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SVR 12 6 years 2 months ago #21236

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I passed my SVR12 today!! :silly: :silly: :silly: :silly:

I was sooooo nervous in the waiting room, I felt like I was going to pass out. I was literally shaking! I just kept imaging the moment - if it was bad news - over and over and imagining what that would feel like. I think I didn't want to get my hopes up because that's when you get screwed over. I remember when I was diagnosed it was such a shock, I did not expect it at all and I still have flashbacks of that moment in the doctor's office being told... he was just looking at the screen for ages, trying to figure out how to tell me. And just that feeling of WHY ME? So unlucky. I knew it was going to be a long road. And especially because at the time of course my options were a) interferon and b) interferon. I wanted to get treatment right away, didn't want to live with this thing for one more day, but my specialist told me it was probably the best option to wait for the new drugs which "could be here in a couple of years". Gah!

Which was good in theory, but I didn't have the "symptom-less" kind of HCV (does that even exist?). I felt like death warmed over. My skin was almost see through, I picked up a different flu each month, constant aching everywhere, sleeping all day, I just felt horrible. This might sound weird, but I feel like it even changed my vision. I didn't want to tell my friends what was wrong so I had to hide it too. Couldn't have a social drink. I think the isolation was easily one of the worse things.

So I waited and waited and finally was able to go on the medication. I remember the first day I got the pills and carrying them home in their little paper bag. I was so excited! I immediately started googling, obsessively reading studies and trial data (I did this every day for 3 months). On the very first day I came across Greg Jeffreys blog and I remember binge reading it for 3 days straight. It was so incredibly inspiring. But I tell you, had I come across it before March 2016 I would have definitely, definitely gone on the generics. No question!

By the way, 2 months ago I went to get my "poor man's SVR" LFTs at week 4 and went to a local GP I had never been to before to get the form. I told him I had just gone through the new treatments and was feeling fine and he said, "Oh those treatments are really intense and even a man in his 20s struggles with it". I said, "I was fine, I went on the new treatments, not interferon". And he just didn't get it! He had no idea. And that really upsets me because what if someone goes in there and discovers they have HCV? He's not going to be able to give them good information about how easy it is to treat. Needless to say I didn't end up going back.

Anyway, I haven't really posted on the forums here much, but I have been reading it for months and I just wanted to say thank you to everyone that posts. You have all helped me get through this in one way or the other. #love Every success has been mine, and with any relapse that happens it brings tears to my eyes. All I have in this are you and my closest family members. Imagine if people with cancer were treated like us? It's disgusting, which is why it's so important to support each other. Because we're not getting it from society at large. I'm hopeful that will change as this thing becomes easier to eradicate. I certainly will do everything in my power to spread the word.
genotype 1a
viral load 160,000
age 29, F0, treatment naive, il28bcc
unable to function due to chronic fatigue, joint/muscle pain, low immune system, depression, anxiety, skin issues, brain fog (etc) : (
12 weeks daclatasvir/sofosbuvir started 11 march 2016 through pbs

week 4 - alt 12
week 12 - viral load undetected
svr12 - NOT DETECTED!
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SVR 12 6 years 2 months ago #21239

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Fantastic news Peach! :+1: :cheer: #flower

#dance
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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SVR 12 6 years 2 months ago #21241

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Lovely post, Peach.
Happy for your SVR.

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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SVR 12 6 years 2 months ago #21246

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What a heartfelt post Peach. #love Huge congratulations on your SVR12! I think you can have a social drink now :)
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
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SVR 12 6 years 2 months ago #21255

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Peach wrote: I passed my SVR12 today!! ...
.All I have in this are you and my closest family members.


Hey Peach
Awesome to read your post. #flower We all seem to tell a similar tale about the emotional roller coaster that accompanies HCV not to mention the physical sides. I didn't have the symptom less kind of HCV either. It's great to know about the 'poor man's SVR' I've never read that in any other forum. Congratulations to you.
gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
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Last edit: by pat1.

SVR 12 6 years 2 months ago #21259

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thanks Gaj #flower #flower thanks Coral #flower #flower

I am hoping and praying for you guys to get the same news as I did very near in the future. #love I will keep checking back to see how you're progressing. I haven't felt the pain of relapse, but I have unfortunately been through reinfection (awkward :dry: lol ) which I feel like is as bad or almost worse because obviously you just blame yourself and think well I deserve to go through all this. It's not very fun to admit that. At least I can say that I've learnt a lot from my mistakes and actually have been taking such good care of my health because of it, so I try to look at it as positive. "You never know what worse luck your bad luck has saved you from"

pat1,
This forum is great isn't it? I have learnt so much amazing information from everyone here and especially Dr Freeman. Even though I didn't take generics, I just feel like this is the best place to be :+1: :)


hi beaches,
hoping to hear some good news from your end soon! :cheer:
genotype 1a
viral load 160,000
age 29, F0, treatment naive, il28bcc
unable to function due to chronic fatigue, joint/muscle pain, low immune system, depression, anxiety, skin issues, brain fog (etc) : (
12 weeks daclatasvir/sofosbuvir started 11 march 2016 through pbs

week 4 - alt 12
week 12 - viral load undetected
svr12 - NOT DETECTED!
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Last edit: by Peach.

SVR 12 6 years 2 months ago #21263

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Hi Peach,
Thank you for sharing your story. Your post is very touching.
Congratulations for SVR12! You are cured!

HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful :)
virus not detected 06.02.2016 & SVR24
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SVR 12 6 years 2 months ago #21265

Wonderful news Peach :) Very happy for you :cheer:
Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
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SVR 12 6 years 2 months ago #21269

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Congratulations on your SVR 12 Peach, and thank you for sharing your heartfelt story. Best wishes onto SVR 24 and your new lease on life...Fara #flower
HCV since 35-40yrs., GT 1a , Dx 2004; VL 4-5 mil, F2-3
Tx sof/led started 3/4/16
4wks VL <15
9 weeks VL UND, ; Alt-15,Ast-13
16 weeks VL UND Alt-20, Ast-22;
EOT 24 wks UND
SVR 4 UND
SVR 12 UND, Alt.15, Ast. 17
SVR 24 UND
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SVR 12 6 years 2 months ago #21354

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HA!
The SVR 12 Club groweth!!
m
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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SVR 12 6 years 2 months ago #21358

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Congrats and happy splashes for your SVR12 Peach, and your encouragement and touching story too
Very happy for you Peach, you have made it #flower #love #flower
Love from Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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SVR 12 6 years 2 months ago #21360

Congratulations Peach! :cheer: :+1:
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
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SVR 12 6 years 2 months ago #21423

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YESSS!!! SVR 12. You got this Peach!

Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
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SVR 12 6 years 2 months ago #21434

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SVR12 done.
Check out my blog if you want a laugh and don't offend easily.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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SVR 12 6 years 2 months ago #21435

Congratulations Peach - Happy reading :cheer:
and what a lovely post too,
I relate to so much of it.
Thank-you.
LG
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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