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6 years 2 weeks ago #20014

I have always asked as many Drs as I can :) Dr Debasis at MonkMed, Dr Freeman, my GP and the odd NHS England doc. I also read up a bit and then try to make an informed decision.

Re rash, since coming off tx I have had a bad rash on fingers, it could be down to humid damp weather it may not, but I had it pre tx, went during tx and back post tx.

We've had alot to deal with one way or another, unsurprising that body and mind respond to this? and if we've carried the virus for many years, I guess we can't expect the damage to fix itself immediately? I guess the DAAs attack the virus and so indirectly should help related ailments, especially those caused by inflammation, but after tx we are left with the long term issues to address.

Hopefully, these will improve with time once the virus is eradicated? but maybe not overnight.

Wishing you well and feeling better soon FFox , LG


GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
Last Edit: 6 years 2 weeks ago by LondonGirl.
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6 years 2 weeks ago #20048

i see that i've caused a heated discussion.

Just so you know I'm still getting a little red after taking the tablets but am feeling great.

I'll be seeing a nurse next week for my 1st bloods (2 wks) and he can have a look at rash.


2 wk: VL UND, ALT 30
37K RNA, ALT 486
Tx begin 20 July 2016
Tx naive
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6 years 2 weeks ago #20108

Thanks guys...I'm sorry I got stressed...it's just been a bit of a rough ride since tx finished.
A lot of what I believed to be improvements were actually sx of the DAAs. The good sides departed quickly and the bad ones linger on.
I'm actively investigating issues that may be contributing, and Dr Freeman has been kind enough to order me all sorts of blood tests.
My prescribing doc was not interested in doing any such investigations and looked quite offended when I reported sides. None of her other patients had any sides!
I've given up on her now. Specialists of course are distant creatures...benevolent at best, and clueless really. But it's all in hand.
I have come across quite a lot of people who suffer more afterwards than during tx, so it's a thing. And it's easier to handle when you know that. I found tx itself handleable, including the bizarre rashes, which at least weren't itchy.
And I'm freaking undetected at 6 weeks post, so there's that :)


F49HepC25ysGT1a
"mild"
Harvoni 12 wks
Brisbane, Australia
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6 years 2 weeks ago #20132

Good post FF and great news re the 6 week Undies :) :+1: #flower


GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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6 years 1 week ago #20420

My clinical nurse didn't think it's the tx, which I don't agree with. Anyway he was not unduly worried, nor am I.
The best news is that after just 2 weeks treatment I am already UND.
I'm really pleased. :)


2 wk: VL UND, ALT 30
37K RNA, ALT 486
Tx begin 20 July 2016
Tx naive
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6 years 1 week ago #20421

wow brilliant news JamesF, so fast! it doesn't stand a chance against a response like that! :cheer:


Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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6 years 1 week ago #20423

Good to hear.
Has the skin situation changed at all?
Really happy for you. You must be over the moon.


Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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6 years 1 week ago #20424

Hi Beaches

i'm delighted!

I am treating early and am fortunate to have a low VL to start with but still it's great to have such a positive result so soon.

my skin is a little less red, but I can still see there is a slight redness.

Maybe, it will gradually go away as my body becomes used to the drugs.

thanks for asking.


2 wk: VL UND, ALT 30
37K RNA, ALT 486
Tx begin 20 July 2016
Tx naive
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