My husband & I have been trying to help our war vet friend to get the generics, as I've written about on another post..
He's a geno 3, on his 2nd liver TP, & Dr James has been
so very kind & helpful.
But we keep coming to dead ends at his hospital.
His specialist isn't keen on the generics, unhelpful.
Now we find out his specialist wouldn't be able to monitor him anyway because he's going away on holidays for ages, which is fair enough, but wouldn't you think he could get another liver specialist there to over see his tx support?
A nurse there rang our friend today to tell him this, that he wont get monitored.
....So the same old.." we suggest you just wait for the orals which aren't long away"..........heard this one before, like for the last 2 years.
She actually suggested that you don't really
"know' what's in these generics &
shouldn't take the risk.
This makes me so mad.
He's confused enough as it is without her saying that.
He needs close monitoring because of bile duct problems & all the meds he has to have as well for his dodgy liver..
This nurse wouldn't speak to my husband, refused to, even though our friend asked her to as he's brain fogged out.
She could hear him in the back ground (speaker phone) & said he's not to talk, only our mate.
Why's it so hard?
Why do the big wig specialists make it so hard?
We feel like we're just hitting our heads against a brick wall.
What is the big deal? why on earth is it so hard to get anything across?
They don't want to listen (some of them).
Sorry, but had to have a rant!!
Cindi x