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Meg's Test Results 7 years 10 months ago #18351
I don´t know what they are singing but this video and song will forever remind me of you - from all corners or the world playing for change and equanimity. And I am actually dancing around with it. Blood transfusion in 1992 - Diagnosed in 2007 Tx naive -G1b - F1 VL 2.270.000 ALT 40 Start tx June 4th/2016 with DAAs - Sof/Led from India Bloods on two weeks of tx (June 18th) AST 17 - ALT 10 - GGT 19 Virus UND Bloods on six weeks of tx (July 16th) AST 17 - ALT 8 - GGT 12 Virus UND EOT on August 8th (did 9 weeks and 3 days) SVR 4 Virus UND (September 7th) AST 13 - ALT 5 SVR 14 Virus UND (November 12th) | |
Meg's Test Results 7 years 10 months ago #18357
Two weeks Meg!! Not sure if that's a record but what a fantastic results. I should also sort out my emoticon skills but for now a simple flower for you G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 | |
Meg's Test Results 7 years 10 months ago #18360
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2 22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve) 10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India 09/05/16: ALT 34, VL: NOT Detected 17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72 | |
Meg's Test Results 7 years 10 months ago #18363
Just catching up with your news....Fantastic! Congratulations Meg - so quick! Geno 1a, F1, tx naive, had it 35 yrs. Started Cipla HepcvirL on 12/01/16 Starting VL 490,000 At 16 days in <15 4 week results: UND 8 week results: UND 5 weeks EOT alt 25 SVR 15 - Not Detected 6 months EOT - Not Detected | |
Meg's Test Results 7 years 10 months ago #18368
Thank you everyone!! When I first consulted with my gastroenterologist here I already had the DAAs in my hands which made him smile Very big! He was quite surprised actually and immediately asked me for the "booklet" that comes along with the meds to research SAFINO L on line. Then he told me OKAY, let´s do it and gave me blood tests prescriptions for 4 weeks after starting tx to which I replied nuh.. Blood transfusion in 1992 - Diagnosed in 2007 Tx naive -G1b - F1 VL 2.270.000 ALT 40 Start tx June 4th/2016 with DAAs - Sof/Led from India Bloods on two weeks of tx (June 18th) AST 17 - ALT 10 - GGT 19 Virus UND Bloods on six weeks of tx (July 16th) AST 17 - ALT 8 - GGT 12 Virus UND EOT on August 8th (did 9 weeks and 3 days) SVR 4 Virus UND (September 7th) AST 13 - ALT 5 SVR 14 Virus UND (November 12th) | |
Meg's Test Results 7 years 10 months ago #18387
Congrats Meg!!! Two weeks is very fast! And I have to ask, because the names are new to me ... I've never heard of Uth Healthcare or Safino L before. Does the box indicate the suggested price and the manufacturer? Is this targeted for some specific region? I'm assuming you got it through MonkMed. And just to let all the newer members know ... it's here in the forum somewhere ... but back in the early stages of REDEMPTION 1 James wanted to test either Corevigen or Darvoni (don't remember off hand) and was checking on RVR (Rapid Virologic Response?) and as such had some people do one week of the new combo and then test. It sticks in my mind that a couple people got UND and I think one got there in 6 days. I'll have to try searching for it later. But still, most people are very happy to get there in 4 weeks ... I didn't test until 6 weeks. So again, congratulations. I'm happy for you. | |
Meg's Test Results 7 years 10 months ago #18417
Thank you Klhilde SAFINO L is a generic Harvoni (Sof/Led) made in India by a lab called HETERO. It was sent to me by Greg Jefferys. I think it targets India but anyone can go to India and consult with a doctor there or have it send to us by providing bloods, fibroscan, doctor's prescription. I did not see a suggested price on the label but it is about the same price as Redemption sources tx for 12 weeks. Wondering why some people respond in two week only. (rapid virological response) while others with exact the same conditions don't. Is it the immune system? My lay assumption is that perhaps many people (with similar conditions as me) would respond after just 2 weeks too - but since they don't test until 4 weeks after starting tx so they don't actually know they are already undetectable! Blood transfusion in 1992 - Diagnosed in 2007 Tx naive -G1b - F1 VL 2.270.000 ALT 40 Start tx June 4th/2016 with DAAs - Sof/Led from India Bloods on two weeks of tx (June 18th) AST 17 - ALT 10 - GGT 19 Virus UND Bloods on six weeks of tx (July 16th) AST 17 - ALT 8 - GGT 12 Virus UND EOT on August 8th (did 9 weeks and 3 days) SVR 4 Virus UND (September 7th) AST 13 - ALT 5 SVR 14 Virus UND (November 12th) | |
Meg's Test Results 7 years 10 months ago #18426
YMMV | |
Meg's Test Results 7 years 10 months ago #18428
Dear Meg, Congratulations! Great news and all the best for treatment completion!. Needed a favor, could you please double check Safino L bottles says 'manufactured' from Hetero? And also if its 'marketed' by some other company? That will greatly help everyone in the forum and also us . We get a lot of questions around brand names and product packaging descriptons. Thanks for your kind help in this regard. We work very closely with Hetero and have not heard of Safino L. Also double checked with Area Sales Manager of Hetero and they are not aware. Its late evening in India and we will call Sales Head tomorrow to be 100% sure. Also UTH which goes by name Emcure does not have Hep C medications as far as we know and their website www.emcure.co.in/products_Pharma.asp Its possible they have launched it recently we would like to know about it so that we can keep people informed. For everyone's general information, Hetero Sof+Led brand when launched was called LediSOF in some markets and LediFOS in some other. That caused a lot of confusion and concern about fake drugs. Also they changed the packaging in 3 months of launch adding to more confusion. In the end Hetero sent out a public apology and corrected the name to LediFOS. Its the name that was approved by DCGI(Drug Controller General of India). Here is the link. www.evaluategroup.com/Universal/View.aspx?type=Story&id=624686 | |
Meg's Test Results 7 years 10 months ago #18434
Thank you for the warm wishes Monkmed. Yes on the bottle it says: Manufactured by: Hetero Labs LImited (Unit II) I don't see the name of any other company on it except that it has a "UTH health" care logo. I believe they have just launched SAFINO L very recently. Hope this helps! Blood transfusion in 1992 - Diagnosed in 2007 Tx naive -G1b - F1 VL 2.270.000 ALT 40 Start tx June 4th/2016 with DAAs - Sof/Led from India Bloods on two weeks of tx (June 18th) AST 17 - ALT 10 - GGT 19 Virus UND Bloods on six weeks of tx (July 16th) AST 17 - ALT 8 - GGT 12 Virus UND EOT on August 8th (did 9 weeks and 3 days) SVR 4 Virus UND (September 7th) AST 13 - ALT 5 SVR 14 Virus UND (November 12th) | |
Meg's Test Results 7 years 10 months ago #18436
Dear Meg, You are most welcome and many thanks for clarifying. You are absolutely right. We also just heard back from UTH and they very recently launched into the Hepatology segment and the product is with very few stockists. Attached is the flyer so that people can match the box if they are getting Safino L. Below is the link from UTH . uthhealthcare.com/hepatology/ Warm Regards, Tim MonkMed Care Team www.monkmed.com twitter.com/MonkMedCare www.facebook.com/monkmedcare | |
Meg's Test Results 7 years 10 months ago #18439
Good morning Meg You can't get any better news isn't it a magical feeling Also I have often relaxed and watched the video you posted its beautiful ty Wonderful news on UND at two weeks in tx Yesterday was a great day! I'm so happy for you and others too with great results coming in My own run in with the illness is behind me now having achieved SVR12 yesterday Yesterday was a damned fine day! Other friends are having important results this week too wishing those friends huge success too Love from Ariel Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
Meg's Test Results 7 years 10 months ago #18454
SVR12 is awesome Ariel! Happy for you and for all the good news this week indeed. ah that song...I listen to it everyday Blood transfusion in 1992 - Diagnosed in 2007 Tx naive -G1b - F1 VL 2.270.000 ALT 40 Start tx June 4th/2016 with DAAs - Sof/Led from India Bloods on two weeks of tx (June 18th) AST 17 - ALT 10 - GGT 19 Virus UND Bloods on six weeks of tx (July 16th) AST 17 - ALT 8 - GGT 12 Virus UND EOT on August 8th (did 9 weeks and 3 days) SVR 4 Virus UND (September 7th) AST 13 - ALT 5 SVR 14 Virus UND (November 12th) | |
Meg's Test Results 7 years 10 months ago #18459
Hi Meg You knocked out HCV RNA in the second round. Some have had first round knock-outs. It depends on how quick refs are prepared to give standing 10 counts. In any case, you’ve won the first fight and I just wanted to make you feel like a winner and give you confidence, just in case HCV demands a re-match. I used poetic licence of hyperbole & alliteration when congratulating you on being undetected. In hindsight, I probably didn’t need to do it as your positivity bounces off your posts. Keep it up. I’ll try to stick to the facts from now on. Cheers GT2 1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2 22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve) 10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India 09/05/16: ALT 34, VL: NOT Detected 17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72 | |
Meg's Test Results 7 years 10 months ago #18460
Thanks GT2 I enjoyed reading your licensed hyperbole & alliteration on congratulating me. Very much! Had to stretch my imagination a bit though ... but I got the picture. Btw Smiles here so big they are falling off my face! Blood transfusion in 1992 - Diagnosed in 2007 Tx naive -G1b - F1 VL 2.270.000 ALT 40 Start tx June 4th/2016 with DAAs - Sof/Led from India Bloods on two weeks of tx (June 18th) AST 17 - ALT 10 - GGT 19 Virus UND Bloods on six weeks of tx (July 16th) AST 17 - ALT 8 - GGT 12 Virus UND EOT on August 8th (did 9 weeks and 3 days) SVR 4 Virus UND (September 7th) AST 13 - ALT 5 SVR 14 Virus UND (November 12th) | |
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