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New Here 6 years 3 months ago #25749
I am new here. I was diagnosed nearly 8 years ago and have mostly ignored it for the last 6 years mainly because I felt there wasn't much I could do about it. I do not have health insurance and do not qualify for assistance. Now I am in a better position to do something about this demon. My primary is supportive of my decision to go the generic route, but he will not write a script. He wants me to be followed by a gastro. Unfortunately, he has referred me to 2 and neither will follow me on generics. However, he will write orders for blood work. So I am mostly going at this alone with minimal monitoring. He just insists that I get some preliminary blood work for a baseline. I'm not exactly what step to take next, but I'm ready to take it. Any guidance would be much appreciated. I am in the USA and am curious if anyone has had difficulty getting medications in. diagnosed 2010 1A 1/18/18 AST 60 ALT 55 1/29/18 - VL 390,000 2/13/18 - started treatment with sof/led 03/14/18 -day 29 treatment Not Detected AST - 31 ALT - 25 | |
New Here 6 years 3 months ago #25750
The meds will come to you. Don't worry. I would just schedule a call with the doc-$100 and you're in. He'll stick by you all the way through this. Good luck! This email address is being protected from spambots. You need JavaScript enabled to view it. Genotype 3 VL 4,100,000 ALT 101 AST 71 Treatment Naive Started Sof/Dac Jan 12, 2016 VL= <15 4 weeks in. AST/ALT normal. VL=UNDETECTED 8 weeks in. SVR4= Virus back. 3,300,000 Started generic Epclusa Sep. 23, 2017 4 weeks in <15 *Detected. 12 weeks in <15 *Not Detected. 16 weeks in <15 *Not Detected. Finished 24 weeks treatment 3-17-18 SVR5 <15 Not Detected. SVR 20 <15 Not Detected. SVR 44 <15 Not Detected. Thank you Jesus. Thank you Dr. James | |
New Here 6 years 3 months ago #25752
Hello and welcome Panthyra, Like you I ignored my HVC for years (in my case decades). Actually, looking back it was always niggling away at the back of my mind. Now I love that when I do recall, it is with the sense of rejoicing in its now being gone. First steps for you are to get that blood work, then seeing as how you've no support nearby you'll (as Splitdog says) want to make an appointment with the doc here. For that you'll need to know: If you cannot get a fibroscan, then do't worry, the liver function blood test panel results provide a proxy for estimating fibrosis score. Keep asking questions too, it doesn't usually take many hours for someone to come on this forum to get an answer. Go well! Mnem G2, infected maybe in 1971? Diagnosed HVnon-A non-B 1980s, revised to HVC 1990's. Treatment naive. Fibroscan & bloods all normal ranges. Viral load 7million, began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24 Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage. Kia kaha e hoa ma! | |
New Here 6 years 3 months ago #25755
Welcome Panthyra, Your situation is not unusual, and is, in fact, better than some have found. At least you have somebody to monitor you (not that much is actually required). Both Dr Debasiss and I can be found on gp2u.com.au/ and we both write prescriptions for Hep C generics and have been doing it for years so will make sure you get the right treatment for you. All you need to do is register and book an appointment and that bit is easily sorted. YMMV | |
New Here 6 years 3 months ago #25757
| Hi Panthyra, Welcome. You found this site which has changed your life, believe it. Follow through with this site and get cured as so many have. I'm in the USA. You won't have any problems getting your meds. Gt 1a, F0, VL 6.5 million, AST 59, ALT 62 Started Twinvir 1/15/16 6 wk. labs VL UND, AST 27, ALT 20 EOT labs VL UND, AST 23, ALT 19 SVR 16, VL UND, AST 28, ALT 17 SVR 24 , VL UND, 10/8/16 SVR 125, VL UND, 9/22/18 SVR 230, VL UND, 10/3/20 |
New Here 6 years 3 months ago #25758
Welcome Panthyra So happy you are getting tx sorted here. I’m just one of the many many miracles that hang around here Happy Splashes From Ariel Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
New Here 6 years 3 months ago #25761
Hi Panthyra, You have chosen a good time and even better place to seek treatment and get well. I don’t have anything to add to the excellent advice you have received thus far. Dr. Freeman and his colleagues will see you through this relatively simple process. You are in good hands. Get well, Mike This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
New Here 6 years 3 months ago #25768
Thank you all for the support. I have my lab script and will try to get there either tomorrow or Wednesday. I know that I am Genotype 1 a. I just found blood work from last week when I went to the ER for Anaphylaxis (weird story). They did a "Liver Function Panel" the only numbers that were out of range in this section were ALT - 55 and AST- 60. They did a lot of other blood work as well. I still need a Viral Load. I will register to get a script. Thanks again for the great support and advice! diagnosed 2010 1A 1/18/18 AST 60 ALT 55 1/29/18 - VL 390,000 2/13/18 - started treatment with sof/led 03/14/18 -day 29 treatment Not Detected AST - 31 ALT - 25 | |
New Here 6 years 3 months ago #25770
Hi Panthyra, You've had lots of good advice already so this is just to say welcome. I was also a Genotype 1a who ignored the virus for decades hoping it would somehow disappear if I pretended it wasn't there. I was cured through GP2U and FixhepC. Dr Freeman and this forum was with me all the way as we will be for you. Looking forward to reading that you have started your treatment. Coral G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 | |
New Here 6 years 3 months ago #25771
Hey Panthyra, Good to know you now have all the data required to get a script got the DAAs. A viral load measurement is a nice to have, but not a necessity. Looking forward to hearing about your next steps. Mnem G2, infected maybe in 1971? Diagnosed HVnon-A non-B 1980s, revised to HVC 1990's. Treatment naive. Fibroscan & bloods all normal ranges. Viral load 7million, began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24 Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage. Kia kaha e hoa ma! | |
New Here 6 years 3 months ago #25802
Hi Panthyra, Welcome to the HepC forum that helps ppl like us all over the world! I'm from the US as well however my situation was a bit different than yours. We're all here to support each other through tx and beyond. I've already cured at the end of 2016 but I still stop in on occasion. Mainly because I appreciate the work Dr. Freeman and Monkmed are doing for my fellow heppers. Good luck going forward!! G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!! Started tx 6/1/16 with Harvoni. 12 Month Labs= UND | |
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