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Waiting game 8 years 3 months ago #9242
Yup, MrMumbai was me Genotype 1b - Tx naive Pre Tx Vl 8 900 000, Alt 52 2 weeks VL160 4 weeks VL 43 7 weeks VL UND EOT UND SVR 12 UND Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla) (REDEMPTION trial) | |
Waiting game 8 years 2 months ago #9562
Good news tonight: payment has cleared and meds will be shipped If no hold up at customs they will arrive by next weekend. Looking foreward to get the tracking number so i can follow the journey Genotype 1b - Tx naive Pre Tx Vl 8 900 000, Alt 52 2 weeks VL160 4 weeks VL 43 7 weeks VL UND EOT UND SVR 12 UND Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla) (REDEMPTION trial) | |
Waiting game 8 years 2 months ago #9564
Hi PauliNo, It is an exciting time waiting for the medicine, I was often standing at my mailbox and had to check myself to stop doing that ha! I burst into tears when they arrived...it was like a miracle had happened. I wish I had found this place earlier but no regrets, only looking forward now. As others say, this site is a refuge, a support and a place where you can say as much or as little as you feel. Sometimes I just read others stories and check up on Dr James's posts rather than write out how I am doing, or just go over to the music party we have and listen to all the great music that people post from YouTube. Wishing you a great tx, a positive outcome and welcome from Ariel in Australia. I love your beautiful snowy picture. Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
Waiting game 8 years 2 months ago #9627
Hi P, Welcome! Glad you found us. Waiting is hard, buts its almost over. Good luck! Mike This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
Waiting game 8 years 2 months ago #9705
Things are moving in the right direction Yesterday I met up with a new specialist and had a great experience. He did two rounds of Fibroscan, but no results high enough for putting in a new application for meds from NHS. Then I told him that I was waiting for generic medication organised through FixHepC buyers club. He was quite excited about this, as he had heard of buyers clubs but didn´t know of any patients that had tried it in Norway. He was very supportive about my choice and agreed to let me be followed by the hospital during treatment. As he said "you´ll take the medicines anyway, and it would be unethical not to follow you during treatment". I let him have a copy of the concent form from the Redemption trial and told him that he could let other patients curios about genercis contact me. Interesting to see if others will follow. He also confirmed that once the meds arrive I can start taking them and that there is no danger associated with taking sof/led. I got an updated VL above 9000 and my others results seemed fine. Today I recieved the tracker code from monkmed and my meds are on their way from India It´s been a good week Genotype 1b - Tx naive Pre Tx Vl 8 900 000, Alt 52 2 weeks VL160 4 weeks VL 43 7 weeks VL UND EOT UND SVR 12 UND Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla) (REDEMPTION trial) The following user(s) said Thank You: Joy, LondonGirl, mgalbrai, Chejai, Lynne-Francis-facebook, MonkMed, splitdog | |
Waiting game 8 years 2 months ago #9706
Welcome PauliNO The waiting is the hardest, each morning, noon and night I'd check for the tracking number in my inbox. For me no tracking numbers ever arrived- just the meds. First Ribavirin then a week later the others. I almost cried! I wish you well in your journey. EOT UNDETECTED Week 8 all bloods within normal limits Week 4 Undetected 2016 - 28 January started Harvoni & Riba treatment VL pretreatment 639,000 alt- 77 2015 fibroscan - 6.6 2 x non responder peg interferon & riba geno 1a | |
Waiting game 8 years 2 months ago #9714
| Hey Paulino - That's great news So pleased to read of your consultants response too - I have at last found a great consultant who is supporting me this way too - It really does help to restore the faith doesn't it seems to be the magic phrase that Drs who genuinely care about their patients wellbeing are using to help get their patients 'duty of care' - Good for him. MonkMed are so organised regarding the tracking and keeping in touch, although a little nervous, I also found it kind of fun watching my little package make its way across the world, In fact Debs and I were having a little race !
Delighted for you Paulino. Yep MonkMed &FixHepC definitely rock ! Here's to your good health GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC The following user(s) said Thank You: MonkMed |
Waiting game 8 years 2 months ago #9725
Great news Pauli! Both from Monkmed and your specialist. G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: MonkMed | |
Waiting game 8 years 2 months ago #9737
Great News Paulino, this is the start of the rest of your Life! Good Luck on Tx QLD Australia ☀️ G3a HCV 35 yrs Tx naive Started Sof/Dac 13/01/16 Dec '15 AST 70 ALT 89 GGT 124 Fibroscore 8.5 F1-F2 13 Feb'16 VL UND AST 24 ALT 26 GGT 50H | |
Waiting game 8 years 2 months ago #9772
I am planning to order the Generic of Harvoni from MonkMed ITrial 3) but while checking on MonkMed Pvt Ltd in the directory of the Ministry of Corporate Affairs of India, I was really surprised to know tthat this company is not registered. I had a very bad experience with online services and goods, I am twice shy (as you may understand).Please let me know your views on this. I really need the medication and won't like to see myself as a victim of my choice to buy or not buy. I am not a rich man to spend US$ 1,600 for false hope. Thanks for your reply | |
Waiting game 8 years 2 months ago #9773
| I can personally vouch for Monkmed as being totally reliable, a great service and they even go the extra mile beyond the call of duty in their care of patients / buyers. After all, Dr Freeman is partnered with them for Redemption Trials. I haven't read one bad thing about MonkMed unless maybe someone who wishes to discredit them somehow, but I haven't even read anything like that. Hope this helps. ps you can see my progress so far from their meds in my profile below my post GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
Waiting game 8 years 2 months ago #9774
Hi G, MonkMed is the Real Deal. You can email me at the below address if you like. There are several really good options right now. Shams and scams don't survive here. Other than me, there's too many very smart and very wary people here for them to practice their vile sport. Good Luck! Mike This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
Waiting game 8 years 2 months ago #9785
Hi Gerges, This may also give you additional confidence in Monkmed. It is the U.S. govt's NIH listing of the Redemption trials. www.clinicaltrials.gov/ct2/show/NCT02657...rm=redemption&rank=1 FixHepC is the sponsor and Monkmed is effectively the international coordinator. G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
Waiting game 8 years 2 months ago #9788
| I sent Monk Med my paperwork, did the phone call once my order was released by FixHepC it was in London within the week. They are excellent in communicating with you as you go through the process I honestly can't say enough good things about them. FixHepC uses Monk Med to process the orders you have nothing to worry about. Order and get well. I have also bought from FixhepC before the trials I had to extend treatment. Sob/Dac from Oct 29 2015 Geno 1b Fiberscan 9.9 Pre treatment Fiberscan 7.4 week 10 VL 1.3 million pre treatment Week 2.5 VL 96 Week 5.5 VL 17 Week 10 VL UD SVR 3 UD SVR 16 UD Cured: All liver functions in normal ranges. The following user(s) said Thank You: LondonGirl, Gerges |
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