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US Patient with balls as big as Sean, Tina and Hazel required 8 years 2 weeks ago #14243
Dr Andrew Hill is a well known and well connected actor on the HIV/HCV "scene". He is also a co-author of our generics paper for EASL. To help stimulated interest in the US media patients with the correct accent are required. If you're up for talking to the media (paper, radio and/or TV) please contact Andrew or I directly. Forwarded message From: Andy <This email address is being protected from spambots. You need JavaScript enabled to view it.> Date: 12 April 2016 at 00:25 Subject: US person to talk with Washington Post? To: James <This email address is being protected from spambots. You need JavaScript enabled to view it.> Hi James, Please could we have a treated US person on the FixHepC programme to give a comment to Washington Post? Just had the request Thanks, Andrew YMMV The following user(s) said Thank You: Hieupham | |
US Patient with balls as big as Sean, Tina and Hazel required 8 years 2 weeks ago #14256
| I wish I could do this for you! But my job is about to be outsourced, and I am aggressively seeking a new one. I can't afford the stigma associated with this disease. If I can do it with my identity being hidden, I will do it. Gt 1a, F0, VL 6.5 million, AST 59, ALT 62 Started Twinvir 1/15/16 6 wk. labs VL UND, AST 27, ALT 20 EOT labs VL UND, AST 23, ALT 19 SVR 16, VL UND, AST 28, ALT 17 SVR 24 , VL UND, 10/8/16 SVR 125, VL UND, 9/22/18 SVR 230, VL UND, 10/3/20 The following user(s) said Thank You: LondonGirl |
US Patient with balls as big as Sean, Tina and Hazel required 8 years 2 weeks ago #14258
Hi GF, If you could send an email to Andrew that would be great. Although I'm sure we will need someone stateside to put a face to it, even putting an anonymous voice to it - with a familiar accent - should help draw the US media in, so it would be great if you could speak anonymously about it. YMMV The following user(s) said Thank You: Greedfighter | |
US Patient with balls as big as Sean, Tina and Hazel required 8 years 2 weeks ago #14260
Doc, You know I would do that in a hearbeat, but I finished on the factory stuff. Still, the story is a pretty good one. I may not be "generic patient '0'" in the U.S., but I have to be close. But, for your purpose, I am "tainted" goods. m This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
US Patient with balls as big as Sean, Tina and Hazel required 8 years 2 weeks ago #14261
| Hey Doc, I sent him an email Gt 1a, F0, VL 6.5 million, AST 59, ALT 62 Started Twinvir 1/15/16 6 wk. labs VL UND, AST 27, ALT 20 EOT labs VL UND, AST 23, ALT 19 SVR 16, VL UND, AST 28, ALT 17 SVR 24 , VL UND, 10/8/16 SVR 125, VL UND, 9/22/18 SVR 230, VL UND, 10/3/20 |
US Patient with balls as big as Sean, Tina and Hazel required 8 years 2 weeks ago #14275
Put in your LA voice instead. There is a reason why most newscasters speak like they are from Cal. giphy.com/gifs/dance-kJlKrFUbCwgKs contracted Gen 1a in the 70's, dx in 2007...ast 27 to 35...alt 43 to 96...vl 1.2 mil to 8.6 mil. biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil tx started 2/11/16.... lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml 28 days later.............lab results 3/9/16 ast 21, alt 21, vl UND 56 days later.............lab results 4/6/16 ast 20, alt 22, vl UND 139 days later...........lab results 6/29/16 ast 28, alt 30, vl UND...EOT SVR24 The following user(s) said Thank You: mgalbrai | |
US Patient with balls as big as Sean, Tina and Hazel required 8 years 2 weeks ago #14279
Go for it Mike, you are a generics importation representative for sure with the blessing of all, no matter what packet you got them out of. I am dreaming of fixhepc, the screenplay. We already have the cast of characters, you write your own dialogue! and we need a young Don Adams to star as you. But until then, tell them about it. You too GF, on your own terms. Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 The following user(s) said Thank You: mgalbrai, Greedfighter | |
US Patient with balls as big as Sean, Tina and Hazel required 8 years 2 weeks ago #14286
This email address is being protected from spambots. You need JavaScript enabled to view it. Genotype 3 VL 4,100,000 ALT 101 AST 71 Treatment Naive Started Sof/Dac Jan 12, 2016 VL= <15 4 weeks in. AST/ALT normal. VL=UNDETECTED 8 weeks in. SVR4= Virus back. 3,300,000 Started generic Epclusa Sep. 23, 2017 4 weeks in <15 *Detected. 12 weeks in <15 *Not Detected. 16 weeks in <15 *Not Detected. Finished 24 weeks treatment 3-17-18 SVR5 <15 Not Detected. SVR 20 <15 Not Detected. SVR 44 <15 Not Detected. Thank you Jesus. Thank you Dr. James | |
US Patient with balls as big as Sean, Tina and Hazel required 8 years 1 week ago #14792
We have a nurse on treatment. I'll pass the message to her and to Alex (who's making the video on treating with generics). She would be perfect. She likes cameras and interviews. P. The following user(s) said Thank You: mgalbrai | |
US Patient with balls as big as Sean, Tina and Hazel required 8 years 1 week ago #14816
P, I think I agree with you, but I'm conflicted.. sort of. This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
US Patient with balls as big as Sean, Tina and Hazel required 8 years 1 week ago #14848
It's turned out to be academic. The Washington Post, New York Times and Boston Globe have all decided NOT to run the story. While one view would be the evil hand of Big Pharma suppressed the story it's probably a bit more pragmatic. If we had FAILED that would have been news, but given the lack of failure.... The problem is that the story was effectively communicated as "Cheaper versions of already proven American drugs have been proven to work by people who are not Americans, treating people who not Americans, reporting to people who are not Americans somewhere which is not in America called Spain, at some conference which is not American called the EASL ILC 2016" Getting this story to float in the mainstream media in the USA is going to take work, and quite possibly a blonde hair, big boobs and uber fame celebrity endorsement. Sad as it may be if Pamela Anderson had said "I had Hep C, took generics, and got cured" then the US media would be all over it. YMMV The following user(s) said Thank You: mgalbrai | |
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