't been around for a while but thought I'd stop by and share some info now that my tx is finished Most importantly, anyone who is having any doubts about tx, just do it The sides are insignificant compared to what they were just a short time ago and the results are amazing I went for 20 weeks using Sof/ Dac I started taking them at night (as I thought they might make me nauseous) They didn't, but I heard they may disrupt your sleep. I believed this was a symptom so changed to taking them mornings. Doc said to just take one dose at lunch, and then the next does in the morning I seemed to sleep the same, but I was happy taking them first thing - the sides were barely noticeable Like many others (but not all), I was UND at week 4 The prof at Nepean said that he'd seen plenty of people not show UND until week 10 and go on to stay that way As I was F3 (biopsy) 12 years ago I was expecting my liver damage to have advanced (I'm a G3) I was due for a fibroscan but not before i had to make the decision to continue tx for an additional 12 weeks Word is that the tx has a harder time penetrating hard, scarred livers so thought it best to get the extra 12 weeks My fibroscan turned out to be F1! Bloody unbelievable really because anyone who has read my rants know that I like a drink or three As my fibroscan was done at week 10, Dr Freeman said it's possible that the liver did a part of that healing after treatment The prof at Nepean reckons that with my low score, I could even be an F0 in around 3 years He says the liver has amazing regenerative properties - lord knows I've given mine a hammering over the years As I had purchased 24 weeks of tx (expecting F3 at best) I decided to continue anyway Speaking of drink, i was alcohol free for the first 12 weeks except for 3 nights over Xmas/ new year I started having a couple around week 15 once or twice a week, but as time went on i could get a small roll on I found that alcohol and pot smoking was neither here nor there in terms of how I felt or blood test results I was blood tested by Nepean hospital every 4 weeks They have a nurse who comes up to Katoomba hospital so us country folk don't have to travel down to Penrith (1 hr max compared to 3) My AST's and ALT's stayed within range, and my FBC was perfect as was everything else I'm a bloody picture of health really lol lol But I can say that over time I felt that my motivation to do things did decrease But it's easy to read things into the way you feel - now that I'm off tx I could say I still feel the same My 14 year old dog died around week 20 and it hit me hard I was still on tx and really getting over it - if I was on the PBS I would have only got 12 weeks It's not that it was bad (about 1 billion times better than the interferon hell) but after 20 weeks I was starting to feel I'd had enough My decision was made In the middle of the night when I woke up quite nauseous and had a massive chunder (And I hadn't been drinking!) I took all the above as reasons to not continue with the final 4 weeks My blood tests have been perfect. My wife considers it a miracle. I do to - but I'll wait until SVR24 to be fully relieved - all looks good though The prof said that the relapse rate among previous non responders is minuscule He said my fibroscan score was so low as to be of no concern He thinks that over the next few years I could even achieve F0 And I know I will never be a big drinker again - the hep cured that He said to get on with life and forget about it and go for my week 24 blood test with no worries And that is what I'll do There is no doubt in my mind that the increasing media exposure of the buyers club And the number of people turning up at hospitals on generics was instrumental in these drugs being put on the PBS For me, I'm glad I gave my money to Mesochem and found out about the buyers club - F**ck Gilead excuse my French Cheers to everyone reaching SVR24 52 y.o. G3a for about 30 years Previous tx 2004 interferon/ ribavarin 2004: ALT 624 AST 263 Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493 6/11/15: Sof/ dac started 26/11/15: ALT 41 AST 41 7/12/15: ALT 36 AST 30 Virus undetected 2004 biopsy F3 Fibroscan appt Jan 11 2016. The following user(s) said Thank You: DrJames, wilko johnson, Joy, LondonGirl, Vororo, pat1, mgalbrai, sabrecat, Ariel, Gaj, Lynne-Francis-facebook, Tina-Hill-facebook, beaches, IRMA88, isaing4, Hazel, Sven | |
End of treatment update 8 years 3 weeks ago #14073
| Hey Bloot! Nice to see you back and your liver has healed heaps since beginning tx My condolences about your dog I hope in time the pain of his passing subsides. SVR 24 |
End of treatment update 8 years 3 weeks ago #14080
Great to hear about how your treatment went Bloot! Onward to SVR24! G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
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