Ok, some of you may recall that Ive mentioned a forum in the US run by a moderator who screams "CHINESE POISON DOG FOOD" at the mention of generics, and in fact she banned me because I mentioned it, and she usually quickly wipes off any mention. Well some person has managed to get a post on there that has lasted 2 days so far, but a series of replies following it is all misinformation, with other posters saying, well no one in the US has used generics, we can't get generics in the US, and the medicine you are taking must be one of those Gilead licensed generics from India. I tried to correct the misinformation, but am still banned. Any of you who might want to have a go at it could try, the post is titled "API Generics". It mentiones FIXHEPC. the forum site is this:
forums.delphiforums.com/hepatitiscen/messages
the post is as follows:General Discussion - API Generics (143 views
From: bludyianos 12:13 AM
To: All (1 of 9)
47533.1
"It's been a while since I last visited this site. I had given up all hope of a cure after having failed peg/ Ribavarin treatment. Living and working in the UAE I am unable to get insurance to foot the bill for Harvoni so have opted for Chinese generics of sufosbuvir and ledipsavir through FixhepC in Australia. Have been taking the meds for 4 weeks now and had my first blood test two days ago. As I wait for results I cannot help but think should I also be taking riba? Should I be on 24 weeks treatment? I cannot rely on the advice of the docs here as I seem to know more about the medication and the options available than every Hematologist or Gastroenterologists I have visited here. Not being arrogant, it's just they don't seem to know. It's astounding really. I am gen type 1a with 14,000 000 viral load. I wait for results anxiously. Great to hear so many heppers have stayed the dragon on this site. Peace to all"
The other posters on the site continue to promote the myth that only gilead produced drugs are ok and that people in the USA absolutely cannot access them, the moderator tells them all in big bold inch high letters," IT IS ILLEGAL!! " this site has been there for the 20+ years I've been reading up on hepc, so I think its misinforming a fair number of folks. Last night the moderator did a blurb on gilead's price scandal and tried to defend them saying, "Of course they are trying to make Gilead look like the bad guy". The active misinformation and censorship of real info by the moderator bothers me, she has misled a lot of people with that bs, the OLD RATBAG!!
have a go at her if you want, mates, maybe someone on there needs accurate information to obtain generics and help.
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"