English
×

Notice

The forum is in read only mode.
Welcome, Guest
Username: Password: Remember me
Forgot your password? Forgot your username? Create an account
Forum
Main Forum
Patient Stories
New to Forum
Day 1... here we go

TOPIC:

Day 1... here we go 7 years 5 months ago #24090

  • coral
  • coral's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 606
  • Karma: 38
  • Thank you received: 1812
Hi Cameralady and Welcome, :)

You are nearly 2 weeks in now so your treatment is well underway and you're just that bit closer to being HepC free. Yay!
I'm so pleased that you have good people in your corner. All kudos to your lead nurse.

During my treatment I found that my energy levels went up and down and some of this is probably due to the normal fluctuations
that everyone experiences. I think that having Hep C and then having the treatment makes us super tuned in to our physical and emotional selves.

I really noticed the difference when the virus cleared. I felt like a dark cloud had lifted and I just felt more energetic and lighter in mood but I still had low energy days. I followed all of the good advice here and tried to be kind to myself.

Looking forward to seeing your updates.

Coral
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: DrJames, mgalbrai, Paul-Jarman-facebook, Edge

Day 1... here we go 7 years 5 months ago #24091

  • coral
  • coral's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 606
  • Karma: 38
  • Thank you received: 1812
Hi Edge - good to hear from you.

Not so long to go now until you finish your treatment. I relapsed (on the DAAs) and finished my second round of treatment nearly 6 weeks ago. Things feel pretty good so far.

I think I also had every sleeping pattern during the treatment. Good sleep then falling asleep easily and waking at 3 am, then not falling asleep etc. etc. It certainly does sap your energy during the day.

Since finishing treatment I've had quite noticeable insomnia (can't fall asleep until the wee hours of the morning). I'm hoping it's a passing phase but I'll take that over the virus any day!

Good luck - those last few week will fly by.

Coral
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: DrJames, Paul-Jarman-facebook, Gaj, Edge

Day 1... here we go 7 years 5 months ago #24104

coral wrote:
Since finishing treatment I've had quite noticeable insomnia (can't fall asleep until the wee hours of the morning). I'm hoping it's a passing phase but I'll take that over the virus any day!


Coral


I'm about 18 weeks post treatment Coral and the Insomnia is noticeably wearing off now, I work nights and take 1/2 a stillnox to sleep still but not for much longer I think.

I am still overly sensitive to heat but hoping that wears off soon.

cheers
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
The following user(s) said Thank You: DrJames, beaches

Day 1... here we go 7 years 5 months ago #24137

  • coral
  • coral's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 606
  • Karma: 38
  • Thank you received: 1812
Hi Paul,

Is that 18 weeks for you already? Good to hear that your sleeping patterns are settling down. The insomnia seems to be easing a bit for me as well. I certainly caught up on some of my reading!!

Keep well and let us know when you hit the magic 24.

Coral
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: DrJames, Gaj

Day 1... here we go 7 years 5 months ago #24150

  • Edge
  • Edge's Avatar Topic Author
  • Offline
  • Junior Member
  • Junior Member
  • Posts: 20
  • Thank you received: 75

Edge wrote: I'll need to have some more blood work done and will update on this as soon as I have results.


All - just received some updated results. Blood taken a week ago, 19 weeks in. Still showing UND, with ALT at 23 and AST at 20. Only 4 weeks to go now to EOT.

Coral - hoping I'm not hit with the same insomnia!! Haha - first I complain at having now energy and now I'm complaining at the thought of no sleep! Just can't be pleased, right?!
Genotype 1B

SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

EOT (5/1/17): VL UND / ALT 32 / AST 22
T+19w (3/27/17): VL UND / ALT 23 / AST 20
T+4w (12/12/16): VL UND / ALT 31 / AST 24
T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.
The following user(s) said Thank You: coral, Gaj, beaches, nads

Day 1... here we go 7 years 5 months ago #24151

  • DrJames
  • DrJames's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 1980
  • Karma: 111
  • Thank you received: 7263
Hi Edge, that all sounds to be on track. Good luck for SVR!
YMMV
The following user(s) said Thank You: Edge

Day 1... here we go 7 years 5 months ago #24160

  • coral
  • coral's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 606
  • Karma: 38
  • Thank you received: 1812
Hi Edge - great results and the last four weeks will fly by. :woohoo:

I know what you mean. We lose a virus and gain an Attitude!

