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Young J the dragon slayer 8 years 3 months ago #9605
Tho' I have vague memories of being that age once so not holding my breath over him feeling more like doing his homework. Ha! 'fraid you may be right Gaj !! x J the young dragon slayer is: HepC 1a since birth Male aged 15 VL 2000000 Started Twinvir/ 10-11-15-then Sof/led. NO sides so far ! after one week VL : 37 after 4 wks VL : UND ! EOT 2/2/16 UND.! 4 wks. post tx results....pending.... 7/3/16 VL result : 4 week post tx: SVR ! 12 weeks SVR ! 24 wks SVR yeeaa!! | |
Young J the dragon slayer 8 years 3 months ago #9606
You are amazing your whole life is inspiring and your story both of you has completely overwhelmed me Congratulations on all the incredible outcomes you have achieved Xxxxx Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 The following user(s) said Thank You: CJ | |
Young J the dragon slayer 8 years 3 months ago #9610
| Cindi that is amazing......J's treatment finishing soon...and a 16th birthday to celebrate! So glad everything has gone so smoothly and he is at School ready to tackle Year 11........look forward to seeing his final results. Dr Freeman advised me of the following "At 4 weeks post treatment UND means a 96% chance of absolute cure, and at 12 weeks UND means 99%". Hope this helps your query. Best wishes to you both. Lives in Bendigo, Victoria No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal Insomnia the only side effect Undetected at 4 weeks SVR4 - undetected - all bloods good and GP very happy SVR12 bloods to be done at end of April 2016 SVR12 - undetected!!! The following user(s) said Thank You: CJ |
Young J the dragon slayer 8 years 3 months ago #9615
Hi Cindi, Happy Birthday to J and well done you! I remember when J was starting out on his treatment. It's still hard to believe that people shoot out the other end so quickly and so undetected! Wishing you the very best results for his 16th. Coral G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 The following user(s) said Thank You: CJ | |
Young J the dragon slayer 8 years 3 months ago #9616
Cj you and your boy deserve all the health and happiness coming your way gt 1a VL 6m F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015 sof/dac 10 December for 12 weeks pre tx alt 85 ast 51 4 wk alt 34 ast 31 UND <35 8 wk alt 29 ast 32 UND <15 12wk alt 25 ast 25 EOT 3.3.16 SVR24 UND KPa5.3 F0 in normal range I am well .forever grateful to fixhepc The following user(s) said Thank You: CJ | |
Young J the dragon slayer 8 years 3 months ago #9626
This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
Young J the dragon slayer 8 years 2 months ago #10574
Just wanted to update. J has finished his 12 week tx, and was tested & UD, which I thought he would be but nice to see anyway. Now the wait for the "big one" post tx 4 week VL. He's doing really well & very happy. He today had to see his dermatologist, who works with his old liver specialist. She asked how's J's health going, & I told her how he is virus free & she was so happy for him, but her smile seemed to fade a little when I told her it was from "generics". I expected that reaction, most specialists just don't know enough about them I guess. But she may not completely believe, me I think, because she's insisted that he has a LFT test tomorrow. ....What a waist of time, oh well, I guess she'll see his good ALT & AST & see for herself. Anyway, we will keep posting his results. And I'll still be hanging around to cheer everyone on Thanks to all for the wonderful support. It just means the world to me to have a healthy child at last Cindi x J the young dragon slayer is: HepC 1a since birth Male aged 15 VL 2000000 Started Twinvir/ 10-11-15-then Sof/led. NO sides so far ! after one week VL : 37 after 4 wks VL : UND ! EOT 2/2/16 UND.! 4 wks. post tx results....pending.... 7/3/16 VL result : 4 week post tx: SVR ! 12 weeks SVR ! 24 wks SVR yeeaa!! The following user(s) said Thank You: Joy, LondonGirl, mgalbrai, Paul-Jarman-facebook, Chejai, Ariel, Gaj, Tina-Hill-facebook, Jimmy6429, Greedfighter, Matt-Kenney-google | |
Young J the dragon slayer 8 years 2 months ago #10575
| That's great news CJ...so glad he is doing so well Lives in Bendigo, Victoria No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal Insomnia the only side effect Undetected at 4 weeks SVR4 - undetected - all bloods good and GP very happy SVR12 bloods to be done at end of April 2016 SVR12 - undetected!!! The following user(s) said Thank You: CJ |
Young J the dragon slayer 8 years 2 months ago #10577
| Hi Cindi so pleased for yourself and J - must be a huge weight off both your shoulders. As for the specialist J's SVR and 4 week post treatment result will speak for themselves and you never know it may just be the thing to change their attitude toward generic's. At the end of the day so long as J and you are happy then that's all the matters. SVR 24 |
Young J the dragon slayer 8 years 2 months ago #10791
Hi Cindi, it's great that J is doing well All the best to you both, it really must feel amazing to know your boy is virus-free and will not have to live with this. I'm so happy for you and your family QLD Australia ☀️ G3a HCV 35 yrs Tx naive Started Sof/Dac 13/01/16 Dec '15 AST 70 ALT 89 GGT 124 Fibroscore 8.5 F1-F2 13 Feb'16 VL UND AST 24 ALT 26 GGT 50H The following user(s) said Thank You: CJ | |
Young J the dragon slayer 8 years 2 months ago #10845
| That's great news for J Cindi , finished my last meds 2 days ago myself and will get tested in 4 weeks when I get home Two time relapser. SVR 4 achieved 12/16 at last SVR 12 achieved 22/02/2017 The Bastard has been defeated GT 3 - about 28 yrs with HCV The following user(s) said Thank You: CJ |
Young J the dragon slayer 8 years 2 months ago #10849
Cindi such great news for your youngster J deserves the best only I hear you about the weird vibes eminating at the mention of generics I know a lot of us get the same rot. Just a control thing I think. Silly when we have actually trailblazed these DAAs and actually provide a data cohort for free if they wanted to collect our responses to the DAAs isn't it! Looking forward to hearing of Js continued progress and wellness thanks for your posts Cindi and the support you give us here on tx Love from Ariel x Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
Young J the dragon slayer 8 years 2 months ago #10886
Thank you so much for all the well wishes! Good luck Paul! How's your holiday going? Miss our chats. x J the young dragon slayer is: HepC 1a since birth Male aged 15 VL 2000000 Started Twinvir/ 10-11-15-then Sof/led. NO sides so far ! after one week VL : 37 after 4 wks VL : UND ! EOT 2/2/16 UND.! 4 wks. post tx results....pending.... 7/3/16 VL result : 4 week post tx: SVR ! 12 weeks SVR ! 24 wks SVR yeeaa!! | |
Young J the dragon slayer 8 years 2 months ago #10914
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Hola Cindi everything is great so far , we are currently in Chile and getting plenty of vitamin D Two time relapser. SVR 4 achieved 12/16 at last SVR 12 achieved 22/02/2017 The Bastard has been defeated GT 3 - about 28 yrs with HCV The following user(s) said Thank You: LondonGirl, Ariel |
Young J the dragon slayer 8 years 2 months ago #10929
Ha! Have fun x J the young dragon slayer is: HepC 1a since birth Male aged 15 VL 2000000 Started Twinvir/ 10-11-15-then Sof/led. NO sides so far ! after one week VL : 37 after 4 wks VL : UND ! EOT 2/2/16 UND.! 4 wks. post tx results....pending.... 7/3/16 VL result : 4 week post tx: SVR ! 12 weeks SVR ! 24 wks SVR yeeaa!! | |
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