emo Meg's Test Results

More
6 years 1 month ago #18351

I don´t know what they are singing but this video and song will forever remind me of you - from all corners or the world playing for change and equanimity. And I am actually dancing around with it. :silly: :kiss:


Blood transfusion in 1992 - Diagnosed in 2007
Tx naive -G1b - F1
VL 2.270.000
ALT 40
Start tx June 4th/2016 with DAAs - Sof/Led from India
Bloods on two weeks of tx (June 18th)
AST 17 - ALT 10 - GGT 19
Virus UND
Bloods on six weeks of tx (July 16th)
AST 17 - ALT 8 - GGT 12
Virus UND
EOT on August 8th (did 9 weeks and 3 days)

SVR 4 Virus UND (September 7th)
AST 13 - ALT 5

SVR 14 Virus UND (November 12th)
Last Edit: 6 years 1 month ago by Meg.
The following user(s) said Thank You: coral, pat1, Ariel, Matt-Kenney-google, GT2, fitz

Please Log in or Create an account to join the conversation.

More
6 years 1 month ago #18357

Two weeks Meg!! Not sure if that's a record but what a fantastic results. I should also sort out my emoticon skills but for now a simple flower for you #flower with big congratulations.


G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
The following user(s) said Thank You: Meg, fitz

Please Log in or Create an account to join the conversation.

More
6 years 1 month ago #18360

Congratulations Meg

U may have set an unbreakable undetectable record … there’s nothing stopping U now …



#love

GT2

Attachments:

1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
The following user(s) said Thank You: beaches, Matt-Kenney-google, Meg, fitz

Please Log in or Create an account to join the conversation.

More
6 years 1 month ago #18363

Just catching up with your news....Fantastic! :+1: :+1: :+1:
Congratulations Meg - so quick! #flower
#magic


Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
The following user(s) said Thank You: Meg, fitz

Please Log in or Create an account to join the conversation.

More
6 years 1 month ago #18368

Thank you everyone!! #love #flower

When I first consulted with my gastroenterologist here I already had the DAAs in my hands which made him smile Very big! He was quite surprised actually and immediately asked me for the "booklet" that comes along with the meds to research SAFINO L on line. Then he told me OKAY, let´s do it and gave me blood tests prescriptions for 4 weeks after starting tx to which I replied nuh.. ;) I am so curious to find these pills are working I am going to the lab after two weeks only - and so I did last Saturday - June 18th. Now I can't wait to go back to my second appointment with the results in hand - although I already called his office the minute I found out the awesome news- to let them know that they could check it on line. By the way depending on the labs here - patients have the right to access their bloods (even before the doctors) with our username and password.


Blood transfusion in 1992 - Diagnosed in 2007
Tx naive -G1b - F1
VL 2.270.000
ALT 40
Start tx June 4th/2016 with DAAs - Sof/Led from India
Bloods on two weeks of tx (June 18th)
AST 17 - ALT 10 - GGT 19
Virus UND
Bloods on six weeks of tx (July 16th)
AST 17 - ALT 8 - GGT 12
Virus UND
EOT on August 8th (did 9 weeks and 3 days)

SVR 4 Virus UND (September 7th)
AST 13 - ALT 5

SVR 14 Virus UND (November 12th)
Last Edit: 6 years 1 month ago by Meg. Reason: typos
The following user(s) said Thank You: Matt-Kenney-google, GT2, fitz

Please Log in or Create an account to join the conversation.

More
6 years 1 month ago #18387

Congrats Meg!!! Two weeks is very fast!

And I have to ask, because the names are new to me ... I've never heard of Uth Healthcare or Safino L before.
Does the box indicate the suggested price and the manufacturer? Is this targeted for some specific region?

I'm assuming you got it through MonkMed.

And just to let all the newer members know ... it's here in the forum somewhere ... but back in the early stages of REDEMPTION 1 James wanted to test either Corevigen or Darvoni (don't remember off hand) and was checking on RVR (Rapid Virologic Response?) and as such had some people do one week of the new combo and then test. It sticks in my mind that a couple people got UND and I think one got there in 6 days. I'll have to try searching for it later.

But still, most people are very happy to get there in 4 weeks ... I didn't test until 6 weeks.

So again, congratulations. I'm happy for you.

The following user(s) said Thank You: DrJames, mgalbrai, Matt-Kenney-google, Meg, fitz

Please Log in or Create an account to join the conversation.

More
6 years 1 month ago #18417

Thank you Klhilde #flower

SAFINO L is a generic Harvoni (Sof/Led) made in India by a lab called HETERO. It was sent to me by Greg Jefferys. I think it targets India but anyone can go to India and consult with a doctor there or have it send to us by providing bloods, fibroscan, doctor's prescription.

I did not see a suggested price on the label but it is about the same price as Redemption sources tx for 12 weeks.

Wondering why some people respond in two week only. (rapid virological response) while others with exact the same conditions don't. Is it the immune system? My lay assumption is that perhaps many people (with similar conditions as me) would respond after just 2 weeks too - but since they don't test until 4 weeks after starting tx so they don't actually know they are already undetectable!


Blood transfusion in 1992 - Diagnosed in 2007
Tx naive -G1b - F1
VL 2.270.000
ALT 40
Start tx June 4th/2016 with DAAs - Sof/Led from India
Bloods on two weeks of tx (June 18th)
AST 17 - ALT 10 - GGT 19
Virus UND
Bloods on six weeks of tx (July 16th)
AST 17 - ALT 8 - GGT 12
Virus UND
EOT on August 8th (did 9 weeks and 3 days)

SVR 4 Virus UND (September 7th)
AST 13 - ALT 5

SVR 14 Virus UND (November 12th)
Last Edit: 6 years 1 month ago by Meg.
The following user(s) said Thank You: klhilde, mgalbrai, fitz

Please Log in or Create an account to join the conversation.

More
6 years 1 month ago #18426

In the graph below you will see all the results for patients on generics. The lines are the average and the size of the dot is relative to the log of the number of people with that viral load.


Attachments:

YMMV
Last Edit: 6 years 1 month ago by DrJames.
The following user(s) said Thank You: coral, mgalbrai, Ariel, beaches, Matt-Kenney-google, Meg, GT2, fitz

Please Log in or Create an account to join the conversation.

More
6 years 1 month ago #18428

Dear Meg,

Congratulations! Great news and all the best for treatment completion!.

Needed a favor, could you please double check Safino L bottles says 'manufactured' from Hetero? And also if its 'marketed' by some other company? That will greatly help everyone in the forum and also us . We get a lot of questions around brand names and product packaging descriptons. Thanks for your kind help in this regard.

We work very closely with Hetero and have not heard of Safino L. Also double checked with Area Sales Manager of Hetero and they are not aware. Its late evening in India and we will call Sales Head tomorrow to be 100% sure. Also UTH which goes by name Emcure does not have Hep C medications as far as we know and their website

www.emcure.co.in/products_Pharma.asp

Its possible they have launched it recently we would like to know about it so that we can keep people informed.

For everyone's general information, Hetero Sof+Led brand when launched was called LediSOF in some markets and LediFOS in some other. That caused a lot of confusion and concern about fake drugs. Also they changed the packaging in 3 months of launch adding to more confusion. In the end Hetero sent out a public apology and corrected the name to LediFOS. Its the name that was approved by DCGI(Drug Controller General of India). Here is the link.

www.evaluategroup.com/Universal/View.aspx?type=Story&id=624686

Last Edit: 6 years 1 month ago by MonkMed.
The following user(s) said Thank You: coral, mgalbrai, beaches, Matt-Kenney-google, Meg, GT2, fitz, Sven

Please Log in or Create an account to join the conversation.

More
6 years 1 month ago #18434

Thank you for the warm wishes Monkmed.

Yes on the bottle it says:
Manufactured by: Hetero Labs LImited (Unit II)
I don't see the name of any other company on it except that it has a "UTH health" care logo.

I believe they have just launched SAFINO L very recently.

Hope this helps!


Blood transfusion in 1992 - Diagnosed in 2007
Tx naive -G1b - F1
VL 2.270.000
ALT 40
Start tx June 4th/2016 with DAAs - Sof/Led from India
Bloods on two weeks of tx (June 18th)
AST 17 - ALT 10 - GGT 19
Virus UND
Bloods on six weeks of tx (July 16th)
AST 17 - ALT 8 - GGT 12
Virus UND
EOT on August 8th (did 9 weeks and 3 days)

SVR 4 Virus UND (September 7th)
AST 13 - ALT 5

SVR 14 Virus UND (November 12th)
The following user(s) said Thank You: MonkMed, GT2, fitz

Please Log in or Create an account to join the conversation.

More
6 years 1 month ago #18436

Dear Meg,

You are most welcome and many thanks for clarifying.

You are absolutely right. We also just heard back from UTH and they very recently launched into the Hepatology segment and the product is with very few stockists.

Attached is the flyer so that people can match the box if they are getting Safino L.

Below is the link from UTH .

uthhealthcare.com/hepatology/

Warm Regards,
Tim
MonkMed Care Team
www.monkmed.com
twitter.com/MonkMedCare
www.facebook.com/monkmedcare

Attachments:
Last Edit: 6 years 1 month ago by MonkMed.
The following user(s) said Thank You: klhilde, mgalbrai, Gaj, Tommy, Meg, GT2, fitz

Please Log in or Create an account to join the conversation.

More
6 years 1 month ago #18439

Good morning Meg
You can't get any better news isn't it a magical feeling #love
Also I have often relaxed and watched the video you posted its beautiful ty :+1:
Wonderful news on UND at two weeks in tx
Yesterday was a great day! I'm so happy for you and others too with great results coming in
My own run in with the illness is behind me now having achieved SVR12 yesterday
Yesterday was a damned fine day!
Other friends are having important results this week too wishing those friends huge success too
Love from Ariel #flower #flower


Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: coral, pat1, mgalbrai, beaches, Meg, GT2

Please Log in or Create an account to join the conversation.

More
6 years 1 month ago #18454

SVR12 is awesome Ariel! #magic
Happy for you and for all the good news this week indeed.

ah that song...I listen to it everyday :silly:


Blood transfusion in 1992 - Diagnosed in 2007
Tx naive -G1b - F1
VL 2.270.000
ALT 40
Start tx June 4th/2016 with DAAs - Sof/Led from India
Bloods on two weeks of tx (June 18th)
AST 17 - ALT 10 - GGT 19
Virus UND
Bloods on six weeks of tx (July 16th)
AST 17 - ALT 8 - GGT 12
Virus UND
EOT on August 8th (did 9 weeks and 3 days)

SVR 4 Virus UND (September 7th)
AST 13 - ALT 5

SVR 14 Virus UND (November 12th)
Last Edit: 6 years 1 month ago by Meg. Reason: typos whatelse? :-)
The following user(s) said Thank You: Ariel, fitz

Please Log in or Create an account to join the conversation.

More
6 years 1 month ago #18459

Hi Meg

You knocked out HCV RNA in the second round. Some have had first round knock-outs. It depends on how quick refs are prepared to give standing 10 counts. In any case, you’ve won the first fight and I just wanted to make you feel like a winner and give you confidence, just in case HCV demands a re-match.

I used poetic licence of hyperbole & alliteration when congratulating you on being undetected. In hindsight, I probably didn’t need to do it as your positivity bounces off your posts. Keep it up.

I’ll try to stick to the facts from now on.

Cheers

GT2


1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
The following user(s) said Thank You: Matt-Kenney-google, Meg, fitz

Please Log in or Create an account to join the conversation.

More
6 years 1 month ago #18460

Thanks GT2

I enjoyed reading your licensed hyperbole & alliteration on congratulating me. Very much!
Had to stretch my imagination a bit though ... but I got the picture.
Btw Smiles here so big they are falling off my face! :woohoo:

:kiss:


Blood transfusion in 1992 - Diagnosed in 2007
Tx naive -G1b - F1
VL 2.270.000
ALT 40
Start tx June 4th/2016 with DAAs - Sof/Led from India
Bloods on two weeks of tx (June 18th)
AST 17 - ALT 10 - GGT 19
Virus UND
Bloods on six weeks of tx (July 16th)
AST 17 - ALT 8 - GGT 12
Virus UND
EOT on August 8th (did 9 weeks and 3 days)

SVR 4 Virus UND (September 7th)
AST 13 - ALT 5

SVR 14 Virus UND (November 12th)
The following user(s) said Thank You: Matt-Kenney-google, GT2, fitz

Please Log in or Create an account to join the conversation.

Time to create page: 0.062 seconds

Copyright © 2015-2020 FixHepC

Back to Top