There are so many different side effects that you may not be hit with the insomnia stick. I'm happy to report that things have settled down a bit now and I am sleeping much better. I've made an effort to be the healthiest I can be (within reason - I still love champagne and chocolate) and I think it's made a difference.

Dr F emailed me today about my 6 week EOT results and it's all good so far.
Looking forward to your EOT post #flower #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: Gaj

Day 1... here we go 7 years 4 months ago #24333

  • Edge
  • Edge's Avatar Topic Author
  • Offline
  • Junior Member
  • Junior Member
  • Posts: 20
  • Thank you received: 75
Thanks Dr Freeman. Made it to EOT. Now the road to SVR begins!
Genotype 1B

SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

EOT (5/1/17): VL UND / ALT 32 / AST 22
T+19w (3/27/17): VL UND / ALT 23 / AST 20
T+4w (12/12/16): VL UND / ALT 31 / AST 24
T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.
The following user(s) said Thank You: DrJames, coral, Gaj, Mnem

Day 1... here we go 7 years 4 months ago #24356

  • coral
  • coral's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 606
  • Karma: 38
  • Thank you received: 1812
Yay! Great to hear you're at EOT Edge. I look forward to hearing about your SVR 6. #flower #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: Gaj, Edge

Day 1... here we go 7 years 3 months ago #24799

  • Edge
  • Edge's Avatar Topic Author
  • Offline
  • Junior Member
  • Junior Member
  • Posts: 20
  • Thank you received: 75
Update for those interested: SVR 4 :+1:

Plodding along nicely. No real changes in health to comment on at this time. I feel good, energy increasing. SVR 12 next stop.
Genotype 1B

SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

EOT (5/1/17): VL UND / ALT 32 / AST 22
T+19w (3/27/17): VL UND / ALT 23 / AST 20
T+4w (12/12/16): VL UND / ALT 31 / AST 24
T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.
The following user(s) said Thank You: DrJames, coral, Gaj, splitdog, Hazel, Iain, Mnem

Day 1... here we go 7 years 3 months ago #24800

Good for you, brother. Praise the Lord.
This email address is being protected from spambots. You need JavaScript enabled to view it.

Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
The following user(s) said Thank You: Edge

Day 1... here we go 7 years 3 months ago #24804

  • DrJames
  • DrJames's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 1980
  • Karma: 111
  • Thank you received: 7263

Update for those interested: SVR 4 :+1:


May your 4 be followed by 5 more. Amen.
YMMV
The following user(s) said Thank You: Gaj, beaches, splitdog, Sven, Mnem

Day 1... here we go 7 years 2 months ago #24941

  • Sven
  • Sven's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 333
  • Karma: 24
  • Thank you received: 1213
As said to me when I ended treatment UND....."You've got this, you're done".
Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
The following user(s) said Thank You: DrJames, Gaj, beaches, Edge, Mnem

Day 1... here we go 7 years 1 month ago #25191

  • Edge
  • Edge's Avatar Topic Author
  • Offline
  • Junior Member
  • Junior Member
  • Posts: 20
  • Thank you received: 75
Little late in posting but got my SVR12! Almost there. Thanks for the continued support!
Genotype 1B

SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

EOT (5/1/17): VL UND / ALT 32 / AST 22
T+19w (3/27/17): VL UND / ALT 23 / AST 20
T+4w (12/12/16): VL UND / ALT 31 / AST 24
T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.
The following user(s) said Thank You: DrJames, coral, Hazel, Iain

Day 1... here we go 7 years 1 month ago #25192

  • Iain
  • Iain's Avatar
  • Offline
  • Administrator
  • Administrator
  • Posts: 30
  • Karma: 1
  • Thank you received: 63
Congratulations Edge!
The following user(s) said Thank You: Edge
Forum
Main Forum
Patient Stories
New to Forum
Day 1... here we go
Time to create page: 0.101 seconds

Copyright © 2015-2020 FixHepC

Delivery Guarantee Privacy Terms of service
Back to Top