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Nadia's journey 8 years 7 months ago #549
Hi David, I am being monitored in London. I did not have a script, managed to buy my drugs directly from the suppliers without one. Virus not detected from 14.10.2015 | |
Nadia's journey 8 years 7 months ago #550
And your old consultant would be wrong Nadia: hcvsvrpredictor.liverdoc.com/#/ My old consultant also said the same to me. And the average Joe/Joanne Hepper will believe them. If they could find it in themselves to be honest with us, they would tell us that it's the cheapest treatment for G3 using new meds. | |
Nadia's journey 8 years 7 months ago #552
Not sure how accurate this predictor is. The best result for GT3 with cirrosis on Harvoni with riba? Of course we all know that the NHS budget availability determines the best treatment for us Virus not detected from 14.10.2015 | |
Nadia's journey 8 years 7 months ago #555
i have a friend on an NHS trial in Wales that did 12 weeks sof/dac for gt3,prior non responder and cirrhosis.He relapsed 12 weeks after tx and now has to do 24 weeks sof/dac/riba.unfortunately I think interferon combo with sof/riba is still the best for g3.Not certain about this as things are moving so fast.. | |
Nadia's journey 8 years 7 months ago #557
If the money is not an issue, I think any GT3 with cirrosis should go for 24 weeks with riba first time around. This is the worse type to treat with the new Daas Virus not detected from 14.10.2015 | |
Nadia's journey 8 years 7 months ago #558
i had the same conversation with someone else .i thought 24 weeks is best but the other guy said there is no advantage in doing 24.if you are going to clear 12 will do it.all i know is that my friend did 12 and didnt clear. | |
Nadia's journey 8 years 7 months ago #559
Maybe they didn't know back then what they know now (we'd have to find an older EASL report to find out), but the EASL standard for G3 cirrhotics is 24 weeks Sof/Dac/Riba. The treatment using interferon is sub-optimal, and only used because it's cheaper. The following user(s) said Thank You: katy8katy0 | |
Nadia's journey 8 years 7 months ago #560
That was probably me. Just to make clear: 12 weeks Sof/Dac is for non-cirrhotic/non-borderline G3's. | |
Nadia's journey 8 years 7 months ago #562
hi alsdad,yes it was you i had that convo with.the trial my friend is on was very recent.he is still on the 24 week follow up tx.i am sure he would have cleared if they gave him 24 to start with and yes,its very possibly a cost thing with the interferon.it makes me mad that wales nhs have only approved harvoni for 12 weeks when some people clearly would benefit from 24. | |
